Have such depression nothing seems to help long - about to give up - does anyone diag. as Fibromyalgia ever really get cured on this track?
Posted by BugBarb (Member # 210) on :
I see a psychiatrist. I am on a few psychiatric medications. Consider antidepressants if you aren't already on them. It can get better. My only complaint is episodes of crushing fatigue. I can do almost everything I did prior to lyme. It took several years of treatment to get this far.
Posted by kess (Member # 4899) on :
Hang in there woodslyme. I know how hard it can be to be depressed about this illness. But most people do get better. There is no reason why you can't be one of the people who get better. It does take time though.
I'm keeping you in my thoughts and prayers. I hope you're feeling more hopeful soon.
kess
Posted by Stella (Member # 3119) on :
Hang in there! Be patient.....
Value the little good things in life that come your way. Keep up the fight against the keets and I promise you that it will soon all seem like a very bad dream!
Best wishes!
Posted by francis1967 (Member # 5704) on :
For 1 1/2 years I was diagnosed with Fibromyalgia. I had all 22 tender spots, all the other tell-tale signs etc. However, fibro does NOT include fever or inflammation. So when I had constant fevers and sweats and inflammed tissue, we turned yet again to the docs and finally found that it was Lyme. Do you know if you only have Fibro? Have you seen anyone for other illnesses like lyme etc. The symptoms can be diffuse and don't rest until you know for sure. Most of all, don't give up. I know it is hard. More, people look at me and ask if I am a hypocondriac. When I look good and have a half decent day, I don't look sick. I have to agree with them, but that is only the surface. They never see me when my head is swollen, I need help to get to the bathroom and the pain never never stops.
Stay in there. Damned if you should give up. Too many people care about you. AND, this can be fought. I tell myself, no matter how bad my day is.....somewhere a child just died from incurable cancer, someone's husband just passed away suddenly from a heartattack at the age 46 (lost a friend this winter..). Yes, we are hurting to the point where we don't see an end, but there is a cure and there is help.
Establish what you have and take it from there....babysteps.
You'll make it, you'll see!
Posted by lla2 (Member # 2364) on :
ummmm, constant fevers and sweats is probably a coinfection...you won't get better until you treat it..also if you have fibro adn lymph nodes hurt it;'s probalby a sign you have bartonella which can cause the other signs of sweats and fevers as well....
you won't get rid of the lyme until you treat the coinfections first....
just a suggestion...it'll probably help with the depression tooo..bart hits the emotion center of the limbic part of the brain..causes a full range of emotions from depresson to anxiety to rage....
please ask your llmd about this or you will keep getting worse.
lisa
Posted by treepatrol (Member # 4117) on :
Hey hang in there I was never diagnosed with fibro but I had this disease for almost 14 years undiagnosed,and diagnosed as anything except normal crap the eggheads around here say and right now after being diagnosed with lyme 2 strains and numerous coinfections Iam at about 90% so hang in there
REMEMBER they are just opinions by people who are suppose to be educated in medicine ps I think alot of them were asleep.
Ps I forgot this is my third year of treatment better once but I think my wife and I passed it back and forth. If your married spouse should be checked.
[This message has been edited by treepatrol (edited 26 May 2004).]
Posted by lifewithlyme (Member # 4557) on :
Hey, Woods...hold on. It's a bumpy road...but let me just tell you this; I was sick for 4.5 years before being diagnosed; they thought fibro. Well, I could barely walk for a while, the pain was so severe. I 've been on abx for 9 months; last night I ran 3.5 miles; something i NEVER thought I'd be able to do again. You can do this. Keep pushing.
Posted by JillF (Member # 5553) on :
I was diagnosed with Fibro and now think it's actually Lyme or Lyme & Fibro. I'm still waiting for the test results to come back for Lyme.
Anyway, I supposedly have 16 of the 18 trigger points. BUT, almost anywhere I'm touched hurts - so of course the trigger points hurt.
The rheumatologist kept telling me that most of my symptoms were not FMS related (Fever, HIGH, HIGH, HIGH CrP rate, high sed rate, twitches/spasms, severe memory/confusion problems, tremors, cold hands & feet, etc). Hence the reason I kept searching for what the heck was making me so sick...
What about St. Johns Wort? I love it. You just have to check with your doctor, if you are taking any prescription drugs, just to make sure it's ok to take w/them.
I've been on several freakin anti-depressant and anti-anxiety drugs and they were crappy, made me feel worse, made me have side effects or did nothing for me at all.
St. Johns Wort really works and doesn't have any side effects, at least for me.
It takes about 2 - 4 weeks to notice a difference. It has really helped me alot in the past. I was walking around thinking, I've never been this happy before!
Posted by Glassfish (Member # 5693) on :
I can totally understand.
I have been on anti-depressants for years, but the best thing I ever did was to see a councelor.
She helped me to realize that sometimes you have to go through what is almost like a mourning process when you lose so much of who you are to illness.
She also said that I shouldn't give up.
Thanks to her not only am I still here, but recently went from being practically bedridden to a 5 day trip to Disney.
Most of my "friends" said I should rent a wheelchair, just in case.
I basically said "forget you" and wound up walking every day for at least 7 hours a day. (I can't even imagine how many miles that was.)
I did have one problem, though...blisters the size of dimes on my feet! NOT lyme, but shoe related.
Posted by HaplyCarlessdave (Member # 413) on :
You might also find gingko helpful. I foubd it to have a slight mood elevating effect, and it helps alleviate headaches and brain fog. St. Johns wort DOES have a side effect-- like doxycycline, it makes you super sun-sensitive if you are light-skinned. It does help lessen depression, though. Dave
