ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
I thought I would post because it has taken me years to muddle through a toxic drug protocol for me that injured my immune system (this was documented by my drug allergist and llmd). At any rate, I stopped having seizures in Dec. 2005 after 3 years of experiencing them, and finally, I went on a family vacation to Maine last week.
We have not been together as a family for vacation for six years, and I had an enjoyable time. Of course I watched out for ticks and pretty much stayed to the pavement.
But, this was a monumental time for me to almost be like a "real human being."
My mcs is better, so hotels, etc. don't bother me, and although I have miles to go before I sleep, I am more engaged in life.
I will be having a one-person show of my artwork this October, and that has been even longer-- exhibiting on my own!!
At any rate, it has been baby steps, steps forward and steps back, no linear progression of health. I still have symptoms of numbness, tingling, but can eat better on a rotational diet and IV drugs.
I have been trying the transdermal Rifampin (very small doses to bulid up on per drug allergist's and llmd's orders), and I feel that it makes my mind clearer.
So, that is the update, and I always hope that things will quietly improve with time.
Di
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Congratulations Di..Keep it up..hugs lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I am so glad you are feeling better, Di! How I would love to see your work!
What were the drugs that were toxic to you in combination?
ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Hugs back, Lymemom, and to your daughter too.
Ann, the drugs that caused an immune injury were Plaquenil, Biaxin and Mepron, which were used in concert. Unfortunately, that combo caused burning throughout my whole body--brain, limbs, nose, mouth, etc. Moreover, a cascade of bad events then occured when I could not tolerate any meds orally (this is why I do IV to bypass the gut).
It was a long, hard journey of many doctors, in and out of state, and all kinds of therapy. I do have autoimmune issues along with the lyme/- infections, so that had to be addressed. I think that the drug combo pushed me into autoimmune, and this is my drug allergist's theory.
I just saw her in Boston with my husband a few months ago, and she thinks it will take yet another one to two years for my body to really settle down.
At any rate, the progress over the year has been good, and I can at least resume some of my living.
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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