positive on 1 of 2 tests..the 1 thats measurus current infection IGG?IGM ?meets CDC standard..DOC wants 6 weeks iv ropecillian with flagyl weekends? what is a pic line? can my wife have this? how signicancant is meeting cdc standard on 1 test on the western blot..ive had this a very long time..I have morgellions skin pathogen and bad bad yeast infections in the skin..I need anwers!!what about this treatment protocol
Posted by mlkeen (Member # 1260) on :
I Jeff- I can tell you what I know about iIcc lines and IV rocephin from my own experience. I too was very scared and alarmed, but with facts realized I was on the right track.
IV rocephin delivered via picc line is a fairly common treatment for long term lyme. It can knock symptoms down quickly. The lengh of treatment for best results is not really know. What has become evident is that LONG term abx(antibiotics)( maybe years) are needed to cure lyme. THe IV would be the first step. orals would follow.
IV is expensive some insurances companies will fight to not pay. The care and maintainence of the line is more bothersome than anything else, but not a big deal.
THe range of experiences and outcomes is broad. I'm sure others will tell you their experiences, some have had a rough time, others just not gotten better, and some have improved.
I hope this is enough info to keep you from worrying.
Mel
Posted by stage4 (Member # 702) on :
Jeff...to prevent yeast problems, I take 4-5 capsules of Primadophilus Bifudus daily, minimize sugar in diet, too and I've been OK while on 4 years of abx....
Posted by docdave130 on :
you will have a hard time getting approval for iv from the insurance company unless you have a positive pcr,which is a dna test for the actual bacteria. this test might have to be done ten times before you get a positive because there must be a bacteria in the smaple of blod drawn, and with lyme there are not always alot of circulating bacteria in the blood stream or urine. you can have lyme with 10 bacteria in your whole body. the picc line is a simple procedure, they put topical or lidocaine in the area and they put a catheter in your arm usually just like getting blood drawn no worse. they should send you the the hospital to xray the location of the end of the line. it should be near the heart. iv treatment is simple requiring 1hour a day to infuse the rocephin. treatment should take from 30days to 6 months . depends on symptoms. the yeast can be cured with diflucan for 1-2 weeks then acidophilus with abx treatment. i would have the doc clear up the yeast prior to iv treatment or it will never clear up. so yeast first then iv.
Posted by arg82 (Member # 161) on :
Just wanted to add a few things. Sometimes IV treatment can take longer than six months. There are people on here who have been on IVs for a year or more.
Also, the acidophilus helps with intestional yeast stuff but will not take care of systemic yeast infections. It is crucial when on antibiotics but sometimes diflucan is needed to keep systemic yeast in check. I take it a few days a week and more often when I feel a systemic yeast flare up (for me it's mostly itchy skin).
The picc line insertion isn't that bad and once it's in it's easy to care for. But, you can't get it wet so a cover for your arm while showering is a big help. I got a xerosox when I had my picc line and I loved it. I could even swim with it! You can find them at www.xerosox.com and they cost around $35. They look a little funny (big blue rubber mitten) but they work great. Some people like a product from brown medical supplies but I found it to be much less durable. They're less expensive but for the long run I recommend the xerosox. I think you can go to www.brownmed.com to look at the other ones.
Good luck!
--Annie
------------------ To get where you need to be You'll go through anything. --Shawn Mullins