WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I'm currently being treated for LD by a reputable ILADS practice and I'm on 200 mg of Doryx (doxy) 2x/day. Testing for co-infections is pending.
I have a borderline ELISA, and bands 23 and 41 are reactive on the WB (from a commercial lab).
My PCP didn't think I even had Lyme - he thought I had something else instead - so I saw the IDSA doctor he recommended today. I know, I know. But I figured it couldn't hurt to get a 2nd opinion on the off-chance he was right.
Well, surprise, the IDSA doc agrees I have Lyme and he was actually taking it pretty seriously.
He wants me to get a spinal tap based on some neuro symptoms I'm having (headaches, numb arm, stiff neck). He said if it's positive, I would need to go on IV antibiotics.
This took me by surprise. I'm gradually improving on my current meds and not anxious to do an invasive test if I don't need to.
So, I would love to benefit of all of your wisdom to see if I need this spinal tap, and what it could show? thanks!
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
I would stick with the LLMD and be glad the ID doc agreed. Chances are the ID doc would treat you if you had a positive spinal tap, but typically not long enough.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
I agree with both responses. The links Lymetutu gave should help you make the decision.
If it were me, I'd definitely not have the spinal tap. Two drs have said you have Lyme and your ILADS Dr is treating. You're improving. I'd stay with him/her!
Posts: 4638 | From South Carolina | Registered: Mar 2001
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quote:Originally posted by sixgoofykids: I would stick with the LLMD and be glad the ID doc agreed. Chances are the ID doc would treat you if you had a positive spinal tap, but typically not long enough.
- Exactly. The ID dr would give you one month maximum to get well. Not well after that? Too bad, he would say. "You're cured!"
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
That is what my non-lyme neuro said as well. If it shows up in your spinal tap, you need IV (for one month.)
Problem is, Spinal taps "are to look for other things, not lyme." They are not sensitive enough.
So I wouldn't do it.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
"Spinal taps "are to look for other things, not lyme."
TRUE!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Thank you so much for all of this helpful info. I really appreciate this group. I decided not to have the spinal tap. Thanks again!
Posts: 1737 | From Virginia | Registered: Aug 2011
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