This is topic Poll-how many are a raving lunatic with mepron/IV mix? in forum Medical Questions at LymeNet Flash.


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Posted by griswoldgirl (Member # 5365) on :
 
I see some are on zithromax, I am on clindamycin, rocephlin and mepron and I have been a nut case.

My family is about to kick me out literally.

Is this something aome of you have been through? and.......... the big question is it worth it? Is there healing on the other side of this IV treatment?

I am really starting to doubt that I am doing the right thing. I am loosing touch with reality and my family quicker than I can spell Mississippi. My hubby says I am the cause of the chaos around the house but do not see it and probably am.

I am an absolute nutcase and he wants me to make big decisions and I cannot right now--I do not feel that I am in the right mind to do so.

Am I alone?

Cathy

[This message has been edited by griswoldgirl (edited 15 June 2004).]
 


Posted by arg82 (Member # 161) on :
 
I can only share my personal experiences here. I have been through times when I was very emotionally unstable. I attempted suicide when I was 13 (I'm only 21 now). I've had a lot of problems, been bipolar (to some extent) a lot of the time, felt like my family didn't understand me at all and like I was a burden on them. I also did IVs for six months and they made a huge difference for me. I was on four months of IV Rocephin with Zithromax and then switched to IV Zithromax with Mepron for another two months. These treatments gave me back some semblance of a life for a little while but about six months after stopping the IVs I started going downhill again. I'm slowly trying ot climb my way back up and will be starting IVs again in July for an undetermined amount of time.

You aren't alone. We are all here and many of us understand what you're going through. Don't give up. This fight is a hard one and there are many obstacles to be overcome but I think the only way to win is by staying optimistic and hopeful that eventually we'll clear the last hurdle and pronounce ourselves victorious over the horrible bugs that have ruined our lives. (sorry if this isn't totally coherent or doesn't have a lot to do with what you were asking, it's 3:30 in the morning and I have horrible insomnia, even after 300mg of Neurontin and 5mg of Ambien). Just know that we're all here for you.

--Annie

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To get where you need to be
You'll go through anything.
--Shawn Mullins
 


Posted by aaronkatie on :
 
Cathy,
I'm sorry you are going thru this - I do know how it is honestly and yes I know people who have gone thru and gotten better.

Have you told the good doc? Maybe get on a different schedule? Mine was changed alot because of the same problems.

I wish you the best, I wish i had other advice.
betsy
 


Posted by lisalyme2003 (Member # 5673) on :
 
Griswoldgirl....you have so....much company with respect to the feeling "different" issue. If this helps put things into perspective....your body is literally fighting a war inside. You are basically preoccupied...big time. When you are not the "patient" it is hard to understand the action or inactions of ill people. If you can have a talk with your family to let them know you are fighting for your health and you know it is hard on them too...but you need to focus on feeling well again. You are going to have good and bad days / weeks /months. You are on the right track. Please check into the Marshall Protocol which is what you type in under your search engine.
In the meantime...try to find a support group you could possible go to in your area and invite your family / spouse to join you. It really helps.
You are not nuts...far from it!!!! You are just compromised because you are ill.

Hoped I helped a smidge.
lisalyme2003


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Posted by Sammi (Member # 110) on :
 
Griswoldgirl, I think we can all understand how you feel, but make sure your doctor knows what is going on. You are on a strong protocol.
 
Posted by HaplyCarlessdave (Member # 413) on :
 
Be sure you follow up the ceftriaxone with orals- most importantly, including metronidazole or tinidazole.
This helps prevent relapse by attacking the cystic forms.of the lyme spirochete.
Good Luck!!!
DaveS

 


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