randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
When I went to my regular GP recently, I told him about these crazy irregular heartbeats. They are worse when I lay on my left side and at night.
Sometimes they happen during the day, but not much.
He told me they are "probably" mitral valve prolapse. That's also what the cardiac doc said many years ago. and he basically said they are harmless, no big deal.
But, here's my point, since getting lyme they are much worse.
When I lay down, my heart really goes crazy, it thunks, skips beats, and sometimes dang near goes up in my throat it seems. It takes a good half an hour after laying down before it calms.
My doc said any weight, even as little as 10 pounds, can cause heart problems.
So here we go again -- loose weight.
But my question is, and I thought MVP's were serious -- so are they or not???
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
MVP is usually not serious and is very common. The only time it is serious is if there is severe regurgitation. An echocardiogram is the diagnostic test for this. Also, if severe you would have a significant heart murmur. I have a "trace" of mitral and tricuspid regurg. myself. It's considered a variant of normal.
Posts: 340 | From Ohio | Registered: Oct 2005
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
In my opinion, a big fat NO is the answer to whether or not he is right.
There is a reason for the mitral valve and I found an EXCELLENT book on it that explains it and other factors that we all experience due to our illness.
Here is a link to the post from awhile back on the book. I refer to a lot of info from the book.
posted
You need to find out if the Lyme is affecting your heart. Get a reference from the LLMD to a lyme knowledgeable cardiologist.
This is important!
Kayda
Posts: 582 | From midwest | Registered: Nov 2006
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Kayda, Does our LLMD (DR M) have a cardioloist to refer us too? Because I'm having the same synptoms as Randibear. But I don't want to drive two hours. But I guess I will if I have to. I just don't have the energy or cash right now.
klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
Time for a new doctor! I agree with Jelly. Google "Mitral valve prolapse syndrome" + dysautonomia, and start reading. Also, there are excellent books on this, as she mentioned. In Lyme, the MVP appears in about 75% of us, usually during the second year of illness.
Please see a cardiologist and get an echocardiogram done soon. This is a short, painless ultrasound of the heart. You need to know if you have regurgitation with your MVP, because that requires certain ABX for any procedure involving blood, even teeth cleaning, to prevent bacterial endocarditis, which can kill. An Echo should be done every 1-3 years thereafter to monitor any changes.
Having an MVP also means you need magnesium supplementation to bowel tolerance from here on out.
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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posted
I've read that book too! MPV/Dysautonomia sounds a lot like LD. But I think I've been Dysautonomic all my life.
Every once in a awhile, a new Dr. will sit a listen to my heart for a long time and ask me if I have had an echocardiogram recently.
But often when they give me one, they are puzzled because it doesn't show up on the read out.
Now I at least know I am Dys. But why doesn't the MPV show up on the test, when they think they can hear one?
-------------------- When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27 Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
My daughter and I both have Lyme onset MVP. Hers they follow with ultrasounds and it got better with Mepron at one point and then has stayed the same, which is great. If it gets worse severe prolapse can require surgery but most MVP IS harmless!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Klutzo posted this on another thread:
quote:``40% of MVP's are missed on echocardiogram because ducks don't tell patients that they must spare fluids for 12 hrs. before the test is done. Many of us are thirsty all the time and always drinking, so it is no wonder tests come out normal.''
Good info!
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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