I was tested for Lyme on 12/20/04 through Igenex. I didn't test CDC positive but I had Lyme specific bands. I began treatment about 2 weeks ago after my 1st appointment with Dr C. My main symptoms are headache, sinus pain/pressure, insomnia, and shoulder/neck pain.

I asked Dr. C if I could have given my kids Lyme since I've had these symptoms for 25 years. He said we wouldn't know for sure but it is very likely. Jordan was sick a lot when he was younger. Jake was put on a preventative antibiotic when he was 1 or 2 years old to prevent ear infections. I'm thinking this prevented him from being so ill. Both kids had injuries right they got really sick.

We asked Dr. C if my husband should be tested. He asked about his symptoms and thought it would be a good idea. His main symptoms are allergies, headaches, and recently shoulder pain.

He was tested through Igenex and received his results today.

IGG:

18 ++
28 ++
30 ++
39 +/-
41 ++
45 +
58 ++
66 +/-
93 +

IGM:

18 +/-
39 +/-
41 +
45 +/-
58 +
66 +

How did your husband's test turn out?

Do you think you were born with it too? I hope you begin to improve soon!

The results I posted are my husband's results. His IGG is CDC positive and his IGM is equivocal.

I don't think I was born with it. I was healthy until I was 17 or 18 and started having really bad headaches.

I grew up on a farm in Wisconsin. Wisconsin is an endemic state.

Wisconsin ? Ticks ?

Just go to St. Joseph's in Marshfield. Don't you know that according to their head ID Quacker, lyme is easy to diagnose, shouldn't be treated clinically, unless you get a postive test then 3-6 weeks of doxy.

Funny though, if you exhibit massive lyme symptoms, and their bloodwork is negative, then you have Epstein-Barr virus.

I'm waiting for him to call us to let us know if he will see Jake (Jake is 18).

Jordan had a lumbar puncture on 2/4. His opening pressure was 275 which is high. They drained fluid to bring it down to 140. A lot of his symptoms were better after the LP but now have come back.

Jake had a lumbar puncture on 3/14. He had a lot of back pain and developed a spinal headache. He said today that his headache has been a 6-8 since the LP. Before the LP it was a 9-10.

Jake's opening pressure was 130 which in the normal range.

I still think increased intracranial pressure is the cause (or part of the cause) of their headaches.

I need to get my 1 year old tested, because I've been breastfeeding her most of her life.

My husband also wants to get tested, he is always tired and has a pain in his chest near his ribs that isn't really diagnosed or going away.

We live in MA, but just moved here from MN last year. I think my daughter and I were infected by ticks in our backyard. Not sure though, never saw the tick, just the rashes.

Glad he will be seeing an LLMD.

I am very interested to know that with Jake, you still feel his headache could be due to intracranial pressure, even with a normal LP.

As you know, my daughter has also had a long-term headache (since Jan.6, 2003, not as long as your kids') and she always complains that it feels "swollen." Tonight I felt the top of her head, and I swear it felt squishy, just like she says.

He LP two years ago was also normal.

She seems to have a lot of fluid retention and puffiness everywhere- does either of your sons have this?

BTW my daughter had an endoscopy this week and it showed extensive yeast in her stomach and esophagus. It will be interesting to see if treatment helps her headache, although we have pretty much given up the idea that anything will help.

After Jordan's LP on 2/4, his headache was better, he was less light sensitive, less irritable, the pulsing in his ear was gone, itchiness went away and his sense of smell was better. Those symptoms are back now.

Lyddie - I didn't think my kids have fluid retention. At the last appointment with Dr. C, he asked Jake how long in has had edema in his legs. Jake didn't know he had edema. Jake was on Cortef and I think that could have been the cause.