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Originally posted by chainsaw joe:
Its now three years of torment with this.What can you take to stop this racing brain and restless muscle feeling,MAN ITS TORTURING ME.Lorazapam relieves it but I cant rely on them,I dont want another problem also,I already have to take them to sleep.Would any of the anti anxiety meds help.Any suggestions?I dont drink but Ive been thinking of trying wine just to get relief here and there.Also tried smoking weed but that made it worse.Should I see a pschyatrist?Anyone see dr Solomon in RI?

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Debbie Van Huis
 

I was sick mentally and physically.

Nedless to say I paid thousands of dollars to this supposed ND in stratford.

Allthough he was overpriced and didnt find the root of my problems.,

He did tell me to take 5htp, which eventually helped/

I should have been locked up the way I was racing and crying with constant visions of death and car accidents in my head.

If you go to a shrink,, make sure the dont admit you to the phyche ward,

Thats the last thing you want,, i never went there and never saw any damn shrink,

even after I was phychotic and didnt sleep for a month, He gave me lexapro and ambien and told me that I was BIPOLAR and to go to a shrink.

GODDAMN DUCK,, like i told him i was diagnosed with fibro and CFS,,,

He just wanted me in and out,,what a loser..

anyway now I do take ambien and that did help,,

cant really get my hands on psyche meds,..but

things do clear out if you start to think positive,, i know its hockey,,

but your brain is what is gonna calm you down.

good luck----this is reality>>I welcome you
 

Sorry you're having such a rough time.

Has it gotten worse since you started Minocycline?

I want to try Mino for my neuro Lyme, but I think I'll just ask for Doxy next week at my next LLMD visit. I'm also going to ask for a RX for B12 injections.

My nerves are pretty fried.

I don't know if my family would keep me around if I took Mino.

Diagnosed April 2003: I've done 180 Rocephin injections & Zithromax. The Zith did not touch my neuro symptoms. It does keep me out of head pain, at least. Mepron (2 bottles) made me brain dead.

I'm also going to request testing for Bartonella which is suppose to cause major brain/nerve problems.

I have some ideas for you. I have no clue if they will help. I'm sure you've heard it all before.

l.) Magnesium Taurate 125 mg (60 caps) by Cardiovascular Research Ltd.

I had to special order at the Health Food Store about $13.

This contains the amino acid, taurine, which is a mild, electrical cell wall stabilizer. It's a calming amino acid.

It won't fix things immediately, but if you took it daily, perhaps it would have a cumulative effect. (Of course, away from your ABX)

I think of taurine as a very, mild anti-convulsant. You add that to Magnesium & you just can't go wrong.

2.) Super Max EPA Fish Oil softgels by Twinlab or your favorite brand with meals.

This will nourish the fatty brain & keep the blood thin to boot.

3.) Phosphatidylserine is a great brain food.
It was noticeably calming for me, although it's supposed to promote healthy brain function & memory.

Of course, it has to be the expensive one. But it will impact your brain. I loved it.

4.) Sublingual Enzymatic Therapy Bioactive-B12 - l mg. of methylcobalamin (neuroprotective).

Depending on how much money you want to spend, you could safely take 5 mg daily.

B12 shots would be great------in a perfect world.

Here's a site with a short article about B12 if you're interested & have the time. I found it fascinating:

http://www.mts.net/~baumel/B12.html

Another idea is Dilantin (anti-convulsant) taken in pediatric doses. I read about this years ago in Dr. Julian Whitaker's Newsletter, Healthy Directions.

He had patients take Dilantin 50 mg. which is a chewable,pediatric dose & have just the right effect. It stabilizes the brain cells.

It enhances concentration, mood elevator, yet non-sedating & non-addicting.

If you take 100 mg (which is Adult dose) then it would have just the opposite effect. It would be a downer.

You really have to find the right dosage for your body weight, etc. You might use 50 mg in the morning & by afternoon use 50 mg more.

Every person is different.

I read about this in his newsletter. Back then for $5 you could request the 2 hardback books from the Dreyfus Med. Foundation about Dilantin:

"A Remarkable Medicine has Been Overlooked" by Jack Dreyfus

and "The Broad Range of Clinical Use of Phenytoin (i.e. Dilalntin) Bioelectrical Modulator" by Dreyfus Medical Foundation.

Jack Dreyfus dedicated his life to promoting the use of Dilantin. He even sent a copy of his books to every physician in America.

In 1994, I begged my PCP for Dilantin and got it. I think I got it because I was just asking for a pediatric dose of 50 mg. LOL

I loved it. Then I went to New York & had a Brain mapping test done (BEAM) & it showed a low P300.

That was low electricity in the brain & the treatment was either Klonopin or Dilantin. They gave me Klonopin (plus, the stimulant, Wellbutrin).

Interestingly, I had found the cure before the cause!

Anyway, Dilantin does have a lot of potential drug interactions. It is not promoted these days as it's cheap.

I did a drug interaction check for Lorazepam & Dilantin on www.drugdigest.org & it showed this interaction:

"Lorazepam may incrase the amount of phenytoin (dilantin)." So, I don't know if you can stop the Lorazepam safely.

I've never taken that so I don't know much about it.

Here is a site you can research about Dilantin:

http://www.smart-publications.com/articles/a104-Dilantin.html

(I wish I could find the original newsletter that summarizes the use of Dilantin----I'll have to search some more for it.)

I have purchased Gerovital by Dr. Aslan from them several times. Directions: Take that about 12 days straight & then stop.

It's for depression & arthritis.

Dr. Aslan from Austria (I think) gave Gerovital injections to her arthritis patients & they noticed that depression lifted, as well.

Anyway, Gerovital is like resetting the Autonomic Nervous System. Kind of like neural therapy in tablet form.

Also, I know most of us here want to calm the brain, but I've found I have just as big a problem with POOR blood flow to the brain as with chemical depression.

That's why I take Gingko Biloba to thin my blood & oxygenate my brain.

I've benn trying to get my brain fixed for 14 years now------so I've tried a bunch of stuff.

My main problem is getting the ABX into the brain.

Hope something here might help.

Take Care,
Jan
 

white space, by

clicking that Enter key, TWICE, every now

and again where probably paragraphs should be....thanks.

I take Seroquel and Trazodone nightly in order to be able to try and get through the night without awakening.

It's hard to find the "right" combinations in order for some of our more stubborn symptoms to ease. But, keep trying...many of us here take meds to sleep.

I think that it is just the nature of the {{{{beast}}}} that we have when dealing with Lyme Disease adn it's co-infections, not to mention what the meds are doing or not doing to us.

Hany in there as these symptoms seem to ease up the further into treatment you get. Drinking will only make matters with Lyme worse, especially if you are on antibiotics.

Should you see a pschyatrist?? Probably NOT, as this is Lyme and what it does to us. Are you seeing a real LLMD or just a doc who says that he treats Lyme and most of his patients are not Lyme patients.

An LLMD would probably be a doctor who specializes in Lyme Disease and only Lyme Disease...of course and with all the things that Lyme brings on us.

Good luck, and have a nice weekend.

Rosemary
 

Each person must be looked at as an individual, study the behavior of what the Lyme is doing in the person, find priorities and you will have it made ! In several people, Lyme really wasn't the real problem, other ones were and had to get those first before the lyme could be effectively addressed.
 

Document if this problem occurs more at certain times of the month, ie full moon and treat accordingly.