So, my question is are the others like me? Are there any long termers who have gradually gotten better and better yet still feel basically sick? I mean, I so glad I don't feel like I used to but I'm nowhere near where I was before I became sick.
Perhaps I know how you feel when you are sick, you don't have enough energy to make eye contact and really talk to people. This will get better with further treatment. Do you have a new LLMD where you live now?
My big problem has been the neuro stuff, sometimes it's like I'm border-line mad, feel out of my body, very strange, hard to explain, I still get the stabbing sensations and fatigue, but mostly in my legs, my hands and such, went through cold/hold flashes which has seemed to clear up, vertigo, fingers and hands locking into strange positions, all kinds of stuff, every year or so it changes onto something new, it's just crazy and my wife god bless her has been pretty good to me.
as stated you need to find a good doc....
don't know any in your area but hopefully someone can steer you in the right direction.
best of luck!
Basically, I can do anything I used to do, the fatigue and such is not a problem any more (most of the time), just a feeling of say having a cold or the flu without any "real" systems, terrible head problems, anxiety, and many more things that always change. Like I said I'm much better now. When I had lyme I used to take long very hot baths, I come to find out that might have helped, also, my wife and I used to go rollerblading and I would go when I literally felt I couldn't get up off of the couch, then I would feel so much better the rest of the day. Basically, I look at it this way, lyme for me is an attack of my nervous system, my hands might sweat, muscles twitch, crazy stuff, but it's not real, it's an artifical cause, the lyme is chewing on my nerves and causing all kinds of phychological stuff which is also artificially induced.
If you feel like your to tired to get up, by all means get up, lyme is trying to trick you into resting so you don't raise your body temperature and suck in lots of oxygen, I did the opposite, I felt like crap and stress my body to the max. I know this sounds goofy. I was never terriblly disabled though, like I said the neuro stuff was worse than the traditional fatigue and stuff.
Also, be sure to read ROBERTISKING's post...but you don't look sick article. Good to print off for family/friends who give you a hard time at not being able to do things.
Here is Tincup's post of links for NEW members.
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html
I suggest you print it and check off the links you read....there are too many to remember if you have been there or not!
I do suggest you go back to your 1st post and EDIT removing your drs. last name...show initial only. you can edit anytime on this board, EXCEPT TOPIC line; what you put there stays.
If after looking at tincup's links, etc., you have questions, ask them...many will share 24/7 !! Betty G., Iowa
Why don't you order some Artemesia from HepaPro, and take it for a few weeks until you get in to see a LLMD? See what happens on Dr. Zhang's Babesia protocol. That's a low risk experiment.
--Kris