LymeNet Flash: Question RE: balance/walking

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Posted by kare (Member # 5041) on :

Does anyone else have poor balance and very spastic walking? - almost as if you need a walker for balance? - can you walk a straight line? - I am getting worried - I have been dx with MS and neurolyme - and I am currently only being treated for the Lyme - 1X per week Bicillin IM and 1000mg par day each 0f Biaxin and Probedicin ( spelling? sorry) Anyone who knows the preferred treatment for neurolyme please let me know - is'nt IV best??? Thanks

Posted by krazykt1 (Member # 3739) on :

Hi ..yes, I have no balance and freat difficulty walking...also dxed MS, now lyme
I am currently on minocycline 200mg/day for neurolyme.

Posted by kitsicox (Member # 6307) on :

kare, I am in process to see Dr C. I believe that I have lyme misdiagnosed as ms.

I also have trouble walking a straight line. I'm sure I look a bit tipsy to the untrained eye. It attracts a lot of negative attention. The women who used to be my "friends" never call or drop by anymore. Just a few true-blues left. **sigh**
This illness is a very accurate test for true friendship.
Anyhoo...I also am very spastic. It is the most unnerving discomfort in my leg muscles.
My left is usually worse than right. Last year I caught the 'flu' and got a fever. My muscles and joints were so screwed up that I had to fall out of bed and crawl the floor to use the bathroom. I wound up wearing depends until the fever broke. It was awful.
However, I refuse to use a cane. So I meander around when I have the energy to run errands.

[This message has been edited by kitsicox (edited 09 October 2004).

ps: kare, how are you doing on the abx? Are they helping? Do they make your spasticity/ balance issues worse?

I know it can be a worry. Hope you're
on the fast track to wellness.
Kathy

[This message has been edited by kitsicox (edited 09 October 2004).]

Posted by Chocolat (Member # 5138) on :

Can't tell you how many times I have been embarrassed by staggering in public.

A lot more infrequent since abx.

There's hope.

Chocolat

Posted by Nancy-OH (Member # 3567) on :

I have had so much trouble walking. I felt like I was walking crooked for a couple years. This really concerned my parents.

Depending on what hurt, I would limp, drag a foot, etc.

It's common with Lyme; I don't have MS.

Nancy

Posted by Nancy-OH (Member # 3567) on :

Oh yeah, forgot to add....I also walk into things like walls, doors, etc.

Steps are sometimes a real trick. I'm so scared of falling down them that I take them very slowly and go down sideways because of my imbalance.

--Nancy

Posted by kitsicox (Member # 6307) on :

quote:
Originally posted by Nancy-OH:
Oh yeah, forgot to add....I also walk into things like walls, doors, etc.
Steps are sometimes a real trick. I'm so scared of falling down them that I take them very slowly and go down sideways because of my imbalance.
--Nancy

Ditto to what Nancy wrote! ^^^
Kathy

Posted by Alex1950 (Member # 6308) on :

I'm in the same boast! Going down stairs is a chore. Have to hole on the the handrail and place my other hand on the wall. When ther are no rails have to take it real easy., the vertigo realy kicks in. Even walking is fun, triping over my feet or kicking the ground with my toes when taking the next step (had to repair many sneakers and shoes with shoe glue).

Also run into tables, countertops,.....

------------------

Posted by paulscha (Member # 6334) on :

I can't walk a straight line at all. It's a standard test in the exams I've been given by neurologists and orthopedists, and I can never take more than a step without falling.

Posted by Magdalena (Member # 6096) on :

Yes, limping, staggering, dragging feet, gait changes as in shuffle, stumbling and all of the above. It DID improve with Doxy, but I went off Doxy for two weeks and have not returned to my previous status. Am awaiting my new protocol of Zith/Flagyl/Difulcan....

At this point I am ready to do TOA-free Cat's Claw and Rife and take my chances. This is me being tired and sick and sick and tired of being sick and tired.

I fell yesterday after bending over to pick something up off the ground and lost my balance. Isn't it fun!??? No kidding, I DO understand!

The neuro symptoms were the first to improve for me after starting Doxy and the first to return after stopping Doxy so SOMETHING was working!

You mentioned IV being "best" that is an opinion that not all LLMD's share. Depends on who you listen to. IMHO it is being on the "right" abx for the proper spirochete/co-infection rather than the mode of administration that proves effective.