posted
We all see and have experienced that the major medical institutions/hospitals in the country have bought into the "overdiagnosed, overtreated" line. Is it true that this is being dictated by the Infectious Disease Society of America? Do they have that much power? I want to understand the politics of this disease more clearly...
Who is behind the brightest experts/doctors on Lyme disease being brought up before medical boards? Who is really driving this anti-Lyme agenda? Are they payoffs by insurance companies? Has this been investigated?
can anyone point me to more research or articles about these issues?
I'm insatiably curious about all of this these days.... especially as I get all articles related to Lyme disease sent to my inbox, and in all these spread out news stories across the country, I am seeing this claim made over and over "overdiagnosed, overtreated"
WHO IS INSTIGATING THIS???? i wish the FBI could devote a group of investigators at the highest levels to unravel this political nightmare... I want these #%$^$^$ people exposed!
Anneke
Posts: 364 | From California | Registered: Sep 2005
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Anneke, it does seem to be the IDSA that is heading up the anti-Lyme charge, but there has to be more to it than that, I suspect.
I wish I had some answers for you.
I am wondering if we Lymies should file a class action lawsuite against te IDSA. I think I may have found the lawfirm to do it. It is still a half-baked idea at this point, but like you, I'm getting a bellyfull of the effects the IDSA - and their buddies the CDC and insurance companies - are having on the Lyme world.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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posted
Yale docs are the problem. They are the most trusted by medical community since they were first on the scene in the 70's--rheumatologists.
Unfortunately, it never really moved past rheumatology to be embraced by ID or Neuro's where it rightly belongs.
The yale docs also are patent holders to the failed lymerix vaccine....
They are patent holders to accurate lyme tests that they don't want used....
The same docs are on the IDSA committee writing policy...
The same docs sit on the boards of insurance companies...
All comes together neatly but we need a really great writer like Dan Brown to pull it all together into a blockbuster cause it's got all the makings of an awsome movie.
(Just info I have picked up along the way...)
I would be in for a class action suit....
-------------------- We are spiritual beings on a human journey...
posted
Yes, it is crazy making. I don't know what is at the source of the harm that is being done.
Except that there are sooooooooo many "issues" in the world going on that are begging and demanding attention, of which lyme is only one.
However, after reading the most recent article that came to my google alert box, I was so disappointed and even aghast by what was said..."The debate has led to charges that patients are diagnosing their own disease and shopping around until they find a doctor who agrees with them." Please!!
I have been through quite a lot of questioning my self, even to the point of believing these doctors telling me there is nothing wrong with me and everything is fine then the next day....throwing up, etc.
At least I have come to a point to KNOWING that this is TRUE...chronic lyme disease progresses in stages and is TRUE.
I also know after a year of antibiotics that I am doing better even as I have much further to go.
I will write to OPRAH again soon. As a person who has suffered with this in great loads of horrific waves, as many have (even though this article claims it is a small minority of families who have it and who advocate long term antibiotics)....the truth will come out.
Even as it is not all about the antibiotics, becasue there is much more to healing chronic lyme disease....it is also about the antibiotics and at a long term deal. The question becomes, how long is long enough?
We should not have to struggle so hard and be under the radar and have to pay out of pocket outrageous sums.
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
I could'nt begin to read alllll that stuff 8man12...WOW!
However this post should be over in another forum...
Please...
I understand why it's here...but it really should'nt be...
that's all.......zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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quote:Originally posted by cave76: 8man12, But, trying to be fair , until there are new and better tests........Shrug.
[/i]
I believe we already have a couple of test which are very accurate. Yale has it's 94.4% accurate test and then there's the dark field microscope. http://www.lyme-diagnosis.org.uk/
It really is all about the antibiotics imo. The gov't has a position that borrelia can not be cured with abx. I happen to agree despite the fact that abx saved my life. It's simply not an option for the masses.
I think we've already seen a shifting from post Lyme blah blah to abx resistant chronic lyme...(could be wrong on this).
In any case it appears the gov is opening up on us. Keep in mind that does not mean a change in abx therapy. That's not going to change.
Posts: 731 | From Humble,TX | Registered: Feb 2005
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bpeck
Frequent Contributor (1K+ posts)
Member # 3235
posted
Can you direct me to an explanation of this test? Thanks, Barb
Human said in part: They are patent holders to accurate lyme tests that they don't want used....
Posts: 1875 | From VT | Registered: Oct 2002
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ConnieMc
Frequent Contributor (1K+ posts)
Member # 191
posted
It also does not help that the LDF and LDA are working somewhat at odds with one another. See my post in activism about the Public Law and my recent research.
Point blank I was told by the LDF that 2 different Lyme groups introduced bills which confused both Lyme patients and the people in Washington who could help us. I was outraged by what I discovered. And I still do not have any answers from the LDF, who posts this PL on their website.
Posts: 2276 | From NC | Registered: Oct 2000
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, until there are new and better tests........Shrug. 
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