Sorry, to ask this, as I really mean no harm, but, are you trying to start something?

We all here, know and many first hand, know what regular doctors feel about this disease.

That is one of the MAJOR reasons we have suggested to you to see an LLMD, for regular doctors just do not cut it.

This has been going on since this board was started years ago and as far as I can tell, it will still go on for years to come unless the powers-that-be change their minds on this subject.

There is an LLMD, now, in Louisiana and you can get his contact information by going to www.drcharlescrist and call his contact information and get the LA's LLMD's phone number.

I highly suggest that you do this, for to continue to see a regular duck who says things such as this is a big waste of your HEALTH, time and lot's of you money. The doctor in LA has been working with Dr. C, so he is very up on Lyme Disease and the correct treatment thereof.

Also, I would encourge you to read through the posts Camp A and Camp B so you can begin to get a good understanding of just what I am talking about here.

Topic: CAMP A and CAMP B - The LD Controversy ***click the link below

http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Rosemary

edited to add something I forgot.

[This message has been edited by rosesisland2000 (edited 17 September 2004).]
 

ARE out living their lives and not concerned about reading and posting here anymore. We still do have posters here that are in long-term remissions and those that have been cured...it's just that most are out living their lives again.

Can't say that I'd be hanging around here as much if I were so much better that I could be out gardening again. Would you?

Rosemary
 

Here's a thread that might answer your doctor's skepticism.

It's rather chilling to read.

http://flash.lymenet.org/ubb/Forum1/HTML/015016.html

After great improvement with antibiotics after 13 years of chronic, debilitating pain & lost income, both my husband & my son would just love to lock your DOC in one of his exam rooms & have a nice little "men to man" talk with him.

Your doctor has never had Lyme.

Take Care,
Jan
 

There is some great information there and stories of people getting their health back.

It has been a while since I have gone to the site so if I get the directions wrong let me know.

1. Go to www.calchannel.com
2. Click on webcasts
3. Type in February in the archives
4. Scroll down to Feb. 25th, Health & Safety
5. Click on watch.

There is a 9 minute lead in, but you can move the bar.

I feel it is good to get as informed as possible. Afterall, it is your health.

My experience with most non lyme doctor's is that they were/are very limited in their knowledge of lyme disease.

They seem to dig themselves a rut and stay in it.

I did have several doctor's recently ask me more about my treatment when I had the PICC line installed.

They were at least willing to learn. It was very refreshing. (They admitted that all they had been taught was to give a few weeks of doxy)

I also did have a doctor tell me that the information I gave her was more than she learned in med school...which was very little.

I also had doctor's refuse to treat me or work with my LLMD.

I kept knocking on doors. I now have a primary doc who is working with my LLMD.

The first time I went to see my LLMD, I met a lady in the office who had been treated by him for 3 years. She had been sick with lyme disease for a long time before getting an accurate dx.

She said her health is back to about 90% of what it was before lyme. She is able to live a normal life now.

My LLMD was misdx with MS and treated for it for 5 years before getting an accurate dx and treated for lyme.

He says "Life is good" now.

Have you read the pamphlet that Penn. LDA puts out? IT is worth reading.

Have you read Dr. B's guidelines?

When I first started researching lyme, I too wanted to know just how many improved, and how many didn't.

I wanted to know what my odds were. I was surprised that this data has not been collected yet.

I was also surprised that the education and research for lyme was so limiting.

I think it would be great if we had the resources to contact all the past patients from the LLMD's and collect this data.

But, the organization and the funding for it is not there yet.

Perhaps we could find a way to overcome this.

We have a long way to go.

Another resource for you to read is the recent special edition put out by Lyme Times.

There are also video's and audio's from Dr. B's presentations that can be purchased.

People are getting their health back.

But, you are wasting your energy listening to a non LLMD. Energy which I assume is limited at this point.

You are on the right track of informing yourself.

You most likely will end up with more knowledge than your regular doc when it comes to lyme disease.

You have the time to research it. He most likely does not.

PS Even after I tested positive for lyme, it took me at least 5 tries before I found a regular doc who would work with my LLMD.

And then he really doesn't have the time to learn about lyme. He is willing to carry out any instructions the LLMD prescribes at this time. He is also willing to admit that he knows nothing about lyme and I am his first patient.

Hopefully, the tides will turn and others will not have to go through what we go through with the ignorance of lyme disease.

The numbers compiled by the CDC are real cases and growing at an alarming rate. Those be the facts.
 

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Debbie V.

[This message has been edited by vandeb (edited 08 October 2004).]