Yes, all fluoroquinolones do cause nerve damage, sometimes not enough to be felt and many times it becomes very symptomatic.
The package insert of the fluoroquinolones says: "Peripheral neuropathy (nerve damage): "Rare cases of sensory or sensor motor axonal polyneuropathy affecting small and or large axons resulting in paresthesias, hypoaesthesias, dysesthesias, and weakness have been reported in patients taking quinolones. Therapy should be discontinued if the patient experiences symptoms of neuropathy including pain, burning, tingling, numbness and or weakness or is found to have deficits in light touch, pain, temperature, position sense, vibratory sensation, and or motor strength in order to prevent the development of an irreversible condition."
The problem is that whereas tha package insert says "rare" it is actually frequent.
All fluoroquinolones are very toxic on the nervous systems (central, peripheral, autonomic).
Posts: 94 | From canada | Registered: Nov 2006
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Smart to stop and check with Dr. I developed the sciatic pain too, and it just progressed and got worse. Started in tailbone area, wrapped around thigh, then calf, then down to my toes. Had to go to physical therapy to try and straighten it all out. (which is ironic because stretching made it worse).
Hope you feel better soon!
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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tailz
Unregistered
posted
That's what happened to me on mino - I could hear my ears draining - finally, and I thought we'd finally found the right drug. But then it stopped working.
I'm scared to death to take Levaquin or Cipro, and those were two that always helped.
The pain can be excruciating. I have no idea what to tell you except I only lasted about a week on mino - I didn't even call my doctor. Hope you feel better soon.
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
hey tutu,
did the dr run a sensitivity test on the culture to see what abx it was suseptable too?
I feel for you I had a sore throat and draining sinuses, for 8 months, kept trying different antibiotics, and then i found an ENT and he put me on claritin, and an abx(i will look and see which one that was)
I didnt fare well on levaquin, i thought i was dying on it, i handled cipro much better, but fear it now.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Craniosacral therapy can really help with sciatica, although I know this is a symptom, and you want to get to the cause.
Any chance the Xango in your nasal wash is actually feeding the bacteria? I know it's great stuff for boosting the immune system, but I wonder if it works better systemically than topically.
Sorry you are going through this. I hope you get some relief soon.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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posted
I haven't been able to breathe properly out of my nostrils since I can remember. The only drug that actually cleared it was avelox, but since I was only on it for 4 days it came back.
HOWEVER, recently I figure out a miracle treatment for my sinuses. I saw/read about the use of xylitol nasal spray, but the commercial one was way too expensive when I could just as easily make it myself.
Anyway, heres what I used: I emptied out a saline nasal mister, and rinsed it. I then filled it with distilled water(you could probably use spring instead though). Dumped in quite a bit of xylitol, about uh, maybe 2-3 teaspoons or so? Then I put in one drop of grapefruit seed extract (to act as a preservative, the same thing is in the commercial one). I'd imagine the grapefruit seed extract helps too. Note I used NO salt or sodium bicarb or anything else.
Anyway, I just use that mister a few times a day, and cover the other nostril and inhale real good. Xylitol apparently inhibits the bacterial adhesion to membranes, and acts to reduce bacteria in the nostrils. The one study I said, claimed that it may work by partially by reducing sodium in the nostrils.
Anyway, I HIGHLY recommend trying that, you may have to experiment with the concentration of xylitol to the solution since I just dumped a bunch in without measuring. It's amazing to finally be able to breathe through both nostrils!
I also discontinued my allergy medicine (claritin). ;]
-------------------- "You know, the worst, meanest, nastiest, ticks in the world are politicks," - Steve Nostrum Posts: 242 | From South NJ | Registered: Dec 2006
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posted
If I remember correctly, Dr. B said something like compared with the general public Lyme patients tend to experience more tendon issues w/ fluoroquinolones because he theorized that it may stem from inadequate magnesium levels that many Lyme patients experience. I could be wrong about that though. I'd have to watch his dvd presentation on Bartonella again.
-------------------- The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back. -Abigail van Buren (Pauline Esther Friedman) (1918-2002) Posts: 409 | From Florida | Registered: Dec 2005
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posted
Well, I'm back on Cipro and the sciatic nerve has settled down quite a bit. Whew!
Dr is ordering some kind of nasal irrigation thing that will deliver abx directly into my sinuses.
Gee, why didn't he do that a month ago?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Lymetoo,
Wow, you have been through quite a bit with that one. I've wondered about the difference between Levaquin vs cipro and had thought they were pretty similar. But glad to hear you are having better success with the cipro since it sounds miserable.
Feel better!
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Have you tried:
lying on your back bending your knees up & raising your calves parallel to the floor, arms extended to your sides
then bending the knees left while pressing down on your thigh with the left hand
& then repeating on the right and alternating slowly several times?
Also slow side-to-side lunges to try to pop the sacro-illiac into place?
That used to help me sometimes, so did chiropractic. Though your sciatica may be from a different cause than a pinched nerve.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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