posted
back from e.r. massive headache, one-sided,switching sides these past two weeks.
most lab results normal, ableit a significant number near the lower and upper lims. of normal.
CTSCAN for suspected sinusitis,masses, etc. the latter of which i never had = 'normal.' worthless test. gotta get mri of entire spine. no signif. mucosal thickening. no fluid levels. normal ventricles. what a waste...
[edited]
paradoxically, after nurse took my bp with some machine, the intensity of the onesided headache diminished some for short while afterward, then when i coughed, severe pain and pressure behind the right eye.
aside from some bug i may have caught,my guess for headache is probable altered anatomy of my skull on the spine, and s.cord degeneration of connective types of tissues, from shoulder level of neck upto bottom of skull, first vertebrae.
porky pig says, uh tha thats all folks! gotta see some more slapstick daffy duck, and bugs bunny toons!
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
You should have ran one test for Magnesium levels. I had lyme induced encephilitis and I took ibuprophen anti inflamitory vicodin for pain and you need a abx that crosses blood brain barrier.
Doxy is suppose to at high doses and also flagyl theres more.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
I agree with the tree...
I doubt if you will find anything significant with mri of spine... Perhaps a spect scan would be better.
I had severe pressure and pain behind my right eye as well earlier on. It was'nt till a lot of IV rocephin coupled with flagyl that my neuroborelliosis got under control.
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Oh, PQ, I'm SO feelin' for you. Did they at least have the mercy to shoot you up with something before sending you on your way? Sounds like "No" or you wouldn't be posting.
Neuroborreliosis produce THOSE kinds of headaches. Ibuprofen and such rarely touches em. You can get to feeling like you are having a stroke. Don't know what your ABX protocol is, but I hope it's got some good blood-brain barrier crossers in it and it ain't no short-term thing, believe me.
I had headaches like what you describe for at least two years prior to being diagnosed. They got much worse when I began treatment. But for encouragement from the LymeNet community, I swear I would have given up any hope of relief. It took MONTHS to see improvement, but it finally came, and now I'm pretty much headache free.
See if you can get a scrip for some Relpax or Imitrex - about the only thing that would touch the headache pain (assuming no cardio issues). Used sparingly, they are a lifesaver.
Hope you get some much needed rest and relief soon!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
I am sorry about your headache and ER visit. That has been my most debilitating part of my tick borne illness are the migraine attacks...I say attacks because one minute I am fine...the next my vision is all messed up and migrating numbness hands, face, mouth...
Anyway, you said, "my guess for headache is probable altered anatomy of my skull on the spine, and s.cord degeneration of connective types of tissues, from shoulder level of neck upto bottom of skull, first vertebrae"
I am a bit interested in this because when I had an MRI a few years back the neurologist said I had a "dandy-walker cyst"...turns out what I have is classified as a "mega cisterna magna" Basically it is not a cyst - it is a location in the fourth ventrical of the brain that didn't close completely and is more open and can sometimes alter cerebral spinal fluid.
For me it hasn't been a big issue...haven't had to have a shunt placed. I have just been wondering though if this could be a developmental issue from lyme that I possibly could have inherited.
So is your structural issue at all related to the fourth ventrical?
I hope your feeling better today.
Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
| IP: Logged |
posted
Thank you ALL, for your greatly needed moral support while the e.r. visit was not the roughest i've had, did produce a lot of anxiety about attitudes toward the tbd-infected, as you, too-well know from bitter experience.
i'm a lot better now, at least its not acting up now. But, all i have to do is cough, and its there. can't get a 'good' cough up; else incredible pain in back of rt. eye. a little less intensity, though right now. sensation of pressure behind the eye now considerably reduced, but only if i don't cough too hard.
shopping for docs. now.
Tree,
on the Mg, i did do the citrate form 2-3 times yesterday, before going to the e.r. couldn't tell if it helped to relieve anything. it did seem to get me to do a few more tasks i would not have o/w done w/o the mag. citrate.
excellent point on requesting a red cell mag. level; however, i was too tired and pained to ask. if i had thought to ask, and the doc got pissed, which they usu. do cause this test is not often done, i would've insisted anyway. i was too out of so to speak, though. i request, but did not insist on a thyroid, kidney and liver panel all of which are warranted by previous lab results, but since this visit was an out of network e.r. visit insurance would probably have denied payment,of any kind. i'll take these up with my pcp and hmo.
i initially rejected the ctscan for sinusitis cause i didn't have it, and never had sinusitis, but then i changed my mind for whatever else this test is diagnostically worth.
glad to know i don't have a 40lb tumor on the medulla, etc.
Tony, yeah, I agree, but spect scan is outta the question for now. Mri can be diagnostically revealtory as it was with my first mri when i lyme encphalitis; the tesla strength, lo and high, each have their respective merits in finding things. then there is the functional mri, which i gotta find out more about. gotta check some neuro sites, and sites with piccs and correlate Sx, best i can. for now, the i.v. rocephin and flagyl is a pipe dream, but comparatively, i'm in a lot better shape now than i was for the first 3-4yr. of my infection when these would've gotten me functional more quickly.
i tried ibuprofen + a heated rice-filled sock on rt. side, back of head about 3pm today. it seems to have worked to the extent one, if not both things combined, enabled me to get off the couch and finish cooking the english beef stew i abandoned for the e.r. visit abput 5pm yesterday, and to reply here. initially the aspirin 'seemed' to work, but it barely touched the pain, if at all. the heated sock of rice i think did a better job.
Michelle, will look into relpax and imitrex. i refected the doc's offer for an i.v. nonsteroidal anti-inflammatory cause i didn't recognize the name, and the e.r. doc was disingenuous(if thats the right word) about what exactly the technical name for it was, or the class of antiinflammatory. i think the name started with the letter 'T.' no abx protocol now. fortunately, this time, i had a relative with me in the e.r., so the anxiety level was down a bit.
Lymied,
i can't say anything about that big hole in the bottom of my skull--magna cisterna. i don't know what this ctscan will show; the report said normal brain....no signif. mucosal thickining. nothing said about my ventricles.
i should think an mri would be better suited to showing the antomy of subcortical structs., but i don't really know. my first mri report,made years ago, mentioned something about my duramater being mildly diffusely inflamed, if i recall correctly. the mri, did comment on my ventricles. probably being normal.
Posts: 2708 | Registered: Feb 2005
| IP: Logged |
posted
I just wanted to add that I have been going through something similar lately. Blinding headaches on the left side of my temple that runs into the eye socket.
I actually had to hold on to that side of my face to drive to the chiropractor last week-two motrin, a tylenol and one demerol later. I was headed to the ER if I didn't get any relief.
Turns out it was structural-coming from my neck. The pain started to diminish as soon as I had the adjustment. Not fun!
Posts: 202 | From vancouver, canada | Registered: Jun 2005
| IP: Logged |
thanx! your reply offers some insight, as while i never before had skeletal-spinal stuff before lyme, i'm holding on to the hypothesis that this is in part some anatomical change in supportive and other types of connective tissue in the spine, and where the spine meets the neck, due, at least in part to Bb setting off my own matrix metalloproteinase(mmp) enzymes that, in turn, digest supportive connective types of tissue.
gotta find some mmp inhibitors. these should help mitigate against the problem. thats my own guess for now. some kind of mri needed.
Posts: 2708 | Registered: Feb 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[lol]](graemlins/lol.gif)
![[Big Grin]](biggrin.gif)
![[group hug]](graemlins/grouphug.gif)
![[Wink]](wink.gif)
Printer-friendly view of this topic