LymeNet Flash: Anyone recovered with Biaxin and Plaquenil?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Anyone recovered with Biaxin and Plaquenil?

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Author

Topic: Anyone recovered with Biaxin and Plaquenil?

hwilsonvt
Member
Member # 7453

posted

Started with Biaxin and Plaquenil. Not allowed to take any other supplements. What does everyone think about that? Will it do the job??

Posts: 46 | From Middlesex, VT | Registered: Jun 2005 | IP: Logged |

janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

posted

Get the video, it will answer almost all your questions, then loan it to the doctor.

biaxin/plaq-gotta start somewhere, some of us have moved thru many combinations.

Posts: 2001 | From NJ | Registered: Mar 2005 | IP: Logged |

hwilsonvt
Member
Member # 7453

posted

quote:
Originally posted by janet thomas:
[B]Get the video, it will answer almost all your questions, then loan it to the doctor.
B]

Janet I do not know what your problem is. I probably have read more in the last month than you have about Lyme disease and all the different types of treatments. The reason for a group like this is to talk to others about there experiences. I thought that was the point of this site not to tell people to "get the video".

Posts: 46 | From Middlesex, VT | Registered: Jun 2005 | IP: Logged |

janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

posted

MY PROBLEM is that I get the impression you don't understand the seriousness of this disease. I have been studying this monsterous disease intensely since Nov 04 and learned more by watching that video than in all the previous time.

Why would you get uppidty with someone who is offering you vital infromation?

Do you know the name Dr. B?

*****Webmaster Note*****
I edited the doctor's name to protect him and the Lyme community. Please see my post about updated rules. Effective immediately. This applies to all LymeNet members.

[This message has been edited by Jenifer (edited 05 July 2005).]

Posts: 2001 | From NJ | Registered: Mar 2005 | IP: Logged |

hwilsonvt
Member
Member # 7453

posted

quote:
Originally posted by janet thomas:

Why would you get uppidty with someone who is offering you vital infromation?
Do you know the name Dr. B?

Yes I have read many article about Dr. B. I would get uppity because it seemed you were trying to end the discussion with "get the video".

How are we suppose to find out real information when there are crack pots out there saying that Lyme is sexual transmitted disease and that it is not just from ticks but also mosquitoes. Or maybe it is true and most of the medical community is trying to cover it up. So I was trying to find out real life situations.

*****Webmaster Note*****
I edited the doctor's name to protect him and the Lyme community. Please see my post about updated rules. Effective immediately. This applies to all LymeNet members.

[This message has been edited by Jenifer (edited 05 July 2005).]

Posts: 46 | From Middlesex, VT | Registered: Jun 2005 | IP: Logged |

janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

posted

Well then, you could say thank you but could you please answer this question.

My background is medical laboratory medicine. I worked in a hospital laboratory and worked microbiology, many days alone.

A bacteria very closely related to the Lyme bacteria is the bacteria that causes syphilus. How is syphilus transmitted?

Maybe it's not such a crackpot idea.

Janet, Medical Technologist (ASCP)

Posts: 2001 | From NJ | Registered: Mar 2005 | IP: Logged |

hwilsonvt
Member
Member # 7453

posted

All I know is my wife is out of work while trying to get better. All we have to run on is a result that the CDC says is negative. And the way you are talking means yes my wife is positive and that I should get tested too and probably my son. Even though only the LLMD believes she has Lyme. She does have about 90 of the 100 symptoms

Posts: 46 | From Middlesex, VT | Registered: Jun 2005 | IP: Logged |

janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

posted

www.canlyme.com click on symptoms
www.ilads.org treatment guidelines

Why stop treatment in your wife and let this horrific disease get more entrenched???? You have a positive test, read the information we took time to post for you.

We do this because we hate this disease so much we want to stop others from suffering. NOT to bandy words back and forth!!

There are many families with multiple family members ill with Lyme and co-infections.

Did your Lyme doctor run any tests for the common co-infections? Babesia, ehrlichia, bartonella, mycoplasma,etc? An experienced Lyme doc would do that.

Do what you will.

Janet

[This message has been edited by janet thomas (edited 13 June 2005).]

Posts: 2001 | From NJ | Registered: Mar 2005 | IP: Logged |

hwilsonvt
Member
Member # 7453

posted

quote:
Originally posted by janet thomas:
Why stop treatment in your wife and let this horrific disease get more entrenched???? You have a positive test, read the information we took time to post for you.

I am not trying to stop treatment I am trying to find what is effecive since she has not had any real herx. Additionally, I did read your article (why did you think that I did not)that lists one opinion that says just one band means you have lyme. That is not what the CDC says, that is not what most the medical community says. I can find lots of articles that say lots of things that doesnt make it true. But someones own story is true. That is what I was hoping to get but it appears that is not going to happen.

Posts: 46 | From Middlesex, VT | Registered: Jun 2005 | IP: Logged |

hatsnscarfs
LymeNet Contributor
Member # 6562

posted

I just finished my first month of Plaquenil & Biaxin. I'm not herxing as much as with my previous drug, tetracycline. However, I am feeling much better. My energy level has improved greatly. Numbness and tingling are improving, brain fog is gone. A few new symptoms have surfaced but they have gone away quickly.

Maybe it is stirring things up but almost all the new symptoms go away really fast.

So yes, it seems to be working and not putting me through so much in the process.

At this point I am very pleased with the results. I can actually imagine the possibility of truly getting better.

hatsnscarfs

Posts: 956 | From MA | Registered: Nov 2004 | IP: Logged |

janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

posted

Alright, one more time. This is for your wife. The CDC guidelines for the interpretation of the Lyme Western Blot are for tracking the disease ONLY and are not intended for diagnostic purposes. Most doctors are unaware of that. If you were so well read then you would know that too.

You now have links to much information.

Posts: 2001 | From NJ | Registered: Mar 2005 | IP: Logged |

hwilsonvt
Member
Member # 7453

posted

quote:
Originally posted by janet thomas:
Alright, one more time. This is for your wife.

Here is the problem I am pretty convinced she has Lyme as well as her mother. I do not know if she is convinced or not. I tried to get her mother to get tested because my wife has probably had it since she was 5. The problem is that she is going to have it done by her PCP who will not send it to a good lab or know how to use it. I am just trying to get real life experiences to share and help convince her and her mother that we are on the right track.

Posts: 46 | From Middlesex, VT | Registered: Jun 2005 | IP: Logged |

henson2
Frequent Contributor (1K+ posts)
Member # 463

posted

What happened in this thread? I don't know the video that is being referred to. I didn't know that there was "one" video even to see, because the Lyme experts themselves are learning new things and sometimes have differing opinions.

I did very well on Biaxin and plaquenil for a couple of years. I felt better on it, had better functioning. Then I went through a period where it almost became too strong for me, I think I was Herxing in a strong way. My pain levels went up and I had a hard time.

I took an abx break to regroup (and also get through a patch of intense academic work). Now we are going to ramp up with Zithro, plaquenil and amantadine.

(I am also extremely sensitive to all medications).

I don't think there is any one perfect protocol for everyone, as there are at least 300 strains of the Lyme bacteria, and six known genotypes. Plus, we are all different individuals with different tissue types, etc.

So our doctors see how a treatment works for us. Also, there are times when it is good to rotate with a new treatment or dose.

So, I am not sure that a single approach would work for all of us.

I also have the "no supplements" rule. I have both followed it and then sometimes gone ahead and tried them anyway. Oddly, I felt worse when I took the B supplements. I know that not all LLMDs agree on this. (My LLMD does allow me to take Calcium and D, however). Maybe it is the power of suggestion, but taking supplements does kick up the symptoms for me.

But again, we are all so very different.

My advice would be to follow your LLMD's protocol for a while and make a commitment to follow through for a while.

Part of it is that the bacteria can be a different strain from what others have, and we ourselves are so different.

In conclusion, though, I can say that I made very good progress on Biaxin and plaquenil.

Good luck! Please feel free to post your questions!
Warm wishes to feel better soon!

Posts: 1066 | From East Coast | Registered: Dec 2000 | IP: Logged |

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