posted
My daughter has an IEP from before we knew she had Lyme ... hers was based on learning disabilities. The IEP is a HUGE help! It's worth all the trouble you are going through now.
Her learning disabilities are a lot better since Lyme treatment, though it is good that she doesn't have to be timed on the standardized tests.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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bettyg
Unregistered
posted
nancy, sending my thoughts and prayers to you, your family, and your beloved one getting this!
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
I know my son was not looking forward to being classified a "special needs," and he tried really hard to pass all the assessment tests he was given.
But when he finally got some services with someone who was willing to meet him on his level, it really helped! And I think took a lot of stress off of him, both the stress of not having to struggle as much and the stress of not being believed.
I hope that helps for your student, as well.
-- Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Six & shaz,
Would you mind sharing what kind of accommodations were provided and how the goals were measured?
My student is in 7th grade receiving homebound education.
Due to a high level of pain and fatigue, my teen would benefit from
books on tape, videotaped classes (or online classes), and a book holder.
The accommodations the school already provides through the Section 504 plan are ...
homebound instruction, a reduction in the amount of work, extended time for taking tests and completing assignments, instruction at the time of day best suited to her (afternoons), multiple choice tests to reduce handwriting, and voice recognition software ---student dictates into a computer via microphone, the computer transcribes voice into a text document. Software: Dragon Naturally Speaking 9, and they allow student to type assignments.
They'll have to provide services to work on processing speed, auditory memory and attention. These problems affect fluency scores in math, reading and expressive language.
The committee did not address any deficiencies in the IQ or achievement tests...they were completely glossed over. The neuropsych report was not included in the assessment. The current findings in IQ and achievement tests support the results of the neuropsych test.
No one present was qualified to interpret these scores, therefore no interpretation was given. I was told these would be discussed at the IEP meeting.
I'm happy for you, this is a step in the right direction.
I know it goes in the "this sucks (because we're in a situation where it's needed) but good (because it will help your child get the support that she needs so that she can coninue to learn and grow despite this nasy illness) category.
kinda like a herx, it sucks, but its good.
take care, will email you tonight, haven't had much pc time since I heard from you last.
take care. kp
Posts: 394 | From tinton falls nj | Registered: Jul 2007
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posted
Yeah, I'll pull out her IEP and PM you the specifics. It was written out after a school year's worth of making various accommodations for her to see what works.
She's up for review this month.
If you'd rather talk about it, I can PM you my phone number.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Alv
Unregistered
posted
sixgoofykid...My son has his meeting also at the end of this month... please be in touch with me also
by the way ...would our kids with neurolyme and co-infection...be able to function ..after years of treatments .He sees DR J in Ct.
I am talking about late stage...
I am afraid as this has impacted them for the rest of their life...
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I don't know how much help it will be as my daughter was not that sick from Lyme and we didn't know she had it when we got her IEP. But it might be worth you looking over it to get ideas.
My daughter's learning disabilities diminished greatly with Lyme treatment. Apparently, judging by the fact that her main symptoms were headaches and learning problems, she must have had a lot of bacteria in her head.
She's currently off treatment and doing well. She got straight A's last trimester!!!!
I should add, she was treated for lead toxicity. If you haven't had your child tested for heavy metals, have them tested. I think this was at least as significant as the Lyme.
I had severe cognitive issues that got completely better with treatment. There is hope, don't despair.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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I agree with lymemommy...... it sucks but it will help.
my son was diagnost with ADD after highschool.. once he found out that he had some learning challenges....he felt so much better.....there was a reason why he struggled so much..... ......he has over come so much...and is graduating at the end of the month from college.
this will help your child in the long run....
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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"What lies behind us and what lies before us are tiny matters compared to what lies within us." ~ Ralph Waldo Emerson Posts: 138 | From West Virginia | Registered: Sep 2007
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posted
I agree too with Geneal....sometimes we get stuck on words that don't make us feel good Special Education....
we referred to my sons ADD as having learning challenges...rather then learning disabilities.....disabilities sound like you can't change it.
I agree too with getting the most for your daughter and her education....and learning development....it is setting her up for a better future in whatever career she wants to do....or anything she wants to do...its to her benefit...
yes.....great mom!! mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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posted
FYI- I know there are different rules in different states, but Iowa has a policy ( I think it is federal) called a 504 plan. This isn't usually put out on the information table because schools don't get $ for it like they do with IEPs.
In a nut shell, it requires schools to make accommodations for students that have a medical disability that affects their learning abilities, not necessarily a learning disability. Lyme would most certainly qualify. It has the same benefits as an IEP.
It is worth looking into and pushing for if it fits you situation. Some students don't qualify for IEPs because of testing shortfalls. This would be another avenue. If a IEP label bothers the student or family- this is another way to help your child succeed.
Let me know if I can help with this. I'm sure you can Google 504 plans as well.
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