posted
Our LLMD, Dr. H in CA just started my daughter on IV Lipid Garlic Protocol. We are using sterile allicin with phosphatidyl Choline in bags of D5W. We may add DMSO later.
Has anyone tried this protocol? Any problems or successes?
She had a seizure after the first IV, but that is common for her.
Thanks for any info you can share.
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I am extremely impressed with what I've read about garlic IVs. and I (personally) would do this before I would do other pharmaceuticals (because I have such a hard time with Rx an my liver just can't handle them at all).
I considered it but funds just did not come through as I had hoped.
To its credit, IV garlic has a strong history in China (before the pharmaceutical industry took hold) and it can be helpful in many ways, covering a broad range and safety far above most Rx.
I have not received IV garlic but have done an oral allicin protocol for a couple months at a time, as money would allow. I did very well on that. And, for the time I was on it, seizures and hyperacusis were reduced. However, it did increase tinnitus.
As garlic is a stimulating substance, too much at first might have been a bit of a trigger, you might ask her LLMD about adding oral andrographis (before the next treatment) &/or oral schisandra (schizandra) as both of those calm down the seizure activity for me (as allicin can) but they calm down my body better than allicin alone can do. Both are helpful for the liver.
Andrographis is described in Buhner's book, "Healing Lyme".
Schiizanda in a link that I'll come back and post. But right now, I have leaf blowers coming close to one side of the bldg and carpenters setting up for rebuilding a stairway on the otehr side of my apt. I don't have much time to finish my thoughts before I have to run for cover - but I'll be back.
In the meantime, you can search both at PubMed, Google -- and the website for "The One Earth Herbal Sourcebook" for schisandra.
You can probably find historical reference for IV garlic at www.itmonline.org -
Taurine and Glycine can also help calm seizure triggers. If seizures are triggered by sensory startles, Gotu Kola can help, as well ( it is not a cola).
I tried DMSO (not IV) and did not do well at all. It's much more "chemical" than my body could handle. It was very caustic to my skin. I'm not sure how diluted it was so it may not compare to the formula you are considering. If considering for pain (as is the most common use), I would avoid it as dealing with the infections will help.
Oral Corydalis worked far better for pain control for me. That is an herb that you can research in the "One Earth . . ." and PubMed - and itmonline sites. It is in HerbSom through www.hepapro.com -
posted
Thanks Keebler. I gave her her second IV yesterday and she had another seizure this a.m. She is already on glycine, but I will try adding andrographis.
The IV DMSO is to help the garlic penetrate better. My doctor only knows of one source in Oregon and they will not ship out of state, so that is on hold for now.
Any other thoughts or experiences anyone?
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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Keebler
Honored Contributor (25K+ posts)
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posted
- The seizure could be from excess porphyrins, which can be a result of the liver being overwhelmed. If porphryia is a factor, IV garlic can exasperate that. However, with certain precautions, it can still work out. I still think IV garlic can be safer for the liver than other meds.
More about specifics about porphyrins/porphyria, and how that can affect some lyme patients, in this thread:
Does she eat before the IVs so that her blood sugar is stable? The garlic might cause a drop in blood sugar and, for me, that is a seizure trigger.
Also, back to the porphryin thing, it can be complex but the blood sugar should not be allowed to go too low. Excess porphyrins can trigger seizures.
Key to management of porphyrins is Beta carotene (carrot juice) or a greens powder drink or eating leafy greens can help. Even eating carrots is good but the juice can work faster to prevent an attack. Goji Berries are a good source, too.
A greens powder like "Green Vibrance" is great as a beta carotene source. It's my favorite of all the greens powders.
To keep blood sugar from dropping, Quinoa Flakes can help if she does not feel like eating - or some oatmeal. Be sure she has good complex carbs to hold her over.
Good fats, too. Fish oil, etc.
You might ask if you can add IV magnesium to the garlic - and some B-12, too? Magnesium can burn as a shot, and I've had IV magnesium that hurt. B-12 can help offset that - and your LMD may know more.
Magnesium really helps calm down the brain excitability.
I hope this gets better. Go very slowly if adding andrographis and first check with your LLMD. That can make one very sleepy but it helps to keep my seizures down. It can cause some stomach upset so it's best with food.
You might also get ARNICA 200c homeopathic and give her this if she has another seizure. It can help the brain and adrenals deal with the shock of it. I heal from a seizure better if I take this as soon as possible. It is a homeopathic, under the tongue.
Additional adrenal support would be necessary, though. Ashwagandha, Siberian Ginseng (not regular ginseng) are the top two and always work well for me.
It will not interfere with any meds. But mint, chocolate or coffee will negate it.
Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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WildCondor
Unregistered
posted
Iv Echinacea works good, so this is very cool!
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Keebler
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posted
Keebler - thanks so much for all the good info. Unfortunately, my daughter is so nauseous that she doesn't really eat. So I'm sure her blood sugar is out of whack. I feed her at night through a feeding tube in her stomach. It is good, organic food that I make with meat, vegies, oils, etc.
Interestingly, both times she has had the seizure the morning following the IV, which was once in the evening and once in the afternoon. So, she slept all night, with her feed line going and then had the seizure.
I am going to lower the dosage on the garlic next time - it is a twice a week protocol, and work up to the full dosage. I told her LLMD about the first seizure and he told me to give her the IV earlier in the day. I'll try 1/2 dose next time and call him if she has another seizure.
I will also check out the links you sent me. Thanks again.
I don't know if the allicin is stabilized.
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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seekhelp
Frequent Contributor (5K+ posts)
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posted
Shouldn't it be done in a hospital if she gets seizures from it?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Seek,
For those of us who have seizures with lyme, the quietest location is the best.
Actually, I think it would be much worse in a hospital. The atmosphere in a hospital is terrible for seizure patients, absolutely terrible.
If I were dying, I would not even consider going to a hospital because of this. Especially with lyme, the sensory overload can be very toxic and that contributes to a cascade of other reactions from seizures to heart trouble.
My guess is that many who die in hospitals would have survived had it been a more peaceful environment. The assembly line atmosphere, the cattle-call is not good for healing.
They also fail to recognize all the reasons for seizures as well as the inability of some patients to tolerate meds.
Even in a non-lyme population, seizure meds only work for 1/3 of seizure patients. Often, the normal seizure meds make seizures worse - because the underlying reasons are not considered. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Hubby used IV DMSO with his IV Rocephin back in 2004. I am pretty sure we ordered it with a scrip from a mail-order pharmacy named Apothecure (make sure it is pharmaceutical grade). I started with maybe 1/2 cc and worked up to 2 cc I think.
The IV DMSO made hubby smell like sweet corn for several hours.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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GiGi
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posted
Posts: 9834 | From Washington State | Registered: Oct 2000
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GiGi
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Member # 259
posted
Anytime when using garlic (sulfhydryl group = potent chelators), also consider invovement of mobilization of heavy metals. Often involved in seizures are toxic metals. If you google "Klinghardt garlic seizures heavy metals" I am certain you will find many references. Special care has to be taken in this regard when using garlic to avoid redistribution.
Am not a doctor, but I have lived through this myself under the care of Dr. K.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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emla999/Lyme
Frequent Contributor (1K+ posts)
Member # 12606
posted
Does anyone here know the names of any medical doctors or health practitioners that offer the Garlic Oil IV's??????
The health practitioner or medical doctor can be located any where in the country.
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I started my freeze dried garlic capsules the other day.
I currently take 2/day.
I guess I'm trying to work my way up to 3 pills 3X's/day
Or I think that's what keebler said : )
I love the idea of using garlic to treat. Especially co-infections
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Does garlic get at intracellular infection? I am unsure what bugs it would be able to get at. I know its powers etc, which are great....but what bugs are being targeted?
What is the DMSO for?
Posts: 3528 | From US | Registered: Apr 2007
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