I also have limited movement in some joints along with hypermobility in other joints.
I also developed another weird thing, just as I start to fall asleep my finger, hand or foot jumps, just enough to wake me.
I have a constant tremor (like a motor running) in my body for a year now.
Peirce I live near chester county, I would love to hear your story, doctors? symptoms?
length of illness? etc. if you ever feel like emailing.
Anyway, my son has Paroxysmal Kinesiogenic Choreoathitosis. This is the "label" the neuro docs have given it. They tell us that they are not 100% sure what it is.
My son will be 16 in July. He has had this since birth and he has congenital Lyme.
It is not seizures - he loses control of his muscles. His face, arms, legs and body move on their own.
He gets "episodes" during the day and during his sleep. (He calls them his "problems" - he has called them that since he was very little) Thay can last anywhere from a few seconds, to a couple of minutes.
When he was very little, around a year old, he had up to 50 episodes a day. The docs put him on Tegretol. He does not take anything for his disorder now. Long story - he chooses not to - and we are in agreement with him.
When he went through puberty it went haywire, but now he doesn't have nearly as many episodes. Our LLMD thinks that this is from the Lyme disease. We think this may be the case too.
He has had so many tests in his life (MRI's, CT scans, EEG's, bloodwork, etc.) yet all the tests come back normal. Now, since lyme treatment started in Oct. 2003, he notices his disorder gets worse during a herx. And he doesn't have as many
"problems" on other days.