LymeNet Flash: need a llmd in florida

This is topic need a llmd in florida in forum Medical Questions at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/26569

Posted by debi (Member # 5542) on :

hello,
i have been recently diagnoised w/ lyme. I HAVE A LLMD, BUT MY DAD WAS BITTEN BY A TICK AND GOT THE BULLSEYE RASH , HE HAS BEEN TESTED BY SEVERAL MDS, AND THEY WERE ALL NEG.
HE NOW HAS DEVELOPED MAJOR BACK PAIN ,NECK PAIN, HEART ISSUES, AND DEPRESSION. THEY DID BACK SURGERY W/ NO RELIEF ABOUT 2 YEARS AGO.
THEY ARE NOW TALKING ABOUT CUTTING SOME NERVES IN HIS BACK.
I KNOW THESE PAINS, AND DISC PROBLEMS ARE DUE TO LYME, AS HE HAS NEVER HAD A FALL, OR ACCIDENT, SO WHERE HAS HIS DISC PROBLEMS COME FROM? THE REGULAR MD'S OUT THERE REFUSE TO TEST HIM ANYMORE FOR LYME.
I DONNOT WANT HIM TO HAVE ANYMORE UNNESSACERY SURGERY.
PLEASE HELP I AM NEW TO THIS CAN ANYONE HELP ME FIND A LLMD IN FLORIDA? HE LIVES IN BROOKSFIELD, I LIVE IN CT OR I WOULD SEND HIM TO MINE. IS THERE A WAY TO GET A LIST OF LLMD'S IN HIS AREA?
THANK YOU FOR ANY HELP
DEBI

Posted by tabbytamer (Member # 3159) on :

Debi,

To the left of the screen you'll see a "Lyme Disease Association, Inc." (LDA) icon. Click on that to get contact information until you hear from someone here with an LLMD name.

Leave a message at the LDA if you don't get a "live" person answering the phone. They will call you back and help you find the closest LLMD to your father.

Please keep us informed if you need any help! It is important to get your father evaluated by someone that knows Lyme.

Posted by lymie tony z (Member # 5130) on :

debi,
I live in florida and know of two LLMD's in the Tampa and Clearwater area and the Bowen labs can get him a positive if he really has it...email me at [email protected] the zman

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Posted by jbgoth (Member # 5567) on :

Debi,

Im not sure where Brooksfield is, but i know two LLMD around Ft. Lauderdale. They are both very good. The one i see uses MDL and IgeneX labs.

I dont know if that is too far for you to drive.

You can e-mail me if you would like their names. [email protected]

Take care,

Jordan

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Posted by Tincup (Member # 5829) on :

Brooksville is kinda in the middle of Florida amongst the orange groves and horse farms.. a bit south of Ocala... at least 30 miles east of Crystal River/Homossassa area... and a good bit south west of Micky Mouse's house. It lies just off I-75 and is an itty bitty spit in the road... a real cute place with a smile for passer-byes.

There was a good LLMD in Inverness.. but that was years ago and no more, unfortunately.

There is a good eye doc in the Crystal River area who knows Lyme... but I am not sure where the regular LLMD would be closest to your dad.

If you don't get a reply from someone... let us know.

If someone gives you a doctor in the Tampa, Clearwater area.. and the last name starts with an R...

I highly DON'T recommend him.

Please stay FAR away from the group of Infectious Disease doctors down that way too. A bigger bunch of taods I don't know!

They are BAD NEWS!!!

No...

SUPER BAD NEWS!

And Mayo Clinic is a BIG NO NO!

Hey.. if you want to know where NOT to go... I can help with that one! HA!

Good luck to you and your dad.

I hope you both feel better soon.

Posted by Marnie (Member # 773) on :

Sending some info.

Posted by Lymetoo (Member # 743) on :

If your dad had an EM rash, HE HAS LYME period.

Read this on the Western Blot....make sure he had THIS test....the ELISA is unreliable.
Also, read what this respected LLMD says about having even having just ONE band show up.....You still have Lyme if it's "Lyme specific."

Western Blot explanation: http://flash.lymenet.org/ubb/Forum1/HTML/022767.html

More info: http://www.ilads.org/

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oops!
Lymetutu

Posted by jbgoth (Member # 5567) on :

Tincup:

Could you email me so i could ask you a few questions about the LLMD's down here in Florida?

I just had a couple questions.

[email protected]

Thanks,

Jordan

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Posted by RECIPEGIRL (Member # 5884) on :

Hi Debi,

Sorry to hear your father is sick. I know you'll find just the right LLMD for him. Wouldn't that be wonderful if they could just turn his situation around totally? Here's hoping.

Listen, I posted a topic to you on July 23rd.
Sorry, I don't know how to bring that post up to you on this spot.

If you have time go to the July 23rd postings & look for DEBI.

I noticed you had shortness of breath & dizziness in one of your posts. I've gone to an LLMD for l l/2 years and had shortness of breath. I'm being treated with Mepron/BABS which is helping that. Never dreamed in a thousand years I had Babesia.

My Bowen was negative for BABS. (I'm typing horribly because of the Mepron.)

Just wished someone would have given me a heads up on BABS. I didn't know about this site though until this year.
Anyway, -----see what you think.
Take Care,
Jan

Posted by Kerryblue (Member # 4077) on :

If you need help you can e-mail me.

I worked at clinic in Clearwater who specialized in Fm/lyme/chronic pain.
Dr. Who runs Bowen I know & worked with her & did research test study.

The pickings are slim..

I agree with Tincup, think we are speaking of same duck. I know some inside stories on that situation since he took on alot of our lyme Pts.

It is kind you are so concerned..Many fam. members turn their backs. Easier for them.

Posted by Tincup (Member # 5829) on :

JB...

Just emailed you.. but warning!

You are only allowed to ask questions I know the answers to.

Otherwise I get to feeling as dumb as an oyster!

Posted by debi (Member # 5542) on :

first i wanted to say thank you all!!!!
kerryblue, if you could email the best dr in that area, that would be awesome.not sure of your email adress. mine is [email protected]
I WOULD APPRECIATE IT !

you are all great here, i always thought i had lyme, but was not aware of the llmd's out there. the sad thing too is i have worked in an iv pharmacy for about 10-11yrs now, and atleast half of my pt's have lyme

i haven't been there in 7 months though but seeing how many pt's i covered atleast 5000, and almost half were lyme i thought it was easier to diagnose.no wonder why we suffer so long. i can't wait to see some changes. of course i have to get on the abx 1st.

anyway, i hope this makes sense, i am very tired,

jan, i responded earlier to you, thanks again.
i have my 12 yr old niece w/ me this week so my responding time is slow, sorry.

thank you all, you are wonderful!!!!!

i will keep you all posted.

goodnight debi

Posted by skimpbiz (Member # 4433) on :

Dr. cichon in Temple Terrace (Tampa) is my doc (infectious disease specialist)skimpbiz and i love him....phone number there is 813-985-5513......hope this helps.

Posted by debi (Member # 5542) on :

hello skimpbiz,
is dr chicon in tampa a llmd? i definitly want him to see a llmd. please get back to me,
thank you for your time.

debi