Topic: writing Blumenthal for INDEPENDENT site to listen 7-30-09 IDSA PANEL CONFERENCE!!
bettyg
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my PC IS DOWN 1.5 DAYS; unknown time...doing diagnostic testing on tower!! betty ****************************
IMPORTANT .... READ ENTIRE POST !!!! ********************************
Sent: Thursday, July 23, 2009 11:43 AM Subject: IDSA Video of Hearing
Mac McDonald from www.lymeblog.com has brought up some points that we must consider:
Please contact Richard Blumenthal's office to request a separate, IDSA-independent video feed for the July IDSA hearing and here's why, as it is probably not part of the "agreement" reached between his office and the IDSA panel.
As it stands, people wishing to watch the upcoming hearing broadcast on the IDSA web site, must REGISTER on the IDSA site before they can listen to the broadcast.
And in order to watch their video, the IDSA site also requires us to download an application that is to be installed on our computers.
There is no privacy policy posted on the IDSA web site, and hence no assurance that the IDSA won't collect and "own" our personal information that it can use for its own purposes, especially under the federal post 9/11 Patriot Act legislation....and that the IDSA won't try to "own" the rights to the hearing it is broadcasting.
And there is no guarantee that the IDSA won't track and pursue Lyme patients and their physicians with this database, a very powerful database indeed.
The installment of "an application" of any sort, easily allows the embedding on our computers, of "spy" software which can record every keystroke we type, all the sites we visit (cookies) and whatever else is intended to be recorded or tracked.
In addition, you should be advised that anyone with your IP address and your name once registered can be used to find out where you live and much more information about you--by anyone.
All it takes is an IP address to find out where you live.
The collection of data in a powerful database such as that which will collect personal information about us as lyme patients, will allow the IDSA to keep track of all lyme patients and doctors registering, and collect whatever information they wish. And any time an application is downloaded, you don't know what is being placed on your computer, or what is being tracked, from cookies to keystrokes to email conversations!
Spy software does exist, it is as easily installed by opening a file, and there is no assurance that this is not being done-- nor is there a posted privacy policy that can be legally enforced!
By the way, Lyme advocacy groups that require registration on their sites to view the hearing may also be collecting personal information as well, although they don't require the downloading of an application---
so remember to check privacy policies on those sites before registering.
Personal information is being collected on any sites which require registration.
Don't think that it is not being collected!
Mailing and phone lists are a common thing in this day and age of electronics.
And in a paradigm where it is the "us against them" mindset, we must be diligent and demand a freedom of choice so that our privacy and rights are protected and ensured.
I think we should be asking Mr. Blumenthal's office for an independent site which will post the upcoming IDSA hearing FREE WITHOUT REGISTRATION and/or with a privacy policy which ensures that people's information, if they must register, will not be used anywhere else or sold or shared.
PJ Langhoff,
BETTY'S NOTE: author of THE BAKER'S DOZEN, junk science, all about IDSA refutting their comments and of IT'S ALL IN YOUR HEAD. 3 BOOKS plus other lyme books!!!
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bettyg
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did you email blumenthal ? very important!!
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