LymeNet Flash: To Annetsky

This is topic To Annetsky in forum Medical Questions at LymeNet Flash.

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Posted by liz28 on :

Annetsky, would it be possible to get the name of your LLMD somehow? If so, let me know and we can exchange posts on a different part of the board.

Thanks!

Posted by liz28 on :

up

Posted by annettsky (Member # 5670) on :

sure where should we go i really don't want to give out my email or my phone number,wharere are you from?

karen

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waiting and praying for a miracle

Posted by annettsky (Member # 5670) on :

up

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waiting and praying for a miracle

Posted by liz28 on :

Thank you very much for your response.

Many apologies for not getting this post sooner. I was frantic last week, because my LLMD had refused, over several months, to prescribe both minocycline and ketek, the new hot antibiotic. It seemed like after two years together, we might have had to part ways.

But for now, everything seems okay... he caved in on both abx, and has decorated his front office with ketek kleenex boxes.

After four days on ketek, I can safely say that nothing that packs a herx this big can be unworthy of its high reputation.

But thank you again for your response--I live in New York State, have Healthnet insurance, and would gladly have traveled to California for these abx! My email address is [email protected]

Posted by annettsky (Member # 5670) on :

what kind of herx is everyone getting and how long does it take have i heard the longer it takes to herx more germ load you have i have been so misserable i can't tell if i am herxing or not.i am very tired and i think it is affecting my heart.

karen, i glad you got everything situated and i will email you sometiem.

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waiting and praying for a miracle

Posted by liz28 on :

Annetsky--I have to sign off soon, but wanted to respond to your message.

I found the normal dose of 800mg/day for ketek to be too much. I started on 200mg twice a day (by cutting the tablets in half) and am ramping up. I am also taking omnicef twice a day, and plaquenil once a day, and am piling on the vitamins and supplements.

The herx, which started on Day 2, is like a bad, bad head cold. Sneezing, snuffling, grogginess, gooiness, too much sleep. Am loving every second of it, as it suggests the ketek is working.

I am also doing DMSA, but not at the level you are. The dosage is 600mg per day for three days, then 11 days off, with lots of alpha lipoic acid, broken cell wall chlorella, and NAC. The chlorella might help with the symptoms you described in another post, as it boosts the effectiveness of probiotics.

Glad to hear you are herxing