Hello all. The Fox affiliate in the San Francisco bay area aired a piece on lyme, the possibility of sexual transmission and the safety of the blood supply yesterday.
I find it a step in the right direction!
Go to the link above to view the video of that segment. You'll need Real Player.
My husband works at a non-profit Blood Donation Center. The questionnaire asks potential donors: Have you ever had Babesia?
If you say yes-----your immediately disqualified from donating blood.
The questionnaire does not ask about Lyme Disease. I don't think they even test the blood for Lyme.
Thanks for the info. I'll show this to my husband, but I believe that I've run across documentation from prominent physicians that also believe the blood supply is tainted.
Take Care,
Jan
They speak with a Red Cross rep who says that they don't ask about lyme disease on the questionaire, but ask enough leading questions for the donor to realize that they should say if they have had lyme.
I think that's idiotic...But then I know how rotten this bug treats our lives...and certainly don't want to share it with anyone else, particularly someone sick enough to need transfusing.
Carol Ann
It is sad to tell you that I use to work at a plasma donor center when I was 20yrs old and donated my plasma 2x in 7days for several yrs. off and on.
I hate the thought of what I might have unknowingly put into the blood supply.
I was probably infected then.
I had donated blood about 4yrs ago and recieved a letter in the mail saying I could no longer donate because I had a positive antibody showing for Hep b.
That freaked me out and I had a test run by my dr. and they showed nothing.
Wonder what that was all about, but what a blessing, huh?
I am on the Bone Marrow Donor program....need to call them and have them take me off that.
Can not be an organ donor anymore......SO SAD!!
Thanks for sharing!
Amanda
Once again, Thank you!
His donor was from New England (that's really all we know about her). Even though his tranplant was successful and his blood-type completely changed to her blood-type, he died, post transplant, 76 days after with an infection that they just couldn't control.
We were very careful with germs, etc and he wore a mask when out of the apartment, but, if he was exposed to Lyme or cos through the transplant process, then it would be a no-brainer. I'm not saying he got Lyme, but, then how would we know. He wasn't tested for it.
Please, if you have LD, or are even suspecious of having it, call and take yourselves off the list before you are called to be a donor. It is devestating for the person searching for a match to get one, only to be told later that the donor can't donate the marrow.
Good post and great exposure for LD.
Rosemary
Their basic comment:
"It is not our job to help enforce diagnosis of lyme disease and we will not interfere with public policy"
This was referring to my question, can the red cross test for lyme and can they work with other organizations to ensure our blood supply is safe from Bb.
quote:
Originally posted by breathwork:
http://www.ktvu.com/video/3547022/detail.htmlHello all. The Fox affiliate in the San Francisco bay area aired a piece on lyme, the possibility of sexual transmission and the safety of the blood supply yesterday.
I find it a step in the right direction!Go to the link above to view the video of that segment. You'll need Real Player.
I cant open it...just a white blank page, with the KATV banner....
quote:
Originally posted by breathwork:
http://www.ktvu.com/video/3547022/detail.htmlHello all. The Fox affiliate in the San Francisco bay area aired a piece on lyme, the possibility of sexual transmission and the safety of the blood supply yesterday.
I find it a step in the right direction!Go to the link above to view the video of that segment. You'll need Real Player.
I cant open it...just a white blank page, with the KATV banner....
Went to www.marrow.org to take my name off the national bone marrow donor list and this is what I found:
Lyme disease:
Asymptomatic Lyme disease is acceptable if the donor has been treated successfully with antibiotics. Chronic Lyme disease is unacceptable.
Hmmmmm......they know!
They did a good job last week, this would be a great follow-up story.
Mel
But it is not true that they give leading questions except for...do you feel well today?
A good book to read is What The Gov Isnt Telling You About AIDS. It was written by a orthopedic surgeon who practiced at the outbreak of HIV. She butted heads with the Red Cross because they were having blood drives in areas they they knew were high risk areas. She called them on it. The essense..they could have cared less even though they may have infected people.
Mimi
Also just wanted to pass along that I was told that I could NOT give blood...ever.
~LymeBrat