Doc said watch out for week 3. What's gonna happen?
I always expect the other shoe to drop BUT I'm enjoying some freedom so I wanted to give people something uplifting to read!
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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onbam
Unregistered
posted
I know, right!? Got rid of 90% of my brain fog, and my cognition's still improving.
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Not to change the subject, but onbam, I clicked on your link and my jaw hit the floor. Still trying to pick it up...
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
I'll also add Zith after week 2. I'm feeling type A again--I can even multi-task. Still sore a bit and feet always kill BUT still!
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
That's a very small dose too. Wait until you bump it. Your best friend becomes your worst enemy. Glad to hear you're seeing gains on it.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
yeah I double the mepron to 1 tsp 2x day after 3 weeks. Can't wait for the alienation to begin! Maybe I should say my goodbyes while people still like me!
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
Actually, you MAY want to warn people around you that babesia treatment (or Mepron, or Biaxin, or whatever) may cause severe depression and personality changes. It'll really sneak up on you and I lost a few friends that way even though I'd sorta warned them to watch out for the crazy to happen.
-------------------- Symptom Free!!! Thank you all!!!!
posted
That is a tiny dose, only 1/4 of the normal dose, why are you being under-treated like that? I hope you are on Zithromax and artemesia with it plus FLorastor.
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Welcome to the world of drinking yellow paint! : - )
It is a tiny dose.
Posts: 3775 | From around | Registered: Mar 2008
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-------------------- ---------- Danni Posts: 311 | From Glen Mills, PA | Registered: Jan 2009
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Never know. The more I took the better I felt. I was up to 6 tsps at one point and it was the ONLY drug I did not have Horrible herx reactions from ..
Some herx but things like joint pain or headaches or such.. not sicker or that sort of thing.
And it helped right when I relapsed to find some hope.
Was not my cure all but two times over it helped me when nothing else would.
BUT YES>> PLEASE READ THE MEPRON BLUES LINK AND PLEASE BE WARNED> IF YOU START FEELING NOT LIKE YOURSELF >>> PLEASE DO NOT JUST KEEP TAKING IT Because you think that is what you NEED to do or SHOULD DO. IT is serious but easily fixed by stopping the med and in a few days will clear right up.
Many have taken their lives or have been very close to it. It changes you SO Much you can not really imagine. Not talking about "BLUES" really but ROCK BOTTOM depression and BLACK HOLE and feel like ENDING IT kind of HOLE>
Be careful and keep that information in your mind because when it hits it can hit fast..
I was warned by my doc luckily and THANK GOD>
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
Build up slow, amke your way up to 2 tsp 2 x a day. That way, you don't herx so hard.
But, just FYI, I was on high doses of mepron/ztih/art for 26 months. And in the last few months, I started to have problems again, so we switched to Larium and holy **** did I herx from hell, after over a year of a Tablespoon twice a day!
But, don't want to get you down, no, no. Good news is that it sounds like MEpron is going to work really well for you, if you are responding at that low a dose! Yipee! Just up the dose slow, and be on guard, get to know your Babs symptoms really well. And if they start getting worse, up the dose, or try another med or combo of meds
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
Indeed. Those herxs creap up on you. the herx for me came at almost week three and still on going.
My temp went up with flushing, headache, brainfog.
My llmd said well, all those symptoms are babesia.
Definitely take the yellow paint with something fatty..like peaunut butter, olive oil etc.
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by xoxoxox: What is Mepron used to fight?
Babesia
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
I appreciate the psych warnings. It's funny--well not funny--but I've posted on here about staggering depression and personality changes while I was on other things. I feel like I already hit that bottom--several times--the suicidal thoughts, the constant agitation, the paranoia, crying a lot blah blah blah. That's when I stay off Facebook and keep to my self a bit more.
Anyway, my llmd says Mepron has lyme cyst busting power. I test neg for Babs but I may still have it based on symptoms. I gather the usual dose is 2 tsp 2x day. I'll be adding zith--what's the usual dose on that. Don't know anything about Floraster--will look it up. I may try to ad the Super Artemesisin I have from before.
And yes I take the liquid gold with fatty food.
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
The suggested dosage on the label is 1 tsp. 2x a day.
People here are saying for Lyme it is 2 tsp. 2 times a day.
Check with your doctor and work your way up to the dosage.
Asummers - What dosage of Flagyl and Larium do you take? You can PM me if you prefer to do that rather than post it.
I think I need to add one of these. I'm just enjoying not suffering through meds for once.
posted
Ok Florastor for anyone else who didn't know (from Wikipedia):
Saccharomyces boulardii (brand name Florastor, among others) is a tropical strain of yeast first isolated from lychee and mangosteen fruit in 1923 by French scientist Henri Boulard.
It is related to, but distinct from, Saccharomyces cerevisiae in several taxonomic, metabolic, and genetic properties.[1] S. boulardii has been shown to maintain and restore the natural flora in the large and small intestine; it is classified as a probiotic.
Boulard first isolated the yeast after he observed natives of Southeast Asia chewing on the skin of lychee and mangosteen in an attempt to control the symptoms of cholera. S. boulardii has been shown to be non-pathogenic, non-systemic
(it remains in the gastrointestinal tract rather than spreading elsewhere in the body), and grows at the unusually high temperature of 37�C.[2]
S. boulardii is often marketed as a probiotic in a lyophilized form and is therefore often referred to as Saccharomyces boulardii lyo.
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
A pharmacist out East said he only fills it for AIDS patients with, I think he said some sort of lung infection. He says they are on it awhile.
I asked about Babs, he had no understanding of that. That flored me, as he lives and works in New Jersey. I asked how he knew his customers had AIDS. He said because he also gives them their AIDS medicine.
I don't get it.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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WildCondor
Unregistered
posted
"Building up slow" is not advised and is a good way to make sure you stay stick and build up resistance. Take the full dose if you want to get well. Medication has prescribing information for a reason, and you WANT to be herxing, that is the only way you will get well. The starting dose of Mepron is 2 Tsp./day and it is usually increased to 3-4 doses/day combined with 600-1,200mg Zithromax plus artemesia annua.
Florastor is crucial to be on during your treatment to protect against c.difficile.
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
WC said... ""Building up slow" is not advised and is a good way to make sure you stay stick and build up resistance. Take the full dose if you want to get well...."
FWIW- Not pickin' on WC, not at all... but like a number of other posts, this is ONLY one person's opinion based on general literature and/or personal experience.
Please remember none of us are medical doctors and no one should take blanket statements as if they were gospel or as if they pertain to everyone.
There are MANY reasons why we are all not given a one-size-fits-all protocol.
What can be helpful or true for one person can serious hurt or even kill another.
Soooooooooo, sick woof woof... and anyone else reading this...
NEVER adjust or change your prescribed medications based on what you read on a chat board and without first checking with your own doctor and pharmacist.
posted
Haley -- Right from the get-go, I think I was giving myself 3 table spoons, twice a day of Mepron.
I seem to tolerate high does of abx really well. My Flagyl is 1000mg a day. I take it in 500mg's twice a day. And the Larium is...every 5 days and I started with a loading dose of 1 pill for 3 days. The dosage on the Larium is 250 mgs.
Posts: 379 | From Sydney, Australia | Registered: Nov 2008
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
whoa, guys- that stuff can cause liver damage, especially at high doses. One LLMD who advocates using 2 tsp twice a day says that he won't prescribe it for patients who can't get liver blood tests done every two weeks.
there is a blood test for atovaquone levels- it can tell you if your dose is too low- I think it's mentioned in some of Dr B's writings.
-------------------- Symptom Free!!! Thank you all!!!!
nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
I'm so happy that you are feeling some improvements!
Just in case, I just wanted to mention something that I saw mentioned many many times here over the years:
Please make sure you are using the proper dosing sizes - don't use a regular kitchen spoon, assuming that it is the correct size!
A lot of folks were using silverware to measure their doses for teaspoon or tablespoon amounts.
You need to make sure you have a medically accurate dose size - sometimes the pharmacy will give you a dosing instrument when you purchase your Mepron.
Whatever way you choose, make sure it is an exact measured teaspoon or tablespoon, not the generic spoons in your silverware drawer -they are not accurate and usually much smaller than the true dose size.
posted
I have a highly regarded and very politically active llmd. He's very concerned about safety. I've also had trouble taking crushing doses of things--so much so that I ended up in the hospital once. He has a 90% success rate with his patients. So, I love you guys but I have to have faith that he knows what he's doing. And it's not like he's my first llmd!
I did have a bit of an ooky afternoon today.
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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posted
Icky stuff -- yellow nuclear waste!! And road rage!!!! And after 4 months (all I could take) a real bona-fide effect on my stamina, after all these years and all those textbook Babesiosis symptoms.
Posts: 459 | From Connecticut - just across the river from the Lymes (Old Lyme, Hadlyme, East Lyme, South Lyme & Lyme) | Registered: Oct 2000
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I am supposed to start Mepron this week. I have been being treated for 5 yrs and this is the first time with Mepron. My LLMD says to expect to get real sick the first mouth and 2nd month and start feeling better the 3rd mo.
I am almost scared to start it. I am at about 75% better after a year and a half of feeling real bad. He wants me to take Flagel every other day also. Does anyone else take Flagel with Mepron?
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