Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
I thought the fact I never am sleepy was due to adrenal exhaustion but was recently tested and cortisol 4 times a day is just fine.
So I'm wondering why I'm never sleepy. I've been on ambien for almost a year and don't like that fact.
Ive been suspicious of bartonella because of anxiety and headache but think it would have been knocked out when on zith for lyme.
Anyone else experiencing this even after treatment?
Makes me feel so abnormal when with people and they yawn or say they're sleepy. I want so much to feel that!!!
Posts: 1297 | From USA | Registered: Dec 2002
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
This story is like telling a homeless guy you don't know what to do with all your food. I'm the one yawning all day long. I understand we all have our own issues though. I wish you luck solving it.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
I can empathize seekhelp, because that used to be my problem and I wouldn't want it back.
The problem is I'm totally exhausted all the time. It's pretty cold here (1 degree F) Maybe if I'd go stand outside for a while before bed it would make me drift off.
I just miss the feeling of winding down at the end of the day, feeling snuggly in bed and dropping off into delicious oblivion.
My headache wakes me up even on ambien.
Posts: 1297 | From USA | Registered: Dec 2002
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Rumigirl
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Member # 15091
posted
Well, no wonder you don't get sleepy, Marz! I don't know if the headache is all of it, but it sounds like you need to take care of the headaches first of all. (Too late to go into it now).
Posts: 3778 | From around | Registered: Mar 2008
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quote: Ive been suspicious of bartonella because of anxiety and headache but think it would have been knocked out when on zith for lyme.
Zith alone might not be enough to get rid of Barts. Since I have Barts, I don't sleep longer than 4-6 hours and feel more agitated than tired which wasn't so in the 20 years with lyme before Barts.
Just a thought.
Posts: 269 | From Germany | Registered: Jul 2009
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
It's interesting Kadee that we sort of are on the same timetable for these symptoms.
AND I got lyme in 1992 in Germany! If thats where you got yours, maybe it's the same strain of bart (if that's what I have.}
Posts: 1297 | From USA | Registered: Dec 2002
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
It really does sound like bart which is really hard to get rid of so zithro probably did not take care of it. Other symptoms are painful shins or soles of feet, hot flashes, muscle twitches, swollen lymph nodes (anywhere on body) feeling of needing to urninate frequently, bad headaches, insomnia and the mental emotional problems such as depression, anxiety and anger = the surreal feeling of not being connected and memory and cognitive failure. It sucks but not sleeping is one of the worse symptoms by far. You might check your skin for indications of bart - tiny blood blisters on torso and neck, spider veins, lumps under skin that you are unaware of until you press them and then they hurt, stretch marks, swelling that does not dent, skin tags, . . . there are many more.
I hope you can find relief. Corydalis root is very helpful for sleep if you can get off the ambien. All those drugs lose their effectiveness after awhile.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Marz, I actually got infected 1987 with lyme at the Californian coast
But many more times after that also in Germany, since I was around horses.
And last year the final tickbite with Bartonella. Never thought, I could feel so much worse than I did before. I would say, Barts is much worse than Lyme.
Posts: 269 | From Germany | Registered: Jul 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I am exhausted, but never feel sleepy. I crave to feel sleepy.
I use Ambien and Xanax to sleep, but once I'm awake thats it. No matter how tired I am, sleepy is never a part of it.
Don't know if its bart or lyme. My knees, shins and heels hurt. The anxiety is not as bad as it use to be though. Fatigue is a little better too.
My doc always calls it lyme. He says lyme is harder to get rid of.
I don't know how anybody really knows! I'm thinking maybe bart. I wonder if Doxy helps bart. This is what med has helped me the most.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
So good to know there are others out there craving sleepiness!
Not that I like for us to suffer, but at least when I put my head on the pillow at night and wait for the ambien to kick in, I'll know I'm not the only one.
Posts: 1297 | From USA | Registered: Dec 2002
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
I have a difficult time sleeping. I do notice that some medicines make it worse. Also, certain meds cause your sleep meds to not be effective, for example - Rifampin.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
I possibly have lymes, diagnosis changed from MS to myleopathy since spinal taps and MRI's are normal. Have an sppt. with a lyme specialist in March. I never sleep. I am on baclofen, neurtin, and dantrolene, for muscle stiffness.All meds have a side effect of drowsiness and I have not slept more than 2 hours at night.Have taken ambien and xanax together with no effect. I am desperate to sleep.
Posts: 1 | From Northern California | Registered: Jan 2010
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I understand we all have our own issues though. I wish you luck solving it.
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