LymeNet Flash: rocephin treatment that is working

This is topic rocephin treatment that is working in forum Medical Questions at LymeNet Flash.

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Posted by SpdDrv (Member # 5861) on :

I have been taking rocephin via picc line for 25 days and I am beginning to see a change more energy less pain and such.
My insurance is saying they will not pay for it any longer. But then when I asked them if I went back on oral abx if they would pay they said "well haven't you tried those and they failed already" I just wonder what they want me to do die?
I could understand quitting to rocephin if it wasn't working but it is HELPING me so much! I went from Friday to Sunday last week with NO pain medication at all no patch no pills no nothing and I haven't been able to do that in over 6 months.

Now I am in the middle of a herx and it seems everything is hurting and nothing is helping but I know when this time is over I will see an improvement somewhere that will show me the rocephin is working more.

The meds and all the preperation stuff for my picc line and rocephin is only 400 a week but considering I am not working and money is kind of tight it is hard for us to have that kind of money right now.

I can go through the appeal process but that could take anywhere from 1 to 3 months and I can't wait that long before I start take the rocephin again. So I am putting it on a credit card which I really hate to have a balance on.
Any suggestions or paper work that would support me taking long term rocephin which long term means until December my doctor wanted me to take it for 4 months. since it is working so well and oral abx have never worked for me?
I need some help to get my appeal ready so I can continue to use the medicine that is helping me more than anything else I have tried?
any suggestions will be helpful,
Thanks,
Stacie

Posted by Beverly (Member # 1271) on :

Hi Stacie,

I'm sorry your insurance is giving you a hard time, insurance companies really stink!
Here is link about Free Meds by Tincup, maybe this will help.
http://flash.lymenet.org/ubb/Forum1/HTML/004031.html

I'm glad the IV is working for you and you are feeling better, hang in there.

Beverly

Posted by ShadowHawk (Member # 6263) on :

Stacie,

I can't comment on the legalities of your state, but considering what you have said, I know that I would contact an attorney.

Just my two cents....

Paul