Does anyone just stare off? My LLMD nurse does not know why. It is like I get sooo tired I just stare off. The only way I can keep from doing this is if I stay mentally/physically occupied. Otherwise I stare and the fatigue is overwhelming. My neurologists (after yrs of complaining of severe fatigue, only after being released from a week in the hospital be fore I spent another week at the circus ol'e at Mayo being a monkey)) claims I may now have narcolepsy. I am so sick of getting more and more drugs for they do not know what. I am now taking ativan for "bad days" in addition to epilepsy meds. They have tweeked those so much, I now am having seizures for the first time in 10 yrs.
I hate to complain, I read all e-mails and weep. Because I fear what I must possibly face and because I feel helpless to help others. I am unable to have children, so I have 3 great danes ( I am very involved with rescue) now I must find someone to care for me and find homes for my loved ones.
Stop the world, just let it be.
The woofers are there for me day and night, diligently.
Be well my friends,
Teri
I don't think its narcolepsy, in my case the sleep problem is more the other extreme.
I tend to think its another manifestation of sensory overload, which is a common problem for lymies with neuro involvement.
My 2 cents.
My LLMD also told me staring off into space can be an "overdose" reaction to neuro drugs you don't really need. Please take that as advice from a non-medical person--but I have found that when I was very sick, I was quick to take anything a doctor offered without researching it much, and ended up taking a lot of unnecessary, useless, even dangerous medication as a result.
It used to happen when I was in a room of many people with lots of conversation. It was like sensory overload. I would simply tune out and stare ahead, not participate. Then, it started happening while I was working, especially when I had to meet a deadline. It was like I just couldn't take in one more byte of information.
Not surprisingly, this has pretty much cleared up since being treated for Lyme. Now, I just stare off into space when I am fatgued.
Just a side note: My PCP said that my brain MRI showed high migraine activity. I told her I have never had a migraine, which run in my family. She said that some people have the ability to sense a migraine coming on and the body will naturally shut down, causing the migraine activity to settle down, hence no headache. She described it as "zoning out", the opposite of stressing out.
Bc
best wishes
Lymiecanuck
Was told i wasn't paying enough attention
quote:
Originally posted by caat:
I've done that all my life. I just called it spacing out. I thought it was normal.
Me Too!
But when that happens I'm usually thinking of a tune, a mathematical phenonenom, or the sorry state of democracy in America (in the last case though, there'll usually be a pronounced frown on my face instead of just a vacant stare)..
DaveS
[This message has been edited by HaplyCarlessdave (edited 01 December 2004).]
I was trained in abstract expressionism. We were kind of sort of trained to space out a bit till a solution appeared. Or to feel the movement. Of course it was a *directed* spacing out. Not quite as zen as a lyme moment....
Lyme moments may be zenner than zen.
You say when you stare you get tired but it may be the other way around. Exhaustion can certainly make you stare. Exhaustion can accentuate panic attacks and depression as well. And if the antisezier meds are out of wack that could have a LOT to do with it too.
>now I must find someone to care for me and find homes for my loved ones.
Don't give up your pups just yet. With treatment this does get better. Wait and see how you do. Your pups will survive the odd very very bad day if it happens and they have to. They'd be happier doing that than going to a new home.
Great danes are beautiful