Okay guys when does this Burning in legs and palms and my left elbow end. My leg is numb from knee down and once in a while will if i move it just right tingly or shock. My lip was burning today and throat.

Now i have been on meds so this is dumb most people i have seen got this before any treatment. I dont sleep for the pain. I had to ride to top of fla to meet my sister come here to live. Now i road in the back of my explorer laying down didnt sleep at all the night before. I was in tears called the doc.

Doc C perscribed predisone sixty mg a day and it helped the sever pain. I Took an ambin and because of no sleep the first night i slept sound. felt preaty good the next day no pain. Then last night pain again. Sometimes feels like my leg is out of joint so try to force move it to see if it will help.

This dont make since not sure if this is arther, lyme, bart, babesia, been treated for lyme babes. Suppose to start ramphin.

Anyone else out there with this horrible pain in hip Its my left leg. Now this burning in other places wonder if all my limbs will go numb now cause my knee did the burning thing before i had this spell and then it went numb.

Just wondering if im the only one coping with this fun side of this.

Graneet
 

After treating Lyme very agressivly I still had pain in my knees, ankles and swelling, numbness of hands, part of my arm and hips.

Slight ringing in ears, dry/to watery itchy eyes, nasel drip, sore throat, wet and itchy ears (on the inside) and just a swollen feeling in my head.

A tiredness I just couldn't shake at times.

All at different times.

Treating for Candida has controlled all of this.

Lot's of enzymes, high Vit C and many other things.

Now when I get that numb feeling in my hands (not very often) or sore lymphs under my arms I know to pay attention to the Candida again.

I know to detox and watch out for any and all sugars, fruits, some veggies, dairy.

I know to get more rest, I take hot lavender baths twice a day that I lay on my back in the tub and rotate from back to front and side to side rubbing the lymph glands daily.

I ramp up Vit's for awhile and enzymes.

Then I back off awhile. I get longer periods of doing well in between building up the immune system than constantly taking things daily.

I have not been on abx for 14 months now.

Hope this helps, Kat
 

I nearly fainted when I read this. Sorry to be the bearer of bad news, but steroids will depress your system badly.

The Lyme will flourish.

The steroids will take down inflammation, but no LLMD would prescribe them.

I'm concerned for you.

Sounds like you were probably having neuritis which is almost unbearable to go through at times.

There are things like Motrin added to Elavil which will turn off that pain signal. Also, anticonvulsants are frequently prescribed or pain meds.

Please tell me how you're doing?
Jan

If you have been on Mepron for babesia, this med can bring on SEVERE neuritis which can land you in the ER.

Mepron goes straight to the brain and affects the nerves. It causes severe burning. It happened to me. I had to stop Mepron.

Ask your Doctor if you can stop the Mepron
for a day or two-----whatever the normal protocol is when this happens; that's the only way you can actually get some relief.

Others will have better suggestions for you as far as pain meds. Nerve pain is different than any other kind of pain. It takes a precise med or treatment to end nerve pain.

I'm so sorry you are suffering so.

This sounds lame against your severe, severe, pain, but liquid Magnesium Citrate from Wal-Mart for $1.12 can help quieten those nerves.

Take 2 hours away from ABX.

At least, it's a start. This is a highly absorbable form of magnesium. It's almost like an Magnesium IV-----well, not as good, but it's great stuff & works fast!!

When I've had severe pain I've taken about l ounce. I didn't care if I got diarrhea.

If you are in a fragile state you don't want diarrhea.

This Magnesium Citrate is in the laxative section. I've got 4 bottles in my refrigerator right now. You can get this at any drugstore & probably some big grocery stores.

Go easy. Take to bowel tolerance. If you're having pain that bad, your nerves are desperate for magnesium.

I can only speak for myself, but I would not take the Prednisone unless it was a life or death situation.

I know you feel bad, but keep us posted. We do care how you're doing.

Take Care,
Jan

 

I would not return to that doc if I was you.If he prescribes steriods for someone with lyme then he is not lyme literate and you shall get sicker.

I also started with the burning feet ,hands and lips after meds and the pins and needles.It goes away occasionally and my doc says it comes from the CNS.

Best of luck,Sue from Downunder.
 

Is your burning or numbness affected by hot water or hot sun? Or any other factors?
 

Some LLMDs will allow short term doses of steroids (why I have no idea).

I wouldn't touch them with a 10000000 ft pole and unless it was a life or death scenario.
 

Before you freak out about the steroids talk...

Normally they are not advised for folks with Lyme. We need to avoid being treated with steroids vs. antibiotics when at all possible.

However...

It IS ok to take them on a rare ocasion if prescribed by a LLMD... as long as you are on antibiotics and it isn't a long term thing just given for no good reason.

I see that your throat/lips were burning... which could indicate an allergic reaction... in which case steroids are needed... short term.

And it is possible this is a bad herx especially if you haven't felt this recently and it is "deep down" inside.

I ended up in the ER due to this pain .. and it was horrible... day after day. I thought I would lose my mind due to the pain.

Are you on doxy or Biaxin? Just curious as to what drugs you are on. If you backed off them for a few days... I think you would find the pain lessens. I do.

But don't do it unless advised by your doctor. OK?

Oh.. and where it burns.. and in other spots.. watch for a Lyme rash to appeear.. just in case.

Hope you feel better soon!!!

The predisone is only for a few days. I go on ramphin next. I have been on quinine and clyndimicin for babs and then ten days on ceftin Rotating back and forth for two months.

NOTHING seems to help it im so tired from no sleep. Last night i took two darvocet and it made me groggy but nothing else.

I am trying what kathy said really watching taking absolutely no sugar at all.

I feel like my stomach is an acid pit trying to take the vit c now.

I feel like my leg is out of socket but its not. Keeping a heating pad on it. Tried ice to once in a while.

I also was terrified about the predisone but this isnt a long term thing and i will be back on abx.

I had a bout with this the first of last month now two weeks later here i am again. Hope this dont keep up. Cause i feel like just giving up on all treatment about now.

But i know this is lack of sleep and pain talking. I can see how some of you ended up in the hospital with this. I know my Gp told me when i told her about the numbness to go to the emergency room. BUT with no insurance i will have to be dying to go.

Figure they will just give me pain meds and send me home and pop me with a six hundred dollar bill.

I am taking mag i only take three maybe i need to increase that. UGh i nearly gag now. If however it will help this pain i will do what i got to.

Sounding like a big baby today ugh and that makes agravated with myself to. Trying to be strong here.

Thank all of you for you kind words and help. Sometimes its just nice to hear others say how it was for them.

Graneet
 

After reading your last post...

I KNOW! I KNOW!!!

It's a herx!

Congratulations!!!

I know it is horrible now...

But..

Once it clears you SHOULD feel better than you have in a LONG time.

About the Vitamin C...

Might want to try a Rolaid? Or a sip of Chilrens Mylanta.

Not forever.. just now and one more time if needed.

Why suffer when relief is just a Rolaid away.

And how do you spell relief?

R-O-L-A-I-D-S

The Ester C is buffered so it isn't suppose to have such a hard time in the tummy. Plus it has bioflavinoids.. which are more good things for you.

My tummy did get a bit nasty a while back with Vitmain C too.... but the rolaids sure helped!

You might also consider stopping the magnesium completely for a week to see if that helps.

Truthfully.. it made me much worse.

I have switched to Coral Calcium... and I take it at night.. and I sleep well with no drugs and no prompting!!!

The only thing I know that helps with the pain you are feeling is Lavendar oil... rubbed on it.. not swallowed!!!

And better yet.. the Tei-Fu Oil.

Hope you feel better soon... BIG baboon!!!

Im not on any abx for lyme or babs the doc took me off last week when this mess started. Only thing i have now is this predisone. Only six days worth.

Thank all of you for your support and ideas. This is one horrific ride that never seems to end. I keep telling the arcade operater to let me off but guess hes not listening to me.

Graneet

------------------
~*~ Carole ~*~
Now Grandmother of 4, as of Jan. 18, 2004!
ITSA BOY! 8 lbs. 3 oz. and 21 inches long!!!
 

I'm kind of slow tonight; sorry I didn't reply earlier.

Listen, don't worry about Mepron. I believe my liver was probably toxic & not metabolizing Mepron properly.

I can take Zithromax fine, but when you add other strong meds, then it gets comlicated for me & the liver.

I kind of think it just built up to toxic levels. Also, my nerves are better with Lyme treatment, but they're still pretty much cripsy fried.

My lab results for the liver are normal, but many times liver problems don't show up until much later on according to my pain doctor.

I just wanted to reassure anyone taking Mepron or about to go on it that they'll probably do fine.

I fully expect to do more Mepron in the future because after stopping it completely, I began to see the good results it brings.

It is very calming. I never noticed this while on it, but only when I stopped it did I see the good results.

It helped my fine tremor of the head (essential tremor of head & voice) & I only took 2 bottles.

I just blindly took the Mepron; didn't have any instructions as to taking breaks between bottles.

I didn't realize it goes to the brain. I also had severe, weird depression with it because it was probably working.

I developed a new, severe neuritis in my right leg. It also threw me back into my old pain patterns because it turned on all those nerves in my head & left ear.

I was crying with excruciating pain & thought I had totally relapsed. I can only do so much "pain" now days----I've had enough pain.

Only now do I understand the importance of being treated for Babesia if you have brain symptoms. (Of course, Bartonella also causes brain symptoms, too)

I still have a long way to go to get well and basically the co-infections are still a mystery for me. But I'm learning.

You've probably seen the MEPRON BUDDIES REDUX thread. If anyone reading this wants to know about Mepron------that's the place to go.

Hope that helps a little. Let me know if you have any more questions, I'll be glad to help.

Take Care,
Jan

 

I use essential oils... much better.

I also use a product called Avalon Organic Botanicals Therapeutic Lavender Hand and Body Lotion... from Health Food store.

Ask if they carry the Tei-Fu oil when you call. Works better... but lavendar may help too.

Or.. send me your address and I will send you some!!

[email protected]

BUT I GOT SLEEP LAST NIGHT oh how wonderfull it felt. took one predisone and two darvocet instead of one and one a few hours later which did nothing. And when the pain eased this old girl slept and i felt so much better today the pain eased most of the day. I babied it and layed around not much sitting. Hopeing if its inflamed it will go away.

I read that siatic will act up for about a week half to two weeks. Which is about how long these two bouts i have had have been.

But hope this dont ride around twice a month. Docs are not to willing to had out pain meds. Nothing hardly touches it at all.

Thanks so much tincup for offering to send me some lavender that is so sweet. Im suppose to go on Ramphin soon as i go get it and i will be sure to try out the lavender oil.

You all have been great thank you so much.
graneet
 

Keep us informed... we do care!