LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » The Worst Symptom Ever!!!

 - UBBFriend: Email this page to someone!    
Author Topic: The Worst Symptom Ever!!!
skimpbiz
LymeNet Contributor
Member # 4433

Icon 1 posted      Profile for skimpbiz     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wanted to share with you guys the lyme symptom I hate most of all. I'll be curious to find out if any of you have experienced this.

It begins after leaving the town where I live. In driving or flying to my new destination, I feel ok and upon arrival I feel ok.

Then, after an hour of being in this new place, I start getting this feeling like I'm in a dream. It's very difficult to describe. I don't feel it's disorientation because I can always tell you where I am, what the date is, what time it is, what street I'm on, etc.

It's just this odd sensation that nothing around me is really happening, like my reality is a dream, and just total fogginess. Fortunately, no one around me has ever been able to detect this. That tells me that I am able to pass off this feeling well enough to get by.

That said, it's a rather eery and scary feeling and as a result I don't like leaving areas I know. It must be some form of sensory overload or something.

This sensation always ceases when I return home.

In my good periods with this disease this symptom isn't that bad but when my body's feeling bad it's horrible.

Has anyone else tasted this eery feeling? I'd love to hear any similar stories. What is it that I'm experiencing?


Posts: 173 | From Lakeland, FL 33813 | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

Icon 1 posted      Profile for AZURE WISH     Send New Private Message       Edit/Delete Post   Reply With Quote 
its a disasociative experience - lots of ppl have it exeprience it....

various mood disorders have it as a compoment ... people who have been thru trauma etc.

dont worry about it too much.... just make sure you tell ur dr if it keeps happening...
maybe theirs something she/he can do.

sorry cant type anymore tonight.. but u had no responses so want u to rest assured ur not alone.
best wishes


Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
tjtighe
LymeNet Contributor
Member # 4057

Icon 1 posted      Profile for tjtighe     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well, I wouldn't put it in exactly the same words, but, yes this often happens to me. It is like a dream because nothing seem really real. Always glad to get home. I take it as part of my fogginess and need to get thru the situation.

tj


Posts: 296 | From Portland, OR | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
solsearcher
LymeNet Contributor
Member # 4482

Icon 1 posted      Profile for solsearcher     Send New Private Message       Edit/Delete Post   Reply With Quote 
I suffer from the same thing, but I don't have a safe zone. I posted something similar awhile back regarding this symptom. I hypothesized that if Lyme can mimic schizophrenia, couldn't it also mimic Dissociative Identity Disorder (DID)?

The response was generally negative. But since DID is caused by trauma, usually as a child in the form of Satanic Ritual Abuse or more general child abuse, and since I didn't suffer such atrocities, my conclusion was that Lyme could be mimicking DID.

I agree with your assessment. I can't imagine a worse symptom. Those who don't have it don't have a clue how incapacitating it is. Good luck.

Scott


Posts: 112 | From St. Petersburg, FL USA | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
Member # 4117

Icon 1 posted      Profile for treepatrol     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yep had that one quite a few times.
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
beachcomber
Frequent Contributor (1K+ posts)
Member # 5320

Icon 1 posted      Profile for beachcomber     Send New Private Message       Edit/Delete Post   Reply With Quote 
Same here. One of my first symptoms. People would be talking to me and I would go into "my zone", as my friends described it. It was like everything was tuned out and the world was in moving around me. I didn't panis, just sort "went away" mentally. One Dr. I saw said it was ADD and precribed Ritalin. Yikes! That stuff was nasty. I stopped taking it soon after starting.

With Lyme treatment I started coming back to earth, so to speak.

Bc


Posts: 1452 | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
dullchime
LymeNet Contributor
Member # 6024

Icon 1 posted      Profile for dullchime     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ive had this every now and again. your eyes feel like they fall back in your head about 3 feet and its like your watching your life on TV or something but your still interacting with everyone. Drinking would bring this on really bad for me. Naturally I stopped. Could an elevated heart rate or anxiety be bringing on your fogginess?? I dont know its hard to pin-point these things. Hardcore anxiety would really bring on the Lyme way worse. Hope I helped.

Chime


Posts: 232 | From kennett square, PA USA | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
skimpbiz
LymeNet Contributor
Member # 4433

Icon 1 posted      Profile for skimpbiz     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yeah I definitely feel anxiety plays a part. Knowing that I'm driving to a new place causes tremendous anxiety as I'm trying to avoid getting that "dreamy" feeling.

I posted this yesterday because yesterday I drove from Lakeland, FL to Orlando (about an hour drive) to look at apartments there.

I did ok on the car ride there, i was ok upon arrival, but then when I got out of my car at the apartment and I was getting my apartment tour, I got hit with this symptom yet again. New place and new enviornment = skimpbiz in a dream world.

It stayed that way until about halfway through my drive back home, when I improved upon familiar surroundings.


Posts: 173 | From Lakeland, FL 33813 | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
needleseye
LymeNet Contributor
Member # 6037

Icon 1 posted      Profile for needleseye     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have had something like this for the last year or two-since before I had lyme.

I think that there are a variety of things that can cause it but anxiety would seem to be one of the prime suspects.

For me I have been living in a time of personal dislocation for the last couple of years and Lyme is the most recent event that has disrupted my life.

So I do have a piece of advice.

When you notice this happening you have to consciously take a moment to be as truly present as you can be.

Be aware of your body and the sensations in it.

Feel your feet touching the earth, breath in and notice the air entering your body put your hand on something solid and natural like a friend, a pet, a tree or the ground, feel the sun or the rain or the breeze on your skin.

Do whatever you can to ground and center yourself. Don't panic if the feeling doesn't go away just try to reassure yourself that you are present.

Also if you are up to it physically try to take walks at home or do a little yoga, tai chi or chi gung. It helps you reassociate with your body.

It helps me to feel a little less anxious to do this. Also I believe that yeast can be part of this problem to. So if you haven't treated for yeast you might consider doing so.

Wishing you healing and good health

-Shanna


Posts: 109 | From Colorado | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019

Icon 1 posted      Profile for TheCrimeOfLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
dysautonomia?


Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
Kerryblue
LymeNet Contributor
Member # 4077

Icon 6 posted      Profile for Kerryblue     Send New Private Message       Edit/Delete Post   Reply With Quote 
I agree very well could be dysautonomia. People with severe fm have huge problem with this also.

It is also normal especially when people are not well. When they leave their safe comfort zone, much harder than for well person. Usually also having spacial disorentation.

It is like when 1 goe`s on vacation, even well folk, want to go have great time etc. Yet, part of them can`t wait to get home. I can`t even go to the bathroom properly when away. Can walk in door after wk. have to go immediately. Back to my comfort zone.

Think your brain probably takes you to a safe place. We have to put on when out in public, can be quite exhausting. Mainly do not want to go out to have a bad time so we put on the smiley face, through all pain & discomfort.

A husband of patient I had asked me how his wife can be so social until company leaves. We can relax. Not have to put on. Back to our true self & comfort zone.

Don`t worry not uncommon. Just bigger problem for chronically ill.

If your brain takes you to safe place prob. not bad thing for your protection of being over stressed, leaving home.


Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
lemonhead
LymeNet Contributor
Member # 6267

Icon 1 posted      Profile for lemonhead     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank God somebody else came up with this question cause it has been worrying me a bit also. An added symptom that bothers me with this happens is, you know how in a movie the actor is standing in a hallway and the hallway gets longer and longer, and you are not sure whether you are going to get to the end, that's me when I'm out of touch also. I'm new to this disease but I find making myself a part of the world when I can is the best way to fit in it. Felt bad today but had to check our horses and made myself go.

Something to laugh about though...I went to the stables this evening to talk to our horses because I can't ride them cause I dont have all my brain working. I walked into the stable and said Hi, pretty girl. I heard a Hi back. I stopped and got worried, then said Hi again, and I heard Hi back. Now I know Lymes may cause some schizophrenic tendencies, and the horse's name wasn't Ed. Believe the relief I had and the anger at one of the stable hands hiding behind a stall. If she only knew.

Be aware, as aware as you can be.

Needle'seye, I like the advice, get in touch with yourself. Does Tai Chi work for you? I have got to start an exercise program.

Take care all, Loretta


Posts: 156 | From Corpus Christi, Texas USA | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
ponytail
LymeNet Contributor
Member # 36

Icon 1 posted      Profile for ponytail     Send New Private Message       Edit/Delete Post   Reply With Quote 
OMG skimpbiz - I needed to see this one!!

I have been doing this for EVER and just thought I was crazy!! Haven't shared about it since spending some time in the mental ward many moons ago (before I even ever heard of Lyme-hence, my real problem)!! I told them about it and the ear ringing and they kept me and wouldn't let me out!! I tried and tried to explain I wasn't "hearing voices" - just ear buzzing!!!

Anyway - thanks and I hope it too will go away!! I think flourescent (sp?) lights make my "dream state" worse!! My kiddo describes something similar and terms hers "zoning out"!!! When I was still trying to work, it happened so often and went hand in hand w/ the inability to recall anything!!!

Loretta - I know how you feel about not being able to ride your horses!! It is as if I've lost my identity!! All we have at home now is my daughter's old/sick pony and I go out there and doctor her and brush her and remember the good old days when I had a life and some skill!!! Take care!

Sherry

[email protected]

------------------


Posts: 704 | From Huntsville, Texas | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Lymie10/03
LymeNet Contributor
Member # 6135

Icon 1 posted      Profile for Lymie10/03     Send New Private Message       Edit/Delete Post   Reply With Quote 
I get the feeling that I am in my own little world even going to the store or driving my car sometimes-it's really odd.

I've told my mom about it, but we never really have thought or done much about it. It's like the whole world is moving so fastly around me and I'm watching it like in a movie-it's crazy!! Any advice??

Jenn


Posts: 122 | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215

Icon 1 posted      Profile for lymeHerx001     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ive had this for years,

feel like Im in a nightmare and cant hear or see people properlly.

Whats makes this even worse for me now is the CHRONIC VERTIGO.

I am very pissed about this and I know I shouldnt be because I will not heal myself being totally pissed.

I really dont know what to do for this vertigo.


Posts: 2905 | From New England | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.