LymeNet Flash: Lyme and Guillain Barre Syndrome

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » Lyme and Guillain Barre Syndrome

UBBFriend: Email this page to someone!

Author

Topic: Lyme and Guillain Barre Syndrome

orion
LymeNet Contributor
Member # 3858

posted

Is Lyme ever misdiagnosed as Guillain Barre Syndrome? I don't know anything about GBS, but there's a little girl who the ducks say have GBS, and I'm wondering if it could really be Lyme.

orion

Posts: 245 | From Tickafornia | Registered: Apr 2003 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Personally, I think it's a very real possibility. It's mainly my gut feeling. I can't remember whether I've read info on a connection or not. Have you researched it??

I'm haunted [and have been since my own Lyme diagnosis] by the Guillain Barre dx of a close friend of my father-in-law's. His life was destroyed by this illness. He nearly died and is still quite disabled.

You know how they say it often "follows the flu"? Well, what if that "flu" was actually Lyme?

------------------
oops!
Lymetutu

Posts: 96227 | From Texas | Registered: Feb 2001 | IP: Logged |

orion
LymeNet Contributor
Member # 3858

posted

I was wondering the same thing... about the "flu" part.

Posts: 245 | From Tickafornia | Registered: Apr 2003 | IP: Logged |

suki444
Member
Member # 18960

posted

There was a girl in eurolyme who wss given this diagnosis - supposedly caused by a mystery 'virus'...she got private tests done and it was Lyme.

Emma

Posts: 37 | From Whitehead, Northern Ireland | Registered: Feb 2009 | IP: Logged |

Kathi
LymeNet Contributor
Member # 2261

posted

When you go into yahoo with "Lyme misdiagnosed as" you will find a few links, but also that one below. K.
http://neuro-www.mgh.harvard.edu/forum/GuillainBarreSyndromeF/9.17.9812.06PMLymediseasemisdi

Posts: 210 | From VA | Registered: Mar 2002 | IP: Logged |

ColonialRose
Member
Member # 4790

posted

I am living proof that Lyme is often mis-diagnosed as Guillian-Barre. That has been my diagnosis for over 2 yrs. now. I have felt I had Lyme for quite some time - with 2 negative tests. Heard of the test that Bowen Research is doing, had it, and now have pictures of the culprit. Have just started treatment with a wonderful LLMD. I feel like a fool for not being more assertive in researching and getting to the bottom of this sooner. I had the classic symptoms of Guillian-Barre, except I had a low-grade fever. Fever is not associated with Guillian-Barre.

Posts: 28 | From United States | Registered: Oct 2003 | IP: Logged |

krazykt1
LymeNet Contributor
Member # 3739

posted

Wow, I was just talking about my GBS symptoms, wondering if my paralysis/motor troubles are caused by mino/rifampin herx. What abx are you on Rose? (if you don't mind me asking)

Posts: 740 | From BC Canada | Registered: Mar 2003 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

kat....I don't think she posts here anymore. This was dated 2003.

Did your symptoms begin with the herx?

------------------
oops!
Lymetutu

Posts: 96227 | From Texas | Registered: Feb 2001 | IP: Logged |

krazykt1
LymeNet Contributor
Member # 3739

posted

Hi Ltoo, I'm going to blame this one on lymebrain. I had done a search and lost track.
Yes my more severe/pronounced sx started when I got on the right abx...before that I had only a limp on the right leg. I've been on this bart combo 6 months.I want to get walking again.

Posts: 740 | From BC Canada | Registered: Mar 2003 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/