posted
Just received igenex results for my daughter she is 9 yrs old and its positive. I am so upset.
IGM result says positive CDC positive
**23-35+++ **31 ind **39 ind **41++++ 58++
IGM means recent infection? last couple months?
Confused about results and what bands are saying? More+++ stronger positve?? Stared bands?
Her symptoms are not typical. She has had constant ear infections, tubes surgically placed 5 years in a row. Her mood swings seemed to flip from being angry and crying to bouncing off the walls with energy. I was told for the last 3 years she might have adhd but she never was positive after 2 evaluations. This year the evaluation said border at risk from the school psychologist. We decided 3 weeks ago to just try Concerta since her moods were getting so bad she has improved almost 90%.
So the adhd, mood swings and constant ear infections was lyme all along??? It doesn't seem to add up. She isn't tired, complain of leg pain? Maybe I'm just in denial and don't want to believe its true.
Posts: 19 | From Phila, PA USA | Registered: Nov 2001
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posted
my son had ear infections, tubes, eczema, asthma, chronic respiratory infections, rages. many hospitalizations with pneumonia. I believe it was all due to the lyme co-infections.
he is 18. I cried too. when i told him he cried. he said "I have been sick my whole life"
he is a varsity tri-athlete and very smart. can you imagine what he COULD have been if it were not for the illness?
I hate this disease but more I hate our medical system that ignores it and promotes chronic infection, not just lyme but all chronic infections.
Posts: 615 | From maryland | Registered: Oct 2007
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bettyg
Unregistered
posted
lt, i'm very sorry, BUT NOW you know what you are dealing with and CAN GET needed treatments for her!
please PRINT OFF dr. c's explanation of western blot tests, and then circle the positive, IND ones she had; then you can begin to understand what your daughter has ok!
best wishes; do you have a LLMD for her? if not, post in SEEKING DR. and we'll help you there too. only 12 kids llmds nationwide! *********************************************
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I can only speak from our experience with our own child, but moodswings are/have been a big part of how lyme has manifested in him as well.
He also has physical symptoms, but I believe that because of the early age of onset (we think that he had just turned 4 when he was initially infected, and he was diagnosed about one year later) he does not recognize many of his symptoms as such because he cannot remember what it feels like to feel healthy.
Also, for what it is worth, he did not report joint pain until he developed the high fever and em rashes (over 20) and was subsequently diagnosed.
For the year prior, he had GI issues (encopresis), was falling asleep at the lunch table in preschool, an episode of strep, and an episode of severe diarhea for 10 days.
The symptoms of lyme are so diverse and manifest in such different ways, it is very possible that there has been other stuff going on and your child has not been able to communicate it, or you thought it was something else.
(my child did not know what a headache was until I asked what was hurting then named every body part that I could think of, when I got to head he said yes. After that he was able to tell us that he has headaches).
On the plus side, now you know that there is something going on, and there is hope for it to get better. It will take a while, but it WILL get better.
plus, there are lots of other moms (and dads) here that are all very good about offering their support, and it really does help.
posted
Now that you know she has Lyme many of her issues are most likely related to this-- how long do you think she has had lyme.
Next aggressively seek and get treatment from the best LLMD you can find. Do not give up, use this board and keep researching and asking questions.
Your standard MD is going to be NO REAL HELP to you or your daughter.
Get a LLMD and fast.
PS The bands simply show that your body has produced antibodits to attempt to defeat the Lyme. Dont worry about the details- just get treatment.
ALSO GET TESTED FOR COMMON CO-INFECTIONS SUCH AS; Babesia, bartonolla etc. Appx 20-30% or more people that get Lyme get one or more of these other parasites-- that make you as sick or sicker than the Lyme.
We can all attest to the above.
Took me 10 years to figure out the above. Now starting 4 months ago im getting proper treatment.
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
posted
I had lyme all through out my childhood, teens, and 20s all undiagnosed. I learned of my Lyme diagnosis when I was about 33. I did the best I could, but it has been a challenging life to say the least. Best of luck to you..
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
While I waited for my children's Igenex results to be faxed to me,
I sat in front of the fax machine saying a litany of "Dear Lord Jesus please".
When both of their results came over....I cried.
I didn't and still don't want this for them.
Then, I dried my tears, got on the phone and had them an appointment with my LLMD asap.
It is devestating news. However, at least now you know what may be causing problems.
I had to shift focus to become one super aggressive Mom for my children.
They need me to.
Hang in there Mom.
I think deep down in my heart of hearts I knew.
I just didn't want it to be true.
Sending you prayers and positive thoughts.
I think the next best move is to get your child to a LLMD.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
Finding out your children have lyme is such a heartbreaking thing to have happen. There are lots of us lyme mom's here. I have been one for 8 years now.
I found out that both my son's YEARS LONG symptoms were in fact, lyme. Not bone cancer (from leg pain that made my 5 year old unable to walk for a period of time) and not a brain tumor that had caused my other son's headaches FOR YEARS.
I was at both times, so sad that I did cry, had tremendous heartbreak, but also relieved (not happy) that I had a name to attach to their ongoing symptoms.
I found out I had lyme at the same time I found out they both had lyme. It gave me relief for myself, that I did not have MS or ALS. As a nurse, with lots of scary medical knowledge at my mental disposal, I ran the gamut of feelings when I found out for all of us.
But, I then galvanized my reserve, and jumped into action. Taking action will give your fears a place to go. If you are paralyzed by grief, and sadness, you will sprial down into the pit. It is not a place you want to go.
And, realize, that knowing your kid(s) have lyme, will not be an easy road. Not like having any of the other childhood illnesses that are easily, or readily, treated. It is a hard row to hoe, since it usually means being proactive for them, the rest of their childhood days, and also, being on guard--watching for any new symptoms, or returning of old, as they go thru treatment, get better, and eventually, stop abx.
I am at the "stopping abx and watching" stage. It's been a few years, and yes, I have seen what I thought were returning of symptoms. That part is also very heartwrenching, as I have to decide (as the mother) whether to watch and wait, or go back into treatment.
It's not easy, but we're here for you, and we have all been there.
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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