posted
I have had vertigo and feel like i'm in a dream-like state 24/7. everything looks "off" to me....like i'm high on drugs or alcohol.
this has been constant for 7 months. i've been on doxy for 2 months and the vertigo has gotton better, but i always have the sensation in my head and pressure in my temples.
i have bad pain around my eyes, sinuses, ears, horrible eye floaters, and a weird circle that appears in the corner of my left eye. i've been to the neuro and had mri and eeg...which were normal.
he suggested i see an ent.....which i did once in the beginning and he didn't really do much.
for the most part i feel like i'm improving from the meds except for my head symptoms. i def have brain fog too.....which is a big improvement from the scary confusion and stuttering i had before.
has anyone else experienced this? is this all lyme related? does is go away? thank you.
-------------------- JLS Posts: 27 | From trenton, nj | Registered: Aug 2011
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posted
I had that quite a bit before getting treatment, and I don't miss it. I told my husband that I often felt like I was mentally hanging on to the edge, trying not to fall into some kind of strange abyss of not quite here. I also had the ear pressure/pain, floaters, eye pain.
Mine has pretty much resolved (except ear pressure, which comes and goes), but I was treated with more than doxy. I have been working on co-infections as well.
Good luck.
Posts: 447 | From Vermont | Registered: Jan 2011
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posted
Yes, I've had the dizziness, floaters, saw colors when I closed my eyes, really bright ones..Very sleepy, drugged feeling. Lots of pressure in my head. I'm thinking this must be a coinfection sx, as I was on lyme treatment when this came back as a sx.
I had been doing much better, all my sx were improved, some resolved. Then all this plus more nerve pain happened with no change in my tx protocol.
So, maybe someone with more experience tx'ing coinfections can tell us which one this is..I'm guessing babesia?
-------------------- One day at a time Posts: 409 | From TX | Registered: Mar 2004
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I would bet you have babesia. That is exactly the way I felt.
Are you extremely tired as well? Do you sometimes feel really hot like you just stepped into an oven? Have you lost stamina, feel breathless when you exert yourself especially trying to do anything aerobic?
Are you mentally confused, have trouble following your own train of thought, doing simple math etc? Depression, or lack of motivation?
The abx you are taking will not affect it much. You need antimalarial meds. It takes a long time to get rid of once it is established.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Yup...been there done that. I know exactly how you feel. Everything you describe I have had. The world looking surreal, as if everything was through a camera lens or fishbowl. A detached feeling, floaters, etc.
Have you treated Bartonella? For me, treating Lyme with Doxy / Flagyl and then Bartonella got rid of these symptoms.
I still have Bart, but it is not as bad and these symptoms are now gone.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Twicebitten, yours sounds like babesia too. Sleepy, drugged feeling, problems with eyes, dizziness, nerve pain.. . . I've been there.
As you get one infections under control another emerges and takes over. Then you mistakenly believe you are herxing, relapsing or the drug is simply not working any more. Just a new infection which needs a new treatment.
Bartonella makes you feel detached just like bcb described but you are also easily irritated, escalating at times into outbursts of rage. Insomnia is often a real problem with it.
Babesia is mentally different - like, "walking off a mountain top into the clouds". You have no energy mentally or physically.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
I believe these are my Bartonella symptoms. I have been treating it for 2 months and feel like this. Im so tired and out of it.
Eye problems, nerve pain, detached feeling are all listed as Bartonella symptoms. You can search on here for symptoms. there was recently a great thread on Bart.
I did 4 months of Babesia treatment and none of those symptoms got worse or better until I started Bartonella treatment.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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posted
thanks so much for all your responses. i am always hot, i keep my air at like 68 all the time and two fans while i sleep and always out of breath....even when i'm not doing anything.
i do still get confused and dazed but its gotten a little better, so has the depression and lack of energy.
bcb1200...when you mentioned looking thru a lens or fish bowl is exactly how it is. i often said to friends i feel like i'm looking thru something...or underwater.
i have not seen a llmd or been tested for co infections. i go to a homeopatic md and he has helped tremendously but i don't think he knows enough.
thanks again for being so helpful!
-------------------- JLS Posts: 27 | From trenton, nj | Registered: Aug 2011
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posted
thanks so much for all your responses. i am always hot, i keep my air at like 68 all the time and two fans while i sleep and always out of breath....even when i'm not doing anything.
i do still get confused and dazed but its gotten a little better, so has the depression and lack of energy.
bcb1200...when you mentioned looking thru a lens or fish bowl is exactly how it is. i often said to friends i feel like i'm looking thru something...or underwater.
i have not seen a llmd or been tested for co infections. i go to a homeopatic md and he has helped tremendously but i don't think he knows enough.
thanks again for being so helpful!
-------------------- JLS Posts: 27 | From trenton, nj | Registered: Aug 2011
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