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»	LymeNet Flash » Questions and Discussion » Medical Questions » what is the longest time on abx?

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Topic: what is the longest time on abx?

randibear
Honored Contributor (10K+ posts)
Member # 11290

posted

i think somebody said recently they had been on abx for 6 years....unbelivable...

so what's the longest you can be on them? 5-10-15 years....

i really don't want to treat this the rest of my life...

[ 06-10-2009, 10:19 AM: Message edited by: randibear ]

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do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007 | IP: Logged |

Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

posted

Well I've been on them for almost five years. I never, ever, ever would have foreseen this. It is shocking and disturbing.

And I am bedridden, for the better part of the last two years.

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NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005 | IP: Logged |

randibear
Honored Contributor (10K+ posts)
Member # 11290

posted

my heavens....have you tried alternative like buhner, schardt, etc.?

i'm so sorry but at that point i'd be going crazy....

it sounds like you have abx resistant lyme. i read somewhere that lyme can do this?

there's go to be a better treatment for you.

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do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007 | IP: Logged |

ping
Frequent Contributor (1K+ posts)
Member # 6974

posted

My old LLMD's nurse told me almost 5 years ago that the LLMD had patients that had been on tx for 15 years, at that time. [Frown]

ping
"We are more than containers for Lyme"

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ping
"We are more than containers for Lyme"

Posts: 1302 | From Back in TX again | Registered: Mar 2005 | IP: Logged |

Leelee
Frequent Contributor (1K+ posts)
Member # 19112

posted

How long is one usually on oral abx before going on IV abx?

Or are the two unrelated?

I have only just begun my treatment in April with oral abx, but I wonder what to expect for my future.

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The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr

Posts: 1573 | From Maryland | Registered: Feb 2009 | IP: Logged |

seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

posted

For 15 years? Forget it. [Frown]

That's unless I am in full remission and stay that way.

Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008 | IP: Logged |

kam
Honored Contributor (10K+ posts)
Member # 3410

posted

I started in 2003...so 6 years ???

But, it was not until supplements and the Cowden Protocol were added that I really start to see a difference and Xango.

I still have a long way to go. Lack of funds is what I feel is keeping me from getting well sooner.

Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002 | IP: Logged |

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