My stubborn almost 18 yr old dd has stopped taking everything because she is feeling better! Thank God she is feeling better after spending a year in severe pain and mainly in the bed!
On one hand I want her to enjoy this time of feeling better, and build up her strength for the future herx's I expect. But I don't want to wait too long! She should be taking mepron, supplements, B-12 shots etc.
My dd did test positive for Lyme by Igenex. We have not done the co-infection testing because of expense vs accuracy.
Her llmd and I think she has Babeosis and Bartonella. Her labs show borderline anemia. I think it is the monolytic anemia babs can cause.
So far the main things she has been treated for has been low B-12 and yeast. She had started birth control pills, taking them constantly to have as few periods as possible, 3 mo before the lyme diagnosis. The symptoms always were worse during her periods.
The hormones, B-12 shots, supplements and diflucan, diet changes, plus finally having a positive test result, have all helped her to feel better! Last blood test showed B-12 in normal range.
Before I took her to the llmd out of state, I made her promise to follow what he said because I knew she hates medicine, shots, swallowing pills etc. I can't refuse to take her back unless she does what the Dr prescribed! She did good for about a month, until she started feeling better! I let her get away with it through the holidays. Is now the time to draw the line?
All advice welcomed! Thanks, MommaK Posts: 242 | From Mississippi | Registered: Oct 2006
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
If she is still infected, then delaying treatment only allows the infections to get worse. I would certainly pursue additional treatment if she has ongoing infection. I would also do a CD57 test to gauge how badly the infection has impacted her immune system at this point. Though generally not a good test for children, by 18, I would think it would be useful.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
If she stopped everything, my guess is she will be feeling pretty bad very soon. So do you want her to relapse?
As her mom, you know the best way for her to learn. But stopping before treatment is complete means everything will come back, and sometimes worse.
I'm guessing the B-12 and supps might have a lot to do with her feeling better. Those levels will drop pretty quickly if she stopped taking them.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
YIPPEE for feeling better- bless her precious heart! Such great news!!!
Ya know what- I started feeling better too about a year or so ago, and decided I could wait to get back into a doc for various reasons...
but I was feeling better. Not good mind you, just better, and thought I would be OK to put this off for a bit longer.
Let me tell you one thing I have heard over and over again from those who do relapse- it is HELL to go back down again, once you have seen a glimpse of the good life.
Please consider treating untill ALL symptoms are gone for several months!
Relapsing, especially, is not an easy thing to pull back out of.
My best to you and yours, melanie
Posts: 7052 | From Colorado | Registered: Mar 2003
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