What does your LLMD think ?
My doc says when you herx so sever to back off the meds till you feel better then add less to start back up.
Sounds like your getting those buggars tho.
I herxed the whole month or thought i was but actully i think i kept the toxins in my system why i never felt good. But i also think now i have damaged my system. i dont know if i will every feel what is normal from it. Hope so tho. Also if this is your first time on mepron sounds like babesia herx to.
Feel better Graneet
For me, headache, severe fatigue, and my legs were killing me.
So very possibly a herx.
Have you tried any of the liver cleanses, like coffee enema or lemon/garlic/olive oil? At first, I was on the 3 weeks on and 1 week off; I did a major liver and colon cleanse on my week off and felt much better.
I also take a liver support combo with milk thistle every day.
Here's the immediate info:
liver cleanse
Put the following in a blender:
~ One cup of fresh squeezed Citrus: use orange, grapefruit, tangerine, lemon, and/or lime. Make the combination as sour as possible. You can dilute this mixture with purified water. Add
~ One to two cloves of garlic.
~ One small piece of fresh ginger.
~ One tablespoon of organic olive oil.
~ Blend the above ingredients and drink immediately.
Follow with two cups of a cleansing teas, such as Jason Winters or dandelion tea.
It is preferable to do the liver flush drink in the morning on an empty stomach, and then wait an hour before eating.
You can do this 5 days in a row.
----
Coffee enema
Dr. Roger's recipe
2 flat tablespoons of coffee per quart of water, boiled for 5 minutes. She recommends adding one tablespoon of unsulfured molasses for each quart of coffee solution. The molasses is not supposed to be a problem for Candida or yeast the way it is used here. The molasses aids in retention, since you want to be able to retain a half quart at a time and to hold it for 10 minutes. The molasses does make it easier to last the full ten minutes without as much discomfort.
To keep it from being a high enema or a colonic, she advises that you do NOT exceed 1/2 quart of coffee at a time. She recommends that you use the coffee at body temperature. She mentions hanging
it at waist level so that the coffee will flow very gently and not with force.
Dr. Rogers also advises that organic coffee is best, but she also says that for the short amount of time, any caffeinated coffee is OK. If you have to use city water, she advises boiling it for ten minutes first, to "boil off the chlorine" before making the coffee.
The theory is the caffeine directly stimulates the physical actions of the liver and gall bladder to clear the toxins. Alkaloids in coffee also stimulate the production of glutathione-S-transferase, which is an enzyme used by the liver for detox pathways run
Im in the SAME boat as you. I started my Mepron/Zithro on June 17.
I have been so sick this past month.
I was up most of the night with this pain....how can i describe it???
Its my left hamstring into my knee thats KILLING me. It just aches so bad. I feel like im going to be crippled.
I added artemisinin two days ago. Only 100mg though, because i feel so sick. Its kinda wavy though. I do have some decent moments.
I have been having TERRIBLE teeth jaw pain too. Im not sure if that has anything to do with anything.
Im so sorry you are feeling bad.
E-mail me anytime, since we are on the same med schedule, we can compare notes.
I was only on doxy for 4 weeks but did really great on it. Zapped all my joint pain.
I have had lyme for many, many years. I never knew it.
Take care,
Jordan
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I'm taking artemisinin too. Caused terrible headaches, spaciness, and irritability at first; no longer, though, so I think I must be rid of much of the babs.
...
Dunno what your LLMD's approach is, but it sounds to me as if completing only one more bottle won't be enough -- you either need to continue mepron/zith, or do an alternate babs tx.
Just something to ask your LLMD about....the good news is that when the symptoms start subsiding (usually about the 4th month, it seems) you really do feel a lot better.
My husband is also taking plaquenil; this helped a great deal with the pain (plaquenil having an anti-inflammatory effect; it's also considered to be a cyst buster). There have been concerns about its immune-suppressant effects, but from the research I've done it's more of an immune system modulator and not a suppressant. Can't say for sure, and I'm not sure anyone really knows. Also concerns about its toxicity -- hasn't been a problem for my husband, but has been for some.
He's also taking celebrex, sort of a 2 weeks on, one week off cycle, and that helps with the pain too.
I have done 5 months of Mepron, 4-1/2 with Zith. The first 2 or 3 months were pretty hard with fatigue, headache and muscle aches, including tooth and neck pain. This is better now. My MD intends to keep me on it until I am pretty clear of symptoms. I am guessing that 6 months will be the minimum that I do. I only took one 7 day break and neck pain returned then.
I felt better on Ceftin too, but never felt entirely well. Hitting the Babs really made a difference. I could tell by the herx reactions.
Hope this helps. Hang in there. It does get better. Others on this topic helped me stick with it.
Bc
I dropped my Mepron in the kitchen and about a third of it went all over the floor and on some cabinents!! Oy Vey, what a mess.
Yes, im sticking with it. Maybe its working now since i have been feeling so terrible.
Funny thing, i feel like i have a fever but i ususally dont. That was one of my biggest complaints was a low grade fever. So, maybe i am getting better....
Take care all,
Jordan
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Interesting the tooth pain and joint pain. I got joint pain from lyme treatment but this is interesting because i feel better in the am which i havent done in a long time when the meds have wore off. BUT the JOINT pain is horrible. Every joing in my body aches specially hip, back,shoulders.
Good to know this thanks
Each and every one of u are STRONG for being able to stay on this.
Graneet: I did six months of clindamycin and quinine. Mepron BLEW ME AWAY with the symptoms.
Jordon, that's the most expensive spill next to the Exxon Valdez! LOL!
Crime.. I wonder if you have a really big load of babesia ya think.
I got nausea a little today with the first two doses. I get nothing with the even doses. The quinine is just bitter.
But the herxes are going right along with you all. sever joint pain, muscle pain, Hot and cold which is so far leveling out, and muscle weakness, the headache gets to me sometimes but it comes and goes. Thank goodness.
Its doing something because i havent felt better even off meds for a very long time.
Graneet