Wretched

 

Breath-Taking
 

aye-yi-yi
 

'benign fasiculations'

describing my muscle twitching (which was scaring the h*ll out of me at the time!) that I thought was the beginning of MS or ALS symptoms . . .
 

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Now to add more to the "A,P, T, W, D" words:

Atrocius:

1.extremely evil or cruel, monstrous,
2. exceptionally bad, abominable

Paroxysm:

Pathology.

a. A crisis in or recurrent intensification of a disease
b. irritation,exasperation

Tribulation:

1. Great affliction, trial or distress, suffering.
2. An experience or condition that causes such stress

Throe:

1. A condition of agonizing struggle or effort.

 

Steve
 

Its hard to make plans because you never know how you are going to feel.

And its no fun going out to dinner anymore, without my bread and wine.

Expensive!!!!!
(i had to have a second choice)

Jordan

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opps thats three words oh well

debbie warwick

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lyme diease coming to a family near you;;

staring the infamous spirochete;;

with special apperances by
coinfections.

education should never stop.
 

Why?

NO ONE would dream this up....NO ONE.

Trout
 

I was trying to think of the one that said lyme is like rolling a boulder up hill.
 

Rocephin

acidopholus

Political

Ignorance

quote:

---

Originally posted by Liebekim:
Not understandable.

Friends can't understand.
Doctors don't understand.
Family can't really understand.
You don't understand why you aren't cured.
You don't understand how to get cured.

---

frustration!!!!!

 

Cathy aka griswoldgirl
 

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You can only see the stars when its the darkest.................
 

To save Kam the trouble the definition is as fllows:
incapable of being expressed in words; indescribable; unspeakable

Hillary
 

Cathy, rollercoaster is also a good one. I didn't notice that it had been mentioned before either.

The definition of nemesis in Random House Webster's Dictionary is:

cause of one's downfall.

This is indeed a humbling position to be in.
 

LUMPY BUTT BICILLIN BUDDIES

[This message has been edited by kam (edited 07 June 2004).]
 

I meant to put a definition but i got too carried away spitting venom at my own Nemesis!

Great thread. Gets the feeling out!

Wendy x
 

Joan
 

Hope and prayers are what have helped me along this journey.
 

[This message has been edited by twinkles (edited 10 June 2004).]
 

I think that was over in general about a year ago.
 

[This message has been edited by marie (edited 11 June 2004).]
 

[This message has been edited by marie (edited 11 June 2004).]
 

While Lyme has distroyed my former life, i have to say that without it, i would never have met the fantasitic friends that i have now. Even without the disease, we have so much in common.
My Lyme buddies keep me smiling every day & i am so grateful for that!

So in a positive way, my word is...

Friendship!

Wendy. x
 

So, this is as good as any a place to add those too.

I too am more aware of certain characteristics in some people like:

- kindness

- thoughtfulness

- consideration

It is above and beyond normal.
 

deceitful

cowardly

all-encompassing
 

Educational
ISL - Internal STOP Light

Educational - I have learned more about myself over the past few months than in the past 30 years!

Not to mention, more than I ever wanted to know about Lyme Disease and now I educate others.

ISL - After years of over-extending myself, and just pushing through the 'tired', now when I do too much my body REALLY lets me know it and I must STOP.

 

ISL - Internal Stop light. I like that. That works.

I, too, was a lot like you. And, I do continue to try and over ride the system.

Only, it is more serious this time and can be very dangerous to do so. I am slowly learning to try and listen to that ISL so I don't go to the kitchen that day and use a knife, or try to cook or bake, or get a needle out and try to give myself a shot when all the connections are not connecting or try to give myself an infusion.

My computer just stops on me at times and tells me all systems are dangerously low.

My body is like that at times.

My power chair will get slower and slower until it stops completely if I don't keep it recharged.

My body is like that.

The only difference is I don't have a gage on my body or a warning that flashes on the screen.

I have to work at staying tuned to my ISL

I wonder if I had listened to my ISL before becoming this bad, it I would have gotten this bad. I just kept pushing it and over riding the system.
 

quote:

---

Originally posted by kam:
Using one word, describe lyme. Please do not repeat what has already been said.

I'll start:

Fatigue

[This message has been edited by kam (edited 12 February 2003).]

---

SUCKS!

 

I don't have what it takes to look through all the words to see if it has been noted before....

but today I think lyme is....

running in the fields screaming...if I were able!

In one word....NUTS!

[This message has been edited by kam (edited 02 October 2004).]
 

def. - a sudden manifestation or perception of the essential nature or meaning of something (such as our life, health, well-being, happiness ...)
 

Joan
 

catastrophic

CURABLE!
 

mystery

patience

prayers

coinfection

bacteria

parasite

protozoa

virus

PCR

Western blot

B. burgdorferi

neurotoxin

appreciation (for those that help treat and finally diagnosis it after years of doctors; for those that post on lymenet.org offering sympathy and advice; for loved ones and family and friends who listen and try to make things better although they don't always understand)

------------------

 

eye/hearing extreme sensitivities

pain/fatigue

living in the bathroom - IBS

isolation since family/friends do NOT understand and end their relationsips w/you

waiting for sundown to go outside & enjoy weather....

no longer able to complete understandable sentences due to can't think of words & meanings.

BLESSINGS OF LYME:

1. wonderful web sites/forums like this board where we can come & express ourselves freely and see if others are having SAME problems.

2. Educating ourselves and/or by boards/others about our newest lifelong enemy.

3. We FINALLY have a name for all the many other illnesses this rotten tick gave us.

4. Having support groups online as well as at regular meeting places.

5. Having LOVING family members who take their marriage vows seriously...for better or worse, and in sickness and in health".

Tues. we celebrate 30 yrs. of marriage. My husband has NEVER known me well; I've been sick for 34 years.

I could go on, but this was to have been 1 word! I'm a newbie to this board, and couldn't help myself nor had the time to read all 7 pages of screens full.
Betty G., Iowa
 

Belated congrats to 30 years!

 

I thought of another....

"ticky situation"

I also thought about how this is forcing me to deal with anger management.

At times I need to assess the situation and attack the problem instead of the person or or in most cases get down on myself.

We shall overcome!