posted
I recently tested positive for lyme(Borrelia burgdorferi F7 and Bartonella henselae) and my doctor recommended the following:
Ceftin: 250mg two, twice daily (build up to it) Doxycycline: 100mg 1x for 4 days, then one 2x/day. Tinadazole: 500mg one 2x/day for 3 days, then 4 days off Probiotic-3(AOR) one 2x/day in between meals
He wants me on for 6 weeks.
EWOT and ozone therapy were also recommended.
I'm just learning about lyme, and would love any insights into the protocol he suggests for treating it.
Posts: 21 | From Austin, TX | Registered: May 2017
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
To see what good lyme and bartonella treatment looks like, you need to read and STUDY the Burrascano Lyme Treatment Guidelines found here:
You will see the meds that treat lyme and the dosages required starting on page 18.
Bartonella treatment is on page 24 and following.
The need for 2 antibiotics at once to kill lyme is discussed at "Combination Therapy" on page 12-13.
Since you have these 2 diseases, you really need to educate yourself about them. So study, study, study this document. AND, get yourself to the very best lyme doctor you can possibly afford. I will send you the name of one who will see you in about 2 months.
There is only one lyme doc in Texas that people say is any good. I will send you his name also. He cannot compare to the name I am sending you in Washington, D.C. however.
Here are a few points from Dr. B's guidelines:
You must attack both the regular and cyst (or other) form of lyme simultaneously--requires at least 2 different antibiotics taken together to do so.
You must test the patient for all co-infections and other physical ailments (thyroid, etc.) and treat everything the person has.
You must treat all co-infections the patient has(including babesiosis, bartonella, ehrlichia, mycoplasma, etc.) or the patient will not get well.
You must use Igenex for most of these tests--they are a tick-borne disease speciality lab in Calif.
You must use very high doses of antibiotics to kill the diseases (batericidal doses).
You must give the patient supplements, probiotics, herbs such as artimesinin if babesiosis is suspected, and require adherence to rules such as low carb diet, no alcohol, no smoking, rest, and exercise as the patient is able to do it.
You must treat at least 2 months after all symptoms have disappeared (if sick at least 1 year).
These are just a few of the important points you will see in the guidelines. If possible, you want a doc who does EVERYTHING Burrascano says to do. He treated lyme for over 25 years, and compiled what he learned so that other docs could benefit from it. He was the most successful lyme doctor on the planet. They came from every country in the world to be treated by him.
Welcome to LymeNet! We will help you here all we can.
Posts: 9931 | From Maryland | Registered: Dec 2007
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
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Not bad ..good start.imagine he will treat bart later?
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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Because standard Bartonella testing, either by serology or PCR, may not pick up this BLO, the blood test is very insensitive. Therefore, the diagnosis is a clinical one
So seems it might be on a doctor's recommendation and not the test anyways?(I might be misunderstanding)
quote:Originally posted by TF: You must treat at least 2 months after all symptoms have disappeared (if sick at least 1 year).)
So do you view the 6 week recommendation from the doctor as a big flaw?
I've had symptoms for maybe 2 years, though not nearly as extreme as some of the symptoms I read about from many here.
Also on the document you referenced it seems levofloxacin is the recommended treatment for BLO, but it's not one of the ones my doc prescribed. A flaw you think?
Posts: 21 | From Austin, TX | Registered: May 2017
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quote:Originally posted by bluelyme: Not bad ..good start.imagine he will treat bart later?
Are none of the antibiotics he listed helpful with BLO?
Posts: 21 | From Austin, TX | Registered: May 2017
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
If this doctor thinks you will be finished with treatment in 6 weeks, that IS a big flaw. Perhaps he wants to see you back in 6 weeks?
Since you have had symptoms for about 2 years, you can expect treatment to take a minimum of 8 months to 18 months.
To check the doctor's meds and dosages against the Guidelines, you first have to translate the brand name of the med to generic. Then, you can search for that word in the Guidelines. Here is what you will see regarding Ceftin:
"Cefuroxime axetil (Ceftin), a second generation agent, is also effective against staph and thus is useful in treating atypical erythema migrans that may represent a mixed infection that contains some of the more common skin pathogens in addition to Bb.
Because this agent’s G.I. side effects and high cost, it is not often used as first line drug. As with the penicillins, try to achieve high, sustained blood and tissue levels by frequent dosing and/or the use of probenecid. Measure peak and trough blood levels when possible." (p.14)
And:
"Cefuroxime axetil- Oral alternative that may be effective in amoxicillin and doxycycline failures. Useful in EM rashes co-infected with common skin pathogens.
Adults and pregnancy: 1g q12h and adjust." (page 18)
So, now how do you feel about him giving you Ceftin for lyme?
Notice the required dosage is 1 gram (1,000 mg) every 12 hours and adjust based on blood testing levels.
And, don't forget about the need for probinecid with this med.
Now, do the same studying regarding the doxycycline and tinidazole.
And, regarding how lyme is diagnosed, see p. 7. The first bit of it says:
"DIAGNOSTIC HINTS Lyme Borreliosis (LB) is diagnosed clinically, as no currently available test, no matter the source or type, is definitive in ruling in or ruling out infection with these pathogens, or whether these infections are responsible for the patient's symptoms."
Since you tested positive for lyme and bartonella, I would say that you also have babesiosis as nearly every lyme patient has that illness also.
A good doctor will determine what diseases you have based on your symptoms and your reaction to a course of treatment.
Regarding bartonella treatment, just read page 24. You can also get another opinion by looking at this webpage from a lyme doctor's book:
So, now you can easily see that you are not taking anything to treat bartonella. That's OK if the doc intends to treat it after he treats your lyme.
I hope you know to take your probiotic at least 2 hours after you take the antibiotics. Otherwise, the antibiotic will just kill the probiotic when they meet in the stomach.
"anti" = against "bio" = life
"pro" = for
So antibiotics kill life forms in the stomach and probiotics supply life forms to the stomach and digestive system.
That is why, as long as you are on antibiotics, you will want to take probiotics also. Be sure you are on a good one. These usually are in the refrigerated section of a health food store.
Search for "probiotics" on LymeNet to see which ones many people recommend. I don't know what AOR is. Never heard of it.
I always tried to take a probiotic at bedtime so that it had all night to repopulate the gut.
Posts: 9931 | From Maryland | Registered: Dec 2007
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
It is argued whether blo are succeptable to cephalsporins for gram neg bugs , it is though maybe 3 rd and 4th gen do but doxy or minocycline or zithromax is usually paired with rifampin. ..
The doxy may keep it from proliferating. be careful if you try the flouriquinalones as they can cause irreversible damage and sx that really worse than lyme .."being floxed"
Tf is right ..100billion probiotic plus s.boulardi is recommended
We all just want to take a pill and be done but some cant find or tolerate burrascano type treatment. And there are many modalities .look into rife ,bvt ,mhbot ,homeopathics and herbs as adjucts to your healing journey
from what i hear you are fortunate to even recieve that level of care in tx ..on the testing dna pcr defintivly means those were found but not finding babs ,toxo or other parasites doesnt necessarily mean they are not in there.
To confirm or track progress i have found the best way is to do your own microscopy with giemsa staining ...see microscopy thread for tips
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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