Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Hi everyone.
Doing the KPU urine testing through Vitamin Diagnostics, but I was given Dr. K's special instructions on how to do the test, where you collect for 24 hours instead of just one time.
And I will be shipping it "overnight" tomorrow.
But on the directions, it doesn't say if I should refrigerate the urine during the 24 hour period before shipping it or not.
Anyone know?
I asked my LLMD and am waiting to hear back, but I thought I'd see what you guys know in case I don't hear back by tomorrow, which is when I want to test.
I also know to cover the containers with aluminum foil, and to add ascorbic acid to the large container to preserve it.
Any other tips? But I'm mostly wondering if you refrigerated yours (because other urine tests I've done needed to be refrigerated).
Thanks!
Posts: 4590 | From Midwest | Registered: Jun 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- refrigerate urine?
Yes. I did for my previous porphyria tests. You might be sure to read over your instructions. Some labs send a tiny blue ice pack that is to be shipped with the sample. Call the lab if you have any questions.
Glad to see you know about the foil - light can destroy the sample. I'd even collect the sample without the bathroom light being on.
Also, this test is just for one kind of porphyria. Blood AND stool collections are required to test for most of the other kinds.
Testing KPU is a good place to begin - it's just important to know that urine cannot be used to test for all types.
The Fed Ex shipping instructions must be followed to the letter. Embarrassingly, Fed Ex returned a urine sample to me due to my having left out a piece of absorbing packing material when I did a urine challenge heavy metal test for Doctors Data Lab.
The Fed Ex envelope is clear for that reason - when bodily fluids are shipped, they need to see that they have the proper absorption materials in case of breakage. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Thanks Keebler.
There is no ice pack included in this kit. So I wonder if maybe it's not necessary?
Did you use Vitamin Diagnostics for the one you refrigerated?
I don't want to refrigerate it if it isn't supposed to be. Hmmm.
I will try calling the lab. Didn't think of that.
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- My porphyria test collections where shipped through my local University hospital to Mayo (about '96). I had to refrigerate the liquids and freeze the solids. They shipped along with my blood samples, with dry ice.
For the Heavy Metals test - urine samples were sent to Doctors Data in Michigan in recent years. That did NOT have a little blue ice, I was just saying that some do. With the packet of stuff added, that likely removes the need for it to stay could during shipping.
It's not summertime, so that helps, too (depending on where you live, of course).
Yeah, just call the lab to be sure. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Okay, I called the lab.
They said to refrigerate it while collecting it, but that when I send it, it does not need to be sent with an ice pack.
Hmmm....does that seem strange to anyone? If I need to refrigerate it while collecting, it seems odd to then send it without an ice pack.
Is there anyone here who has done this test? I am hoping to hear how you did it.
Though I guess the fact that it is cold here will help. So I'm taking comfort in that.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
For the entire collection period I kept the container in the fridge and then my LLMDs office told me once I had the sample in the specimen jar (or whatever it was) that you are going to send to freeze it for a few hours..
Then we shipped it with no ice pack or anything...
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Hmmm.
I am a little nervous to freeze it without my doctor or the lab telling me to though. Hmmm.
Do you think that since it's cold here, that it will be okay without that freezing step?
Did you use Dr. K's special instructions, that said to add the ascorbic acid to the big collection container?
Thank you!
Posts: 4590 | From Midwest | Registered: Jun 2008
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
You should also freeze it for a short while as well.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Scott,
I'm assuming that is per Dr. K?
I'm just surprised it wasn't on the added instructions from Dr. K, so wondering which doctor is wanting that.
Thanks.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
My LLMDs office told me to freeze it as an aside, that it wasn't specified on any instructions but they had talked to the lab or heard from Dr K or something (not sure where the info came from) and the lab was finding more accurate results if the specimen was frozen for a bit...first I heard 30 minutes, then a few weeks later I was told several hours in the freezer if I had time before shipping it..
I think I froze it for about 2-3 hrs, then got worried and put it back in the fridge!
Yes- I followed the instructions with the asorbic acid and the tin foil etc!
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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Hoosiers51
Frequent Contributor (1K+ posts)
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posted
Thanks Larkspur!
Posts: 4590 | From Midwest | Registered: Jun 2008
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SForsgren
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posted
It is from Dr. K.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
The protocol on the pages 47 etc is very individualized for patients. Not the same for everyone. Energetic testing is needed to get the best out of this protocol. I certainly would be totally lost if I could not test my husband (he is on KPU) and knowing what I know now, I would never attempt KPU without first doing AI.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
There have been some minor adjustments to the protocol along the way. You can find updated material via google. I can't post the link here unfortunately, but there are some changes since that presentation over a year ago.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Thanks Scott.
I read through the information on your website, and the powerpoint.
I read about the HPU test giving higher yield of positives.
I looked at the lab form, and the Kryptopyrrol was checked off, but HPU was not. I am half tempted to just check it myself.
I'm a little surprised my LLMD isn't testing for HPU too....he is usually pretty thorough. I wonder if there's some reason he's only testing the one.
Do you think I should call and ask if I could test the HPU as well? I am on the fence.
Thanks again to all.
Posts: 4590 | From Midwest | Registered: Jun 2008
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SForsgren
Frequent Contributor (1K+ posts)
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posted
Possibly they don't know about it. It used to be done for the same cost. Not sure now. In any event, I'd do both at the same time.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
I just read the power point (thanks for the link) I have read most of the contents previously, but it sounds like this protocol can really hit you 2-6 weeks in
I am about a week and 1/2 in - Yikes - hope I continue to be ok.
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Thanks for the responses.
I heard back from my LLMD's office. The nurse told me to not worry about refrigerating it, but since the lab told me to refrigerate it, I am going to anyways. Awkward situation.
Then, since I had the nurse from my LLMD's office on the phone, I asked if they knew if the doctor normally tests for HPU as well as the Kryptopyrrols, and they said he normally just tests the latter. That answer was pretty definitively worded too (not in a rude way). So at that point it just felt awkward to say, "can we test it?" I asked the question two different ways, and both times they said "just KPU."
Hmmmph. So I dunno what to do at this point. I'm not sending off everything until tomorrow, so I'm gonna sleep on it.
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