posted
Can Herxing ever last a month? I have been on Plaquenil/Biaxin for 3 months and was doing somewhat better and this last month I have slowly been going down hill with the return of old symptoms and they are very intense.
I am not sure if this is a herx or maybe a co-infection. I am being tested for those in a few weeks because the LLMD I'm with now does not test for those.
My symptoms include horrible top of the head head ache, more cracking and pain in joints and neck, base of skull pain, jerks of limbs and body, scratchy and burning eyes with pain behind left one, dry mouth, horrible ear and neck pain especially on left side,aching bones in feet, electrical shock vibrations especially in face and feet, swollen glands, chills, and fatigue.
Posts: 319 | From Mass | Registered: Feb 2010
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Let me guess, you're seeing Dr. D. Keep in contact with him and setup and appointment to switch medications. He'll likely switch you to Tetracycline.
My opinion is that he "is" on to something in terms of treating long term -- even often with one or two drugs, however he is not onto something when it comes to treating Co-infections and that's critically important.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
Cattail, I think you're backsliding. With your symptoms, I don't think just Plaq and Biaxin are enough for LD and possible co-infections. I was on just minocycline and amantadine for several months and backslided horribly. I completely crashed after having a tetanus booster. Now I can hardly walk and have terrible muscle pain, joint pain and anxiety. I, too, had thought I was having herxes. I was just going downhill. Don't delay; ramp up your meds.
Posts: 43 | From Florida | Registered: Jun 2010
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posted
Yes, I agree with everything you said on Dr. D and I have an appointment with him next week. I do plan on asking him to switch my meds early and then following up with co-infection testing with other LLMD in N.H.
Was wondering, does one usually change their LLMD or do they have 2 in this case of lyme and co-infections being treated by 2 different doctors? Thank you.
Posts: 319 | From Mass | Registered: Feb 2010
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
If you're seeing Dr. H in NH, then you'd be in good hands. Dr. D is a real nice guy but he's very cautious and trys to go low risk in order to treat as many people as he can. This reduces his ability to manage cases in detail but it also manages to help a lot of very seriously ill people.
The problem is that many of those very seriously ill people have complex cases that often fall through the cracks of his treatment approach.
Usually you change because the LLMD should treat "all" of the conditions connected or caused by the tick-born infections.
Unfortunately that doesn't always happen.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
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