posted
Has anyone had Lyme Menengitis? Can you have this with no fever? Been treating for Lyme and Co's for a year. Positive since 2005. But removed embedded tick last October and now new symptoms head ache going down back thru neck cannot turn head and pain radiates to bottome of neck spreading toward shoulders and down back.
Advil does not help, Vicadin helps a little. But I have no real fever, just always cold. I have spine issues so hoping it's just a huge flair up. Am currently on Zithro, Plaquinil and Mepron. Can't see Doctor for at least a couple of months.
Has anyone actually had Lyme Menengitis with no fever?
Thanks,
Beagle
Posts: 348 | From MA | Registered: Dec 2010
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posted
I've had similar symptoms when herxing. I say herx.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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You guys made my day! Hoping it is a herx. Although none of my meds have changed except I started Plaquinil again after stopping it for many months.
Posts: 348 | From MA | Registered: Dec 2010
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posted
When I had my initial infection, I had Lyme meningitis.
Intense stiffness in my neck. Felt like I had slept for a year on a rock or something. THE WORST HEADACHE i have EVER felt. And fever.
I was hallucinating while in the ER but it could've been the Vicodin. Kept seeing bugs on the walls.
My back and lower shoulders were unaffected.
Never had it since then. I agree with the above posters in the opinion that you were/are probably herxing.
It is possible I suppose that you were reinfected. BUT, I can only speak from personal experience and I had had fever. And no back pain.
Oh- I do have frequent burning pain in my neck to this day, but not stiffness, and never a headache like the one I felt those couple of days.
My Doc says the burning kind of pain in neurological. Ice never helps...
Posts: 10 | From Central/Western MA- Pioneer Valley | Registered: Jul 2010
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I think it's a babs herx (going through it now). As soon as my doc put me on a babs med, it started. It's been four weeks of stiff neck pain. Acupuncture helps.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Yes I have lyme meningitis now. I do not get fevers
often. My body temp is extremely low so when I do
get a fever it is rarely above 99.0 Be very careful
using and pain relievers such as Vicodin because
they are full of Tylenol or acetaminophen which is
very hard on the liver!
Posts: 6 | From Maryland | Registered: Aug 2011
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I would call your LLMD. It doesn't sound like a herx to me when you have barely changed your meds. Plus, it doesn't look like you are on anything much for Lyme.
Also, ask the office to put you on the cancellation list. But it sounds to me like to you need to talk to your dr soon, even if it's short and not a real consult. It sounds like you got reinfected.
If you can barely bend your neck, yes, it is possible it's meningitis. It also may be a reinfection with not much for Lyme meds.
Posts: 3778 | From around | Registered: Mar 2008
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posted
I have had it and was hospitalized for four days. Spinal tap was positive for viral. Its the most horrible swollen feeling in your head and its like all the spinal fluid is infected all the way down your spine. Each step you take is painful. These are my worse herxes and now I know I would test positive for it. I didn't run a very high fever but I'm always low so hard to tell how 'high' it was.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Could you have a low grade encephalitis though from Lyme that causes head and neck pressure but no fevers? Or even a low grade meningitis either of which lasting for many months to years?
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Could you have a low grade encephalitis though from Lyme that causes head and neck pressure but no fevers? Or even a low grade meningitis either of which lasting for many months to years?
Posts: 1632 | From Canada | Registered: Feb 2012
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