LymeNet Flash: My mom is having problems

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Posted by Lenny777 (Member # 5452) on :

A few months ago my mom looked down and the muscles in her legs were twitching all over. She said she could visible see the twitches up and down both legs.

It just started like that. It wasn't gradual and has been pretty consistent for about two months. She was pretty scared.

She was thinking ALS. Anyway she went to a neurologist and she said it wasn't ALS and she was pretty adamant about that.

She's putting her through some nerve test where they stick needles in you and send electrical charges to the muscles to test for something.

The doc said she didn't think it was Lyme because my mom doesn't remember a tick bit. Who does? Right?

She lives in the area where I was infected.

She has no other symptoms, just the leg twitches. If the nerve test shows nothing I'm really going to push for her to get a WB.

Anyone else has Lyme start like this? Any input?

------------------
``I had no intention of living this way.'' -Adam Duritz

Posted by lookin4answers (Member # 4974) on :

Gosh Lenny, hate to hear that.

I would beg for the lyme test first! Do the other test later, after no sign of lyme!

Posted by Lenny777 (Member # 5452) on :

Yeah, I'm gonna call her tonight.

Has anyone just had muscle twitches as their first and only symptom.

Posted by dharmacleaning (Member # 2114) on :

I remember reading an article by a doctor named Jory Goodman who has a practice in NH and a book ( and a website) - and leg twitching was a symptom of something but now I forgot what. You might check? Good luck and so good of you to take care of your Mom.
love dharma

Posted by JillF (Member # 5553) on :

The twitches are how my symptoms (the ones I took notice of) started.

First was in my abdomen. Then after a few weeks, twitches head to toe, every few minutes 24/7. I could have 5 different areas twitching at the same time.

After a few weeks of that, the muscle spasms started. Then the stiffness, joint pain, stabbing pain, electric-shock pain, vision problems, breast soreness, rib soreness, chest pain, myofacial pain, etc, etc, etc. Also, brain fog/memory problems/concentration problems got worse.

Looking back, I did have symptoms years ago (maybe even in highschool). Fatigue, problems sleeping on and off, numbness/tingling feeling in arms, hands and legs, worsening problem with night vision/driving at night, memory problems, concentration problems, etc, etc, etc.

I thought I was getting carpal tunnel, it was because i was getting older, problems due to pregnancy (they say you turn into an idiot and are clumsy) and then lack of sleep/hormones/being a new mom/up constantly feeding baby after having my son. My symptoms got worse as I got less sleep after having my son...

I was also tested by neurologist for MS/ALS, etc. I got the nerve test. Neurologist thought I was crazy. 10 doctors in a row (including an infectious idiot) told me I had one/some/all: anxiety, depression, allergies, rosacea, sleep apnea, problems sleeping and Fibromyalgia (who knows if I have FMS or if it's caused by Lyme or what).

Posted by lymeyinok (Member # 5817) on :

My husband has been having muscle twitches for ten years and went through all those tests which told him nothing. Finally at my insistence(I have had lyme for 3 yrs) this year he was tested with a WB from Igenex and guess what - CDC positive for Lyme!

Posted by treepatrol (Member # 4117) on :

quote:
Originally posted by dharmacleaning:
I remember reading an article by a doctor named Jory Goodman who has a practice in NH and a book ( and a website) - and leg twitching was a symptom of something but now I forgot what. You might check? Good luck and so good of you to take care of your Mom.
love dharma

http://www.drjgoodman.yourmd.com/

He may be a DUCK

[This message has been edited by treepatrol (edited 07 October 2004).]

Posted by Team Mom (Member # 4677) on :

Yes, I do have these symptoms. I was diagnosed by WB in 9/2003 after and like some of the other repliers I too was told I was crazy-by one of the utmost medically advanced places in Dallas Tx (UTSW). I'm actually on my 2nd treatment of IV rocephin after I had a relapse. Not sure where you are located but just to let you know I ended up paying for my lab test from IGENEX ($180 back then) and it was well worth it to finally find out what was wrong. Actually the best $180 I've spent. I'm now trying to appeal for my charges from my insurance company as they would not pay for it originally. If your family has medical insurance you might have your mom check with the customer service benefits and see what they are-as you may be entitled for a medical review if they first deny the request. Also, my D.O. is the one who finally requested/diagnosed this after many neurologist said nothing was wrong. I was tested for MS/ALS/Parkinson's and so on.... Good luck.

quote:
Originally posted by Lenny777:
A few months ago my mom looked down and the muscles in her legs were twitching all over. She said she could visible see the twitches up and down both legs.
It just started like that. It wasn't gradual and has been pretty consistent for about two months. She was pretty scared.
She was thinking ALS. Anyway she went to a neurologist and she said it wasn't ALS and she was pretty adamant about that.
She's putting her through some nerve test where they stick needles in you and send electrical charges to the muscles to test for something.
The doc said she didn't think it was Lyme because my mom doesn't remember a tick bit. Who does? Right?
She lives in the area where I was infected.
She has no other symptoms, just the leg twitches. If the nerve test shows nothing I'm really going to push for her to get a WB.
Anyone else has Lyme start like this? Any input?

Posted by Lenny777 (Member # 5452) on :

quote:
Originally posted by Team Mom:
Yes, I do have these symptoms. I was diagnosed by WB in 9/2003 after and like some of the other repliers I too was told I was crazy-by one of the utmost medically advanced places in Dallas Tx (UTSW).

Thanks for the replies everyone. I'm really going to push my mom to get a WB from Igenex.

I had one of the worst Doctor experiences of my life from an ID at UTSW. It's too long to go into.

Posted by TheCrimeOfLyme (Member # 4019) on :

my first sx was eye twitching. I had no other sx at all, whatsoever. A month later? Neuro basket case.

Posted by troutscout (Member # 3121) on :

Right eyebll twitched...

then the back of my right shoulder...

then my leg muscles....

all along allergies were creeping up on me.....

It just kept creeping up on me.

Trout

Posted by Mathias (Member # 5298) on :

Wide spread muscle twitches were my second symptom, after severe chest pain.

ALS was ruled out by a non-LL neuro so I got sent to a psychiatrist.

LD was diagnosed 5 months later. No recollection of a tick bite and no rash.