kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I have had twitching off and on since coming down with this in 2001.
But, it usually is for a short period of time and then stops.
it also is in different part of the body.
But, today it has been over the left eye...the eyebrow I guess.
If I put pressure on the eybrow it stops.
I take my fingers off and it starts back up.
I doubt there is anything that can be done about this but to wait it out.
Just thought I would post just in case.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi kam,
It is a very frequent symptom for lyme sufferers.
Perhaps some magnesium may help, but it may just take alot of time and get better with antibiotic treatment.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
kam:
I have the same issues... depending on the day. Some days my hands twitch or my forearms.
Sometimes my scalp twitches.... Do you consider them like muscle spasms???
Most of the twitching I have feels like muscle spasms.
It's wierd though, I have had it on my eybrow and the muscles by my jawbone.
It's a good point glad you posted.
Some days it drives me insane!
Best Wishes!!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
My husband was recently diagnosed with Lyme. We have not run any tests for co-infections, but it seems like he my have babs or bart.
His upper lip twitches 24/7. It always has. I think he has had lyme since he was a child and never treated because they didn't know much about lyme. (Even though he is from Mass.)
Now that he has been treating for two months, it is actually worse. It hurts him. I wish there was something that could help him.
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Need Lots of Help:
Definately get him tested for coinfections!
I know a lot of my problems come from the Bartonella, Babesia, and Mycoplasma.
Also add the Lyme in there and it really messes you up!
If he has had it since he was a child it must be pretty bad.
Since he is feeling worse on treatment that may be a good thing. He could be herxing.
Remember you feel worse before you feel better!
Best wishes to you and your husband!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Wow. 24/7 Sure hope it gets some relief from that twitching soon.
kreynolds is right.you do feel worse before feeling better once you start treatment.
but i found i could not do doxy
just woke up the eyebrow is no longer twithcing this am sur ehope it stays that way.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
sutherngrl, what treatment made them better? I have what you had but no treatment makes it better......
Posts: 347 | From sweden | Registered: Feb 2008
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posted
Normally the lip twitching doesn't hurt, but now, he is doing it all day long. I think it is more the muscle hurts from doing a repetitive motion all day long.
Even though he did it before, he didn't twitch so much. He would twitch more when he was thinking about something, or stressed.
He said his dad used to ask him, DO you have to do that, can you not just sit still??? But, he couldn't.
Now, it seems like he is nervous all the time, twitch,twitch, Twitch....all day long. I pray it gets better for him. His hands are swelling up too!!
This is his 2 month on meds. The first month was only doxy, the next was doxy and biaxin. Are those good babs - bart treatments as well??
Thanks, Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Need Lots of Help:
Doxy and Biaxin are good meds for the coinfections...
You may want to ask your husbands doc about Mepron and Levaquin.
I am currently takin IV Doxy,Mepron(Babs),Levaquin(Bart),Zithro(Babs) and Tindamax (Cyst Buster).
Mepron and Zithro work real well for the Babs.
Levaquin is a great med for Bart.
Sometimes you have to find a combination that works well and will kill both the Lyme and Co's without interaction.
Best Wishes!!!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
I'm getting the twitches (have been for a while) and recently the involuntary movements of arms and legs. Not huge, but disturbing. The movements have started since taking tinidazole, the twitches got worse on starting rifampin.
-------------------- Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??
ABX Doxy 400mg + Amox 1g Jun - Sep 08 Rifampin 600mg + Biaxin 1000mg Tinidazole 1000mg/day - Sep 08 to June 08
Currently taking Salt/C 15g (himalayan salt)
85-90% better Posts: 231 | From Australia | Registered: May 2008
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posted
I too have the twitching curse. Super annoying!!! The twitch can be anywhere on my body & can come & go or plague me for days.
Actually, when it first started bad it was my eyelid & I think it twitched for a couple of months straight.
Before finding out I have lyme, I was diagnosed with lupus, which didn't explain the twitching & the doc never could tell me why I was having that. At least now I realize it goes with lyme.
When I started treatment about 3 weeks ago, it really acted up for a couple of days.
Posts: 18 | From United States | Registered: Mar 2009
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