Around last september i had a pain just under my left rib cage, this became worse and by xmas I was beside myself and the pain included the whole abdomen. Started with naturapath and achieved a managable level of pain.
Had all the usual tests, nothing. A few weeks ago caught a virus which everyone else had but it has made my body go crazy.
Now I hurt everywhere almost like arthritas but does not necessarily seem to be in joints, abdominal pain unbearable again with constant backache. I can't seem to keep my lower body warm enough and hips, legs hurt to just lie on them. Also have been having fevers sometimes just lasting five or ten minutes. Living on tylenol three.
Am now on doxy 200 mg day from my cfs doctor. Have just sent off blood for co-infection testing to igenex.
Does this sound familiar to anyone or sound significant to some co-infection.
Still waiting for referral to llmd.
Thanks maps
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
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posted
Sorry for spelling and grammer not to with it right now.
maps
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
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posted
I am really sorry you are in so much pain. I can relate to not being able to lay on a hip, shoulder, etc. because the weight of your own body hurts. Even on a pillowtop matress.
Wish I had more to offer, but for now it's just empathy.
Posts: 374 | From United States | Registered: Nov 2008
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bettyg
Unregistered
posted
maps, i feel your pain. i have full body pain in all 18 of 18 pressure point areas.
if you tell me which is the CLOSEST USA STATE TO TORONTO, i'll help you. *********************************
post in SEEKING DR. forum so anyone else up your way may also know of others we do NOT know of ok.
you've got the best oldies radio station, 740 AM; i discovered this years ago late at night; i listen to it while i'm sleeping or attempting to.
then when i come on here at night, i now listen to it online! if you ever get the chance, call the station and tell them how much this IOWAN enjoys their music please.
it really bothers me about your pain in the side though. i have NO MEDICAL EXPERIENCE AND HOPE RNS will sound off giving suggestions to have checked out.
posted
My daughter is in excruciating pain all the time.
We have tried so many things and the only thing that keeps her sane is medical marijuana, inhaled thru a vaporizer so she doesn't get any smoke in her lungs.
I don't know the status of the legality in Canada but it has been a lifesaver for her.
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Epsom salt bath soaks as hot as comfortable helps
my pain. But leaves me very weak. As soon as you
can you will need to replace vitamin D slowly and
this will help with the pain. Did you send samples
while off antibiotics for 2 weeks or still on it?
If you were still on It would help us all to see
what the results are. Either way it will help us
all to see how they came out. Referring to the
seroconvert thing.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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