I am going to be starting Benicar in the next couple of days through my LLMD in the UK and I would reaaly like to communicate with anyone else from the UK who has started/is starting Benicar.
TIA,
Jo.
I think I have been corresponding with them on a small borreliosis group. They have been very receptive to Marshall's work.
I wish we could wake up the US MDs to it...in general they don't seem as interested...and I just don't know why.
Is anyone on the Eurolyme group trying Benicar?
Scott
Also, be sure to post at www.sarc.info.com . There are others from the U.K. there that you could connect with. Also, the moderators might be able to put you in touch with other Brits.
penny
Yes - it`s Dr Andy Wright I`m working with.
I am a very active member of Eurolyme, but as yet, noone on there is taking Benicar.
Penny had mentioned to me that she knew of 2 Brit`s who are taking/about to take Benicar, so I thought I would ask here.
Dr Wright is very open to trying things, but you have to bear in mind that we only have 2 LLMD`s here in the UK, so they are both contiually swamped with work. Also, AW is starting some new research in a bid to get the NHS Infectious Diseases Consultants interested. Although we have a National Health Service - none of the doc`s believe that any of us have Lyme/co-infections, so we have to pay to see the 2 LLMD`s. The NHS doc`s only test for antibody serology in the UK, and of course, they invariably come back negative. I thank God every day that I found Dr W. I saw him first 2 years ago - long before he started researching TBD`s, but he was always an ME/CFS specialist who believed that there was a bacterial cause for the illness.
Jo.
As I have said to Scott - I am a very active member of Eurolyme, but there isonly talk of Benicar on there at the moment - noone has actually started it that I know of.
It would be nice if some of you looked in there now and then and raised the profile on this research a bit - especially you Scott - we have missed you recently!!
Jo.
Jo: Yes.
Penny: He has some patients starting the protocol. I'm sure you could be put in contact with them.
Jo: Dr AW won`t give details of his patients out, so I am relying on asking on the forums.
Penny: Also there's a major hospital in London. The Royal Free, or something like that? who's approved the protocol.
Jo: I find this extremely hard to believe!! None of the NHS hospitals in the UK will treat with long-term abx, never mind something like Benicar. I will ask around though.
Penny: Perhaps you could contact them, and ask if a support group could be put together?
Also, be sure to post at www.sarc.info.com . There are others from the U.K. there that you could connect with. Also, the moderators might be able to put you in touch with other Brits.
Jo: Thanks Penny - this is what I needed. I will have a look in there and ask.
Best Wishes,
Jo.
[This message has been edited by jolbell (edited 09 May 2004).]
I've been corresponding with Dr. Wright regarding Benicar...that's why he's begun to use it.
He appreciates my work and the major breakthrough that Trevor has made.
I'm very impressed with Andy, you are fortunate to have him as a physician.
Andy has recently sent me a CD with video of his dark field, phase contrast, microscopy used on blood sample from Lyme patients...the pictures are amazing...very good diagnostic work.
I apologize for not being able to post to Eurolyme as much as I'd like...I'm very busy here and trying to get the US LLMDs to take notice...it's a struggle.
I'll try to frequent there ASAP.
Please post your experiences with Benicar in Penny's thread.
Scott