His name is Dr. Gary W. He works at Westchester Medical Center. He is one of the doctors that conducts lyme studies regarding treatment and such.
All of his studies seem to show that 4 weeks of treatment kills off all the bugs?
I have a friend at work who lives in his apartment building. She mentioned my case to him and he told her that I should give him a call.
I have great insurance coverage, but he dosen't take insurance. I believe he charges $500 for the 1st visit.
Has anybody gone to him? I was told that Lyme is what he specializes in! He has many Lyme studies that I've found on-line
He is the Vice Chairman Department Of Medicine which must mean something?
I've seem a couple of his studies on-line. It appears his findings are that once you have the one month course of IV treatment, the bugs should all be dead.
What I feel afterward is my body not realizing that the bugs are dead. And also that some of the damage is very hard to get rid of.
Should I go to this Doctor?
I've been on Rocephin for 8 weeks on 4 weeks off than 4 weeks on and still feel like poo.
My treating doctor her in NYC has mentioned Dr. W's findings from day one regarding my illness and why I still feel like poo.
I was also put on 500 mg of zith after the last 4 week iv treatment.
I would pay $500,000 to get better all ready!
I just don't want to spend a good $500 for a doctor to tell me I'm all better, when I'm not!
Thanks for you help!
Also see www.lymediseaseassociation.org and click on "Conflicts of Interest" in the left column.
In my opinion (I'm no expert) you'd be better off shredding that $500.
I suggest you find another treating doctor.
This place is great. I'm going to check out these links!
Thanks again! By the way, I would like someone else to post if possible regarding their experiences with this doctor.
How long have you had this?
Also, have you been checked for co-infections? Many of us got more than one germ from that tick. It affects the treatment.
This doc organized a Lyme conference that specifically excluded the most experienced Lyme specialists with chronic cases. This was deliberate. And is scientific malpractice. Is this the kind of doc you want? I would question the doc who is treating you as well, if he is citing Dr. W as the expert. You have been lucky to get more than 4 weeks of treatment, because they usually just cut people off after that, regardless of their symptoms or response.
My advice is to take whatever treatment course they will give, don't go on to Dr. W if you feel you still have Lyme or co-infections. Post a message on seeking a doctor forum, or contact the support group for a recommendation if you feel you still need more treatment.
You will probably have trouble finding a really good lyme doc who does take insurance. Lots of controversy in NY and those docs have been cut off by ins. cos. Surprised that Dr. W doesn't take insurance. This is NOT because the ins. people wouldn't give HIM a contract!!
I have just gone back and read your previous posts and see that you already were sent some lyme doc info on this board. Did this not work out? Doesn't sound like your current doc is lyme literate, even if you have had more than the standard treatment.
[This message has been edited by lou (edited 28 October 2004).]
A Cure in such a short time....really now, think about it, then we would NOT need this website as a support if treating Lyme were that easy.
We can all atest to the fact that Lyme is very hard to treat and just a hard to diagnose.
Really start studying this disease, start here:
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html
We've all heard this before and if it were true, you wouldn't be here. Knowledge is POWER and a good place to start is with the above link.
Rosemary
Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.
Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
How to Search Courtesy of Danq
LymeNet Links for New Members
Newbie's Lingo
Lyme Disease Audio Network
Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
International Lyme and Associated Disease Society
Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M
Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
2nd Version Camp A Camp B
Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!
Labs
MDL
Igenex Labs
Western Blot Info
FDA It is important that clinicians understand the limitations of these tests
Explaining Borreliosis (Lyme) Western Blot Tests
Explanation of Western Blot Bands
Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
- Not present
+ Low
++ Medium
+++ High
+/- Equivocal = indeterminate (there, but not as intense as Low)
Drug Interactions and Other Drug Info
Drug Digest
American Medical Women's Association Tiscali Reference Encyclopedia
Herxing
What Is a Herxheimer Reaction?
What Is Herxing?
The Herxheimer Reaction
Check Diet Link Atkins Diet
Sexually Transmitted ???
Transmitted Through Sex?
Sex Question-Serious-Adult Content
Video On Demand: Blood Supply May Be Source Of Lyme Disease Infections
Good Site Canadian Lyme Disease Association
FDA on Lyme Testing
Legal Help
( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. )
See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH
Marnies......... Ten Points Regarding Mg and Lyme Disease
In a Nutshell P1
http://flash.lymenet.org/ubb/Forum1/HTML/021395.html
Please, PLEASE, if you do nothing else, today, read the above link and you'll understand why their names are considered lower than dirt here on LymeNEt.
You'll begin to understand why and I'll put his name here the doc you are referring to, Dr. Gary ((((W-o-r-m-s-e-r)))).
DR GARY WORMERSER IS TO BE AVOIDED IF YOU HAVE LYME DISEASE OR CO-INFECTIONS...HE IS RIGHT UP THERE WITH DR. STEERE OF DOCTORS THAT SHOULD BE ON A LIST OF DOCTORS NOT TO SEE IF YOU HAVE LYME DISEASE!!!
Yes, I am shouting through the roof on this one!!!
Here's a way to do a search through posts here on LymeNet. Use the keywords either, Wormser or Steere and you'll find nothing that they do or say will be good for you if you are fighting Lyme Disease.
http://flash.lymenet.org/ubb/Forum5/HTML/000464.html
Seriously, I cannot stress it enough...keep reading and you'll start to understand why I am making such statements and I would say anyone here would agree with me on the subject of those two. They have set back the treatment of Lyme Disease so far that they are the main reason we are still fighting this disease today!~!!
Rosemary
Who would have known?
This place is great. I can't wait to show my collegue what every body thinks of Dr. W.
Does anybody have any good words regarding a well known Radio host on WOR Radio.
Dr. Ronald H. He has his own H. center and seems very good as from what I can tell from the radio show.
He also doesn't take insurance. It's not the money, it's just that I don't want to waste my time & health!
Thanks Again,
Jason
Well, it just so happens that this is fundraising time! The following link has instructions on how to donate:
http://flash.lymenet.org/ubb/Forum3/HTML/011215.html
We really need to keep lymnet going as it is the best source of accurate info about this disease. Many of us would be stranded in Duckland without the referrals we have gotten here.
The support is outstanding....Help support the network.
Please donate!
robi
As for the Dr. H you are talking about, he seems to treat just about everything...the LLMD you will need to see will more likely than not, will ONLY be treating Lyme Disease. LD will be their only speciality.
From the looks at this webpage where he lists what he treats, http://www.drhoffman.com/page.cfm/31, I din't see where Lyme was even mentioned.
For example, my LLMD, has a website, and just take a look-see at his website, www.drcharlescrist,com
I'm not referring you to him, as there are LLMDs actually closer to you than he, but, you will get the picture when you look at my LLMD's website compared to Dr. Hoffman's site.
You will want you LLMD to be a member of or agree with the treatment of the www.ilads.org
Remember, this is one of the most complicated diseases there is and the more you learn the better off you'll be.
Also, most LLMDs though they will take Medicare, they do not take, but will file for you insurance. The reason is that they do NOT want to be tied to the Insurance Companies recommendations on how to treat this disease.
If they were to follow Wormser and Steere, then we'd all be cured in jsut a couple of weeks...and WE know that that just isn't the way it is...
So, go to Ilads website and call their number and get a referral from them or post over in Seeking a Doctor forum...you will not regret it...but, be sure someone here has actually been treated by whomever you see and that the LLMD has lots of happy customers.
Rosemary