LymeNet Flash: Methotrexate for joint pain?

This is topic Methotrexate for joint pain? in forum Medical Questions at LymeNet Flash.

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Posted by Samantha (Member # 3198) on :

Anyone taking Methotrexate for joint pain? I know it is used for Rhumatoid Arthritis.

Thanks!

Samantha

Posted by TX Lyme Mom (Member # 3162) on :

The folks in the rheumatoid groups who take long-term antibiotics shun methotrexate completely. Those who took it before finding out about antibiotics are able to taper off of it gradually. Besides, it doesn't really work very well, and if it does work at first, then it stops working.

Here's where you can find out more about the dangers of methotrexate:

www.rheumatic.org
www.roadback.org

Read some of the testimonials from patients at the rheumatic-dot-org website and find out what folks who had been on methotrexate (prior to starting antibiotics) have to say about it.

Posted by Beverly (Member # 1271) on :

Hi Samantha,

I haven't taken Methotrexate, but being on Doxy and then Minocin for a year did help my joint pain a lot.

Good luck to you.

Beverly

Posted by Lymetoo (Member # 743) on :

No way! I took that stuff back when I was seeing a rheumatologist [had Lyme, didn't know it]....didn't work and i feel it probably allowed the Lyme to go deeper.

Makes me shudder to think I could have ended up with that lousy dr for years and years had we not moved!

------------------
oops!
Lymetutu

Posted by Lymelighter (Member # 5310) on :

What about Embrel or Remicade IV for joint or back pain?

Posted by bd (Member # 3426) on :

Have you ever seen the movie "the fugative"??

It is based on a true story!!!

It should have been a wake up call to the medical system instead it is thought to be just a movie.

When I first saw the move it screamed "METHOTREXATE". The stuf does work SHORT term. Long term it lead to countless liver failures, transplants and DEATH. It is CHEMOTHEAROPY designed to suppress and destroy your immune system.

DO NOT believe that blood tests will protect your liver. In my daughters case they sent the tests to the wrong doctor. Her doctor NEVER saw the blood tests and never noticed the problem.

She got real sick and they wanted to give her shots of methotrexate. I spent hours argueing with the ducks that the medicine was what was making her sicker. They finally relented and allowed us to take her off the medicine and that saved her life.

She spent several years in a wheelchair and it was over 6 months before her liver count returned to normal.

Today after a few years of doxycycline and an miracle after prayer, she is graduating from college. We had her graduation party yesterday.

Posted by rosesisland2000 (Member # 2001) on :

Just do a google search and see all the lawsuits now that are cropping up against the maker of Methotrexate. They are even advertising now on TV to get people who have been on Metho. to join in the suits.

Bad idea, bad idea.

Oh, by the way, Samatha, you didn't respond, so I am hoping that you are seeing these posts. You can reply by clicking either the Post Reply at the top or bottom of this page.

Rosemary

Posted by Samantha (Member # 3198) on :

Thank your responses!!!!!!

You confirmed my reaction. One local doc here in MA thinks this is the way to go with our 23 year old daughter. She has CNS lyme and is being treated by a CT LLMD for over a year. She has been on various IV antiobiotics plus bicillin IM , plaquenil, etc. Her biggest problems now are severe fatigue and joint pain (particularly knees).

The CT LLMD is thinking IV Immunoglobbin will help. I think we are going to give it a try.

Anyone done this protocol?

Samantha

Posted by bd (Member # 3426) on :

It is too bad Palquinil did not help her. I am a big fan of quinine and synthetic quinines like plaquinil. Other than the ringing of the ears that I had from lyme anyway it did not seem to have any bad effects.

Have you tried any of the pulsed electromagntic field devices? I use a homemade device like the "Doug" coil and it has helped a lot. I have been off antibiotics for over a year now.

A friend just told me he is going to try to buy a "PAPIMI" device. It is the most powerfull PEMF device that is available. It costs over $48,000. to buy one. I researched it and PAPIMI's are in use in Chicago an Texas. I cannot wait to try it.