Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Always, first, every time - there is a matter of poor sleep, consider
1. MAGNESIUM DEFICIENCY.
2. INFLAMMATION
gluten, dairy, corn are tops on causing inflammation, fwiw - see the neuro-excitatory post in Sleep & Adrenal thread for some stuff can be in both categories
I'm hoping someone has suggested a gluten-free and diary-free diet for many months to see how that might affect inflammation in the lungs, etc. If you already are, great.
3. neuro excitatory foods, etc.
4. HYPOGLYCEMIA through the sleep cycle
also needs to be on the top of the consideration list. If you do not now, you may need to eat a light healthful snack an hour before bedtime that is well balanced with protein, complex carb (veggie), and a good fat.
I got just 16 minutes of REM sleep on a disaster of a sleep test I had done years ago. How I wish that I had then had some of the detail in links below.
The sleep "expert" actually told me that I did not need ANY REM sleep and that since the noises at the hospital test lab kept me awake, & I would often just drop to the floor w/o their "finding" a reason - they wrote in my chart: "schizophrenia"
So, my faith in sleep "experts" and tests has been tested. They also really were only concerned with breathing, not other factors. And this was before I knew that lyme was a major factor or even that the term "hyperacusis" and an inner ear bone issue was also part of the sound sensitivity.
In retrospect, both day and night sleep / nap tests were a huge waste of money done by doctors so very ignorant of the multitude of issues that affected my ability to sleep.
LLMDs are much more attuned to such matters and, specifically, if you have a LLMD they should be able to help you as they know about your "steep stress" load and physiological constitution.
Now, while breathing issues with sleep ARE something that many sleep experts do know about, if it's something beside that, they won't give it a moment's thought.
And, even with breathing issues that can prevent good sleep, some of that could be connected with the neurological signals that get boomeranged with lyme.
Of course, magnesium and some of the other supports would be in addition to addressing infections (which can cause all kinds of sleep issues due partly to liver toxicity stress and nerve tissue infiltration).
Magnesium is FIRST thing to consider, though, as well as use of light & electronics near bedtime &/or in the bed room.
In my quest for the truth, some of what I've gathered is shared below. And many others have some good recommendations, too.
Topic: NATURAL SLEEP & ADRENAL SUPPORT [you can't have one without the other]
Looking more at the neurological issues with sleep yet some of the APNEA posts also offer some ideas in addition to consideration of a CPAP or similar.
As mentioned above - but it might get lost - most sleep experts do really know about breathing issues but not necessarily about all the reasons one might occur in someone with lyme.
Be sure to take the advice of the sleep expert to your LLMD so they can also add their thoughts to the plan of action.
Many have done well with a CPAP or similar, too. -
[ 03-11-2017, 03:41 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As CFS "Chronic Fatigue syndrome" has similar symptoms to lyme (in fact, CFS is often caused by lyme or other chronic stealth infection) but that's another whole topic . . .
in addition to checking with your lyme support group (as I think you did), talk to those in your area CFS support groups for I'll bet many have gone through similar experiences and can offer some good detail on who in your town might best understand how all the variable interact.
And I guarantee that those who might use a CPAP machine in the CFS support group will also have scouted out the best face mask, tubing as most are very sensitive to smells.
Hope this helps. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Beyond that, from the CFS research, there is a neuro. expert who devised a special kind of EEG that is exceedingly good for those with CFS and slow brain waves (as lyme also causes).
It's called a QEEG / brain mapping test. It shows how your brain enters all the stages and which parts of the brain are working better.
If you have it, I suggest looking up the work of Dr. below and finding someone TRAINED in her specific methods. Not all QEEGs are the same. And it's very tricky to get insurance coverage, yet may be possible.
However, the neurofeedback component after that . . . unless lyme and all infections have been (mostly) addressed, I would not suggest such training if budget is tight. I did months of this and because lyme really was being addressed well at that time, it did not help as much as I had hoped.
If infection has been / is being well addressed, the neurofeedback training (and even some BIOFEEDBACK training with others) can be tremendsously helpful. too tired to fix that
In fact, I'd consider BIOFEEDBACK training / neurofeedback training for a series of 3-6 sessions JUST for the sleep issue as a major possibility to help.
For a start, Google: QEEG "Myra Preston, PhD"
& also: Sleep "Myra Preston, PhD" -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's important to note that your lack of DELTA sleep during a sleep study in the hospital with busy surroundings [or even if at home] could have to do with being tethered to your equipment, etc.
Don't be too concerned as there are ways you can train your brain / body to go into DELTA relaxation. The considerations mentioned above are some ways but also, consider meditation & Qigong.
Magnesium is still the #1 best helper, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic