posted
Very interesting--- the protocol is similar to Lyme protocols, and many with Lyme do develop MS.
I personally know a 27 year old girl who was misdiagnosed by New York Presbyterian Hospital with MS, and put in a wheelchair to die. She luckily went to my LLMD, and was out of the wheelchair within a month after being treated for chronic Lyme.
Spirochetes are at the root of many of America's health woes-- yet very little national resources are being devoted to the topic..
It is a national disgrace.
Posts: 696 | From New York | Registered: Aug 2006
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posted
Isn't it for cpn instead?
Posts: 101 | From nowhere | Registered: Aug 2013
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Cpn and mycoplasma are often overlooked infections in the lyme complex...thanks for posting this...
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- wrotek,
Thanks so much for posting this as it is very important for everyone with lyme to consider cpn and many new might not have his brought to their attention.
As WakeUp notes, yes, similar to lyme protocol and Cpn can cause many if not all of the same issues as lyme. Often, many have both lyme and Cpn. And the article does post that link.
The article fails, big time, though in not mentioned the UK doctor really at the heart of the MS treatment protocol, Weldon (or Wedon). It's at the cpn site. It was not all from the Vanderbuilt team, though Stratton worked with the UK expert on it.
The spacing and typeset in that article are atrocious, though. How they expect anyone to read that is beyond me.
While very similar to lyme protocols, though, there are some differences and it's good that any LLMD can work with those so that all bases might be covered for those with Cpn and lyme.
And, mycoplasma protocol has other steps as well.
Good to see so many aware of all this.
Following packypacky and bluelyme's leads:
Be sure to look at the protocol here. the basis for it:
website for Garth Nicolson, the top research expert in this field. He is very well respected among ILADS LL doctors and often presents at ILADS conferences. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Yes, this is for CPN. A lot of folks with CPN were wrongly diagnosed with MS, which is probably why it's titled this way. (Yes, similar to Lyme.)
Of course, it's also possible that a lot of people have CPN on top of Lyme. I did/do. It's definitely a stealth infection.
And I can add based on my personal experience that I think it's a very good protocol for CPN. For me, CPN did NOT go away with multiple rounds of single antibiotics, even a flouroquinoline that an ID doctor guaranteed would do it.
I was on zith, rifampin and doxy for months. Just now, I have cautiously gone off of it about 2 weeks ago, and am holding my breath. If symptoms come back, I'll go right back on it.
Posts: 1737 | From Virginia | Registered: Aug 2011
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quote:Originally posted by WPinVA: Yes, this is for CPN. A lot of folks with CPN were wrongly diagnosed with MS, which is probably why it's titled this way. (Yes, similar to Lyme.)
Of course, it's also possible that a lot of people have CPN on top of Lyme. I did/do. It's definitely a stealth infection.
And I can add based on my personal experience that I think it's a very good protocol for CPN. For me, CPN did NOT go away with multiple rounds of single antibiotics, even a flouroquinoline that an ID doctor guaranteed would do it.
I was on zith, rifampin and doxy for months. Just now, I have cautiously gone off of it about 2 weeks ago, and am holding my breath. If symptoms come back, I'll go right back on it.
What symptoms of cpn do you have?
Posts: 101 | From nowhere | Registered: Aug 2013
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
bronchitis but it doesn't go away
Posts: 1737 | From Virginia | Registered: Aug 2011
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