posted
Autonomic Nervous System Dysfunction (e.g., POTS) - For those with ANS Dysfunction pretreatment, did you find that your ANS Dsyfunction flared as you treated and experienced die off. I am having a particularly difficult month with nonstop herxing and my POTS symptoms have never been worse.
I have also noticed that the worse my POTS is (my heart rate is extremely high for hours in the morning) the worst my air hunger is.
Anyone relate to this?
My LLMD is addressing POTS but still wanted to know if others have POTS flares when treating? I'm assuming it can flare like any other symptom but wanted to confirm with others
Thanks
Posts: 138 | From Connecticut | Registered: Dec 2012
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
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I have neurally mediated hypotension, also autonomic nervous system dysfunction, and yes, at times it gets worse when herxing.
Posts: 1358 | From Midwest | Registered: Apr 2009
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posted
thank you!
Posts: 138 | From Connecticut | Registered: Dec 2012
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Never have been able to correlate DD's POTs with herxing. Her POTs issues have remained pretty consistent throughout tx for Lyme/cos.
She takes both florinef and midodrine to help keep her BP up. Her cardiologist tried to wean her gradually off the florinef over the course of a few months.
With resting BPs in the neighborhood of 80/60 and her experiencing symptoms of lightheadedness and dizziness, he came to the conclusion that she not only needed to remain on the florinef, but that she needed to increase her dose of same!
And as an FYI, your air hunger could be a sx of babesia.
Posts: 1885 | From here | Registered: Jul 2012
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
Everything worsens during my flares. However, like beaches daughter, my POTS symptoms are also a daily issue.
I have noticed that if I can get some bit of sleep at night (CPAP, Melatonin) even though it's non-refreshing sleep, the POTS symptoms aren't as debilitating during the day.
If I don't use the CPAP and Melatonin, I struggle to hold my body upright the next day.
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