posted
I know in Dr. B's guidelines he does not recommend aerobic exercise, only strength training every other day but I cannot find any rationale for this.
I used to be a big cyclist, outdoor enthusiast and did functional training but I can't even walk (more of a stroll) for less than a mile and I'm wiped out. My doctor started treating me for mitochondrial dysfunction but I don't understand the mechanics behind it am I'm a nurse.
So I have 2 questions:
1. Does anyone know what causes this? Since we started trying to heal my gut issues, my fatigue is so much better and I would like to try something again.
2. I read a lot of the posts here and was wondering how do you all understand or process the information? I cannot remember what I read much less understand it. Today I thought I was helping with dinner and took shrimp out of the freezer but when my husband came home we couldn't find it! He was trying to calm me down while emptying the dishwasher and apparently I had taken out the bag, put it in a bowl and then put it in the cabinet!
Any insight about #1 or tips about how to understand all this info is greatly appreciated!
Posts: 86 | From LA | Registered: Jul 2016
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posted
My guess is that exercise intolerance might be partially caused by lack of magnesium for the energy ATP cycle. Have you tried taking magnesium? Also, we have to find the particular kind of magnesium we tolerate.
Re processing info - for me, it happened when I was discovered to be hypothyroid. I went on Armour thyroid and suddenly I could think again. It had to do with boosting my metabolism. So have you had your thyroid levels checked?
Posts: 13117 | From San Francisco | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
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posted
My LLMD was very adamant that I do not do any cardio.
Aerobic exercise while on abx can cause heart damage. In his opinion, mild exercise and weight training was encouraged.
Posts: 199 | From Let's Go Pens! | Registered: Apr 2010
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Keebler
Honored Contributor (25K+ posts)
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- Robin & GVS have excellent replies. So, to, does fatherguido's note.
There are so many different ways that aerobics and lyme can be dangerous. And each one of these aspect or influences matters greatly.
Yes, mitochondria support is vital but it won't make it okay to engage in aerobics - it will (hopefully with key anti-infective treatment and other support, too) help mitochondria "come back" but it will take a while.
Mitochondria support is never just a ticket to go do aerobics anyway, too soon.
Also vital to remember: aerobics during infection can damage the brain and the heart.
In the exercise intolerance links set above, see the post with the brain HYPOFUSION detail from Nightingale Research Foundation which studies "ME" / CFS in Canada.
Hypoperfusion is also common with lyme. Best to try to avoid making that worse.
See the brain scan detail 24 & 48 hours after aerobics for those with CFS / ME (which has so much in common with lyme / lyme can cause CFS / ME). But, whatever it's is called, in the state of illness described, the effects of aerobic exercise could damage.
I know this first hand, too. Long before I knew what was going on or why - pushing exercise beyond what I could manage cost me due to damage from it.
Gentle is the key. There are many other ways to move the body that do not involve speed or intensity.
For those whose joints can't tolerate lifting weights, there is always Qigong / Tai Chi / Pilates, etc. And just movement that is enjoyable but not at high speed.
Walking is good. Dancing, at a reasonable speed, can be excellent & fun, too.
Other considerations in links set: the liver often just cannot take aerobics. The liver goes through traumatic stress during aerobics for someone dealing with infection & it can send the toxicity in the body to the moon.
There are also at least a half dozen other ways that aerobics during infection can pose a risk. Be sure to go through the links set.
Mitochondria detail in the links set, too. Still, the key is being sure that all infections are systematically, directly & adequately addressed.
All the support in the world can't work it that piece is missing.
Also be sure to talk with you own LLMD about it for specifics to your case.
Adding music to whatever activities are safe for you might add to the enjoyment if you miss the adrenal rush previously provided by aerobics. Being in nature is also excellent, generally, to add to the enjoyment. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- You ask: "how do you all understand or process the information"
Bit by bit. Keep track of where you put your study notes so that you have your reference pages and can just read bit by bit.
I can't tell you how many times I've had to read over the same information about any of the body functions / systems in relation to lyme.
And it does matter - trying to go to the links suggested because, most often, to read the explanation by an expert who has studied and written about it - well, it is so much better explained than I know I could ever manage.
You might print out some of the links sets or posts. What I find most important is to make several files for my computer desk top - "medical study folder" and then I can go to the topic of interest.
Other than trying to understand it all, it can take a lifetime, I think. If at all possible, it's really best to have the very best LLMD or LL ND that you can find and rely on their expertise & wisdom.
It's enough to just take care of ourselves properly. If we have a LLMD or LL ND whom we know has the best knowledge base then we should not have to figure out all this on our own and
focus on the work involved in taking care of ourselves as we treat.
Believe me, had I had access to a proper LLMD or LL ND, I would have been elated to not have to cut & paste and wonder & wait to figure all this out. It's not a job for someone who is ill.
I hope your doctor is a very good one for you. If not, do whatever you can to find the best doctor to fit your needs, if at all possible. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- P.S. to You ask: "how do you all understand or process the information"
In TWENTY MINUTE increments, or less.
With just ONE POINT at a time, perhaps.
then get up (or go lie down) and do something that involves a totally different part of your brain &/or body motor skills.
Most days my goals have been reduced to learning something new about health in relation to what I need to do . . . something new about the world . . . and getting done even one chore other than showering / food prep / clean up.
Some days, if I shower, that's it.
Be kind to yourself. If you can't process information, it may be best to just not try. There are valid reasons that this is not really a lack of trying but, rather, simply acknowlegg what you can or cannot do at that time. And it's okay.
It may be of help to know that if you have any kinds of vertigo or inner / middle ear issues, that can make it so much harder to process information. Any sounds about - even the fan from a fridge - can hamper mental alertness.
Be kind to yourself. Nourish & Nurture. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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randibear
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posted
I'm doing a mile a day, takes 30 minutes. my cardiologist says speed it up.
uh huh, right. I'm doing what I can and feel comfortable with.
pushing it is not an option.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
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posted
- randibear,
your cardiologist is NOT lyme literate. Please do not listen to that bad advice. It is not all about speed. There are far more important matters involved.
I'm glad you know it's not an option for you to speed up [beyond your wisdom / comfort zone] and you know why and are comfortable to go at your own pace that works for you.
However, your experience points to a major concern for all going through lyme / TBD: Doctors who are not at all properly educated about lyme / TBD being our doctor for any part of our medical care.
For anyone in such a position:
Please take exercise advice only from an expert who is, indeed, fully knowledgeable about lyme / other tick borne or other chronic stealth infections -- or other issues - that matter in your specific case.
We must - not - give credence to doctors who give advice without taking into account what an individual patient is going through when that doctor is not at all properly educated.
Exercise for those with chronic stealth infections is not about speed. It is not about speed. For so many reasons. -
[ 10-08-2017, 05:30 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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randibear
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posted
yep. I walk, or rather mosey, along. jus being outdoors seems to help.
right now with a large bunion on my left big toe, it's all I can do.
as soon as you mention lyme, they get this glazed look in their eyes and automatically label you a nut case. they don't want to deal with you.
doesn't matter their specialty, hospital affiliation, or insurance, whatever. you're finished and that's that. they know best and god help you if you question them.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Thank you all so much! In regard to understanding and being able to process it all, that advice is invaluable as well (I thought I was just missing it!!).
My doctor prescribed Mitochondrial NRG (as well as medicines to repair HPA axis dysfunction, plus numerous other issues and supplements) and Adren-All. All of the ingredients are ones that Dr. H and Dr. B have talked about but I'm wondering if you all found something else that has been helpful.
My neurologist (not LLMD but the one who ruled out everything else and then made the case with my then insurance company to get me approved for Doxycycline and then IV Ceftiaxone wants me to try Adderall. Has anyone found this helpful?
Posts: 86 | From LA | Registered: Jul 2016
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Keebler
Honored Contributor (25K+ posts)
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posted
- I very strongly advise against starting Adderall (or any pharmaceutical Rx stimulant) for many reasons that my tender hands just can't type now. Please do not. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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