posted
After 6 years of antibiotics, I sort of weaned myself off, and also did an elimination diet to work on the inflammation that seems to be causing many of my problems. (I was CDC positive for Lyme, at the start of treatment, and was also diagnosed with "lupus" due to lab tests).
I also recently did fluconazole treatment for 2 months.
About 2 months after stopping antibiotics, and one week after stopping fluconazole, I started having reactions to many foods, very suddenly and unexpectedly. I mean, many, many foods.Foods that were okay the previous night, suddenly made me sick for 3-5 days, the next day.
With a few foods, I vomit, but most give me neurological symptoms. Basically, foods are causing my neuro Lyme symptoms to flare horribly.
Instantly after ingesting these foods, my arms burn, my head feels swollen, I'm dizzy, my heart races and my muscles hurt. Etc. It's remarkable.
My blood tests show high eosinophils, which means I am in an allergic state, I was told.
Today, I took Benadryl for a reaction, and reacted to the Benadryl!(dyes, I think)
I have no idea what my immune system is doing. I am losing weight. Am eating rice, chicken, veggies, green apples. Reacted to avocado and other pitted fruits this week, so they are now avoided as well as wheat, dairy, soy, citrus, corn, dairy...
Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Hi,
I was off antibiotics for about 7 months when this happend to me, but I had throat swelling, and could not eat until I went back on antibiotics.
I was even reacting to supps.
I took Minocycline, an antibiotic I had never done before, and then switched to babesia meds 3 months later, and then back to lyme antibiotics.
I am able to eat anything I want now, but I do have problems with many supps, but not throat reactions.
It took about 6 months of antibiotics, 3 months on lyme antibiotics, then 3 months on babesia meds, and I was ok.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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tailz
Unregistered
posted
I am still undergoing treatment and am actually being retested for malaria (it was equivocal), but one of my number one symptoms was allergic food reactions. In fact, my eos were elevated, too, but they just blamed this on seasonal allergies, even though my number one complaint through much of this was diarrhea.
It got so bad that I was thrown into menopause at 41 and dropped to 88 lbs, so don't ignore this symptom. Your body is telling you something by rejecting these foods.
I have had to avoid all meat, fish, dairy, eggs, soy, grains, as well as all high iron and high copper foods. Some researchers think cell phone and wireless technology cause these metals to redistribute.
The only oil I can tolerate is grapeseed oil - and only organic at that.
Keep an eye on your stools, too - if they are grey, your pancreas is not happy - if they are yellow or lighter in color, your liver is not happy.
By the way, I had developed equivocal anti-striatal muscle antibodies, so I too had gone autoimmune. I don't believe you have lupus - I believe you have infection, infection, infection. They kept wanting to plug me with some sort of death sentence, too. Don't you let them. You fight them with all you have.
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Daryl Hall mentioned this on his recent interview....he said he became allergic to things like celery made his eyes swell.
I was very bad with foods for a long time, and also lost a lot of weight. I dont know what helped me, but i still cant eat sugar or carbs, wich includes fruit.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Shosty
Unregistered
posted
Trouble is, this symptom could also be caused by antibiotics themselves, via yeast and leaky gut, and altering of gut flora.
Then again, it is possible that the fluconazole treatment suppressed my Lyme, and that Lyme is causing these reactions, now that I stopped the fluconazole. Hmmmm. Impossible to know, and these two possibilities sort of contradict each other!
BTW I had not only blood tests, but also skin biopsy, showing "lupus..." and for 5 years the sun has made me sick. I intentionally put "lupus" in quotation marks. Labels for autoimmune problems almost seem silly to me at this point, and clearly the autoimmune stuff is from the Lyme, since that is when my labs turned abnormal (ANA).
Besides LLMD I have a great integrative medicine/food allergy doctor, who, although mystified, is pursuing this whole story alongside me. He told me this week, "to know you is to know medicine..." He commented that they used to say this to syphilis patients, then AIDS, and now Lyme patients.
Meaning, I think, that these mysteries are at the heart of true medicine, and affect the whole body in ways that should inform anyone interested in the body and healing.
Your comments are interesting...would love to hear from more people, or more from all of you if you think of anything else to say.
Every time I eat, or really put anything near my mouth, I am afraid!
Being a natural optimist, I was hoping the sudden extremity of the situation might mean a major change was occurring in my immune system, one that might bring some good after all these years.
In fact, yesterday I took a walk in the sun and did not get sick, nor did my skin feel like hundreds of bees were stinging me. So, these allergic reactions might be connected to some positive changes too- or am I being a pollyanna?!
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posted
shosty: What antibiotics have you taken during these years?
Posts: 94 | From canada | Registered: Nov 2006
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Shosty
Unregistered
posted
In 6 years: tetracycline, minocycline, biaxin, zithromax (both with plaquenil or amantadine), amoxicillin, or Ceftin. For the last two years or so I was on 1,000mg tetracycline and 500mg zithromax daily.
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Shosty
Unregistered
posted
cantgiveupyet, were you still on abx when you had those problems?
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Some encouragement here:
I used to be sensitive and reactive to a list of about 20 different foods. Now I can eat everything.
I managed to heal this even before being diagnosed with and treated for lyme.
I did candida elimination and NAET for allergy elimination.
I am confident that you'll be able to get your range of foods back as you continiue to get well. The main thing is to maintain healthy intestinal flora.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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